Community involvement in PhD students’ autism research projects: Challenges and opportunities

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Genovesi, E., Grant, S., Kifle, T. H., Li, J., Shand, A. J., & Hoekstra, R. A. (2024). Community involvement in PhD students’ autism research projects: Challenges and opportunities. Autism, 29(1), 3-7. https://doi.org/10.1177/13623613241300683

Journal or book title
Autism
Publisher
SAGE Publications
Volume
29
Issue
1
Pages
3-7
Publication date: 27 Nov 2024 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English
Publisher source (DOI) OpenAlex source

This publication is integrated into AutiHub through:

Authors

Publication authors
6
Publication authors identified as autistic
1 / 6 (16.7%)
  1. Elisa Genovesi
  2. Sarah Grant *
  3. Tsegereda Haile Kifle
  1. Jialing Li
  2. Alanna J. Shand
  3. Rosa A. Hoekstra

Abstract

No structured abstract stored for this reference.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 3 Oct 2026 01:00.

Cited references
21
With a DOI
18
Without a DOI, from raw bibliography text
3
6 / 21 (28.6%) cited references include at least one author identified as autistic.
References with data to complete
3 / 21 (14.3%)
References with detected author names
18 / 21 (85.7%)
Without detected author names
3
Without a structured title
3
Without a stable identifier
3
References with raw author names still to review
3
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
113
From DOI or external metadata
113
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
3
53 / 113 (46.9%) names are linked to an author already present in AutiHub. 60 / 113 (53.1%) names are not yet linked.
Names linked to a person identified as autistic
20 / 113 (17.7%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 20 / 53 (37.7%). Distinct people identified as autistic: 19 / 87 (21.8%).
  1. Stephanie Knaak , Geeta Modgill , Scott B Patten (2014). Key Ingredients of Anti-Stigma Programs for Health Care Providers: A Data Synthesis of Evaluative Studies . The Canadian Journal of Psychiatry, 59(1_suppl), 19-26. SAGE Publications.
    Type: Article DOI: 10.1177/070674371405901s06 OpenAlex: https://openalex.org/W1424055694
    Crossref OpenAlex OpenCitations
  2. Sisay Abayneh , Heidi Lempp , Sauharda Rai , Eshetu Girma , Medhanit Getachew , Atalay Alem et al. (2022). Empowerment training to support service user involvement in mental health system strengthening in rural Ethiopia: a mixed-methods pilot study . BMC Health Services Research, 22(1), 880-880. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s12913-022-08290-x OpenAlex: https://openalex.org/W4284896422
    Crossref OpenAlex OpenCitations
  3. Graham Thornicroft , Nisha Mehta , Sarah Clement , Sara Evans-Lacko , Mary Doherty * , Diana Rose et al. (2016). Evidence for effective interventions to reduce mental-health-related stigma and discrimination . The Lancet, 387(10023), 1123-1132. Elsevier BV.
    Type: Article DOI: 10.1016/s0140-6736(15)00298-6 OpenAlex: https://openalex.org/W1810469630
    Crossref OpenAlex OpenCitations
  4. Olivia Burningham , Amanda Chen , Elisa Genovesi , Winini Belay , Ikram Ahmed , Moges Ayele et al. (2026). Inclusive Education for Children with Developmental Disabilities in Ethiopia: Stakeholder Views on Benefits, Disadvantages and Priorities for Action . Journal of Autism and Developmental Disorders, 56(1), 410-425. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-024-06549-2 OpenAlex: https://openalex.org/W4402871232
    Crossref OpenAlex OpenCitations
  5. Bethlehem Tekola , Y. Baheretibeb , I. Roth , D. Tilahun , A. Fekadu , C. Hanlon et al. (2016). Challenges and opportunities to improve autism services in low-income countries: lessons from a situational analysis in Ethiopia . Global Mental Health, 3, e21-e21. Cambridge University Press (CUP).
    Type: Article DOI: 10.1017/gmh.2016.17 OpenAlex: https://openalex.org/W2461099216
    Crossref OpenAlex OpenCitations
  6. Crean M. (2018). Minority scholars and insider-outsider researcher status: Challenges along a personal, professional and political continuum. Forum Qualitative Sozialforschung / Forum: Qualitative Social Research, 19(1), Article 1. https://doi.org/10 . 17169/fqs-19. 1. 2874
    Type: Other
    Crossref
  8. Mags Crean (2020). Minority Scholars and Insider-Outsider Researcher Status: Challenges along a Personal, Professional and Political Continuum . Forum: Qualitative Social Research (Freie Universität Berlin). Forum Qualitative Sozialforschung / Forum: Qualitative Social Research.
    Type: Article DOI: 10.17169/fqs-19.1.2874 OpenAlex: https://openalex.org/W2782828892
    OpenAlex
  9. den Houting J. (2021). Participatory and inclusive autism research practice guides. Autism CRC. https://www.autismcrc.com.au/best-practice/inclusive-research-guides
    Type: Other
    Crossref
  12. Hannah Kuper , Shaffa Hameed , Veronika Reichenberger , Nathaniel Scherer , Jane Wilbur , Maria Zuurmond et al. (2021). Participatory Research in Disability in Low- and Middle-Income Countries: What have we Learnt and what Should we Do? Scandinavian Journal of Disability Research, 23(1), 328-337. Stockholm University Press.
    Type: Article DOI: 10.16993/sjdr.814 OpenAlex: https://openalex.org/W3213715640
    Crossref OpenAlex OpenCitations
  14. Sue Fletcher-Watson (2024). Reporting participatory methods and author positionality in autism . Autism, 28(8), 1869-1871. SAGE Publications.
    Type: Article DOI: 10.1177/13623613241266950 OpenAlex: https://openalex.org/W4400983715
    AutiHub · Documentation center Crossref OpenAlex OpenCitations
  15. Bethlehem Tekola , Mersha Kinfe , Fikirte Girma , Charlotte Hanlon , Rosa A. Hoekstra (2020). Perceptions and experiences of stigma among parents of children with developmental disorders in Ethiopia: a qualitative study . Soc Sci Med, 256, 113034. Elsevier BV.
    Type: Article DOI: 10.1016/j.socscimed.2020.113034 OpenAlex: https://openalex.org/W3024871723
    Crossref OpenAlex OpenCitations
  16. Fangyuan Liu , Sander Begeer , Rosa A. Hoekstra , Chongying Wang , Anke Scheeren (2024). Self-Reported Psychosocial Outcomes of Autistic Adults Living in China and The Netherlands . Autism in Adulthood. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2024.0073 OpenAlex: https://openalex.org/W4401897425
    Crossref OpenAlex OpenCitations
  17. Elisa Genovesi , Ikram Ahmed , Moges Ayele , Winini Belay , Olivia Burningham , Amanda Chen et al. (2024). Exploring context for implementation of inclusive education for children with developmental disabilities in mainstream primary schools in Ethiopia . PLOS ONE, 19(8), e0307576. Public Library of Science (PLoS).
    Type: Article DOI: 10.1371/journal.pone.0307576 OpenAlex: https://openalex.org/W4401452538
    Crossref OpenAlex OpenCitations
  19. Zsofia Szlamka , Ikram Ahmed , Elisa Genovesi , Mersha Kinfe , Rosa A. Hoekstra , Charlotte Hanlon (2023). Conceptualising the empowerment of caregivers raising children with developmental disabilities in Ethiopia: a qualitative study . BMC Health Services Research, 23(1), 1420-1420. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s12913-023-10428-4 OpenAlex: https://openalex.org/W4389786048
    Crossref OpenAlex OpenCitations
  20. Sauharda Rai , Dristy Gurung , Brandon Kohrt (2023). The PhotoVoice method for collaborating with people with lived experience of mental health conditions to strengthen mental health services . Cambridge Prisms: Global Mental Health, 10, e80-e80. Cambridge University Press (CUP).
    Type: Article DOI: 10.1017/gmh.2023.73 OpenAlex: https://openalex.org/W4388833225
    Crossref OpenAlex OpenCitations
  21. National Institute for Health and Care Research. (2019). Taking stock–NIHR public involvement and engagement. https://www.nihr.ac.uk/taking-stock-nihr-public-involvement-and-engagement
    Type: Other
    Crossref