Community involvement in PhD students’ autism research projects: Challenges and opportunities

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Genovesi, E., Grant, S., Kifle, T. H., Li, J., Shand, A. J., & Hoekstra, R. A. (2024). Community involvement in PhD students’ autism research projects: Challenges and opportunities. Autism, 29(1), 3-7. https://doi.org/10.1177/13623613241300683

Publication date: 27 Nov 2024 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English
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Authors

Publication authors
6
Publication authors identified as autistic
1 / 6 (16.7%)
  1. Elisa Genovesi
  2. Sarah Grant *
  3. Tsegereda Haile Kifle
  1. Jialing Li
  2. Alanna J. Shand
  3. Rosa A. Hoekstra

Abstract

No structured abstract stored for this reference.

Bibliography cited by this reference

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Cited references
21
Total cited references integrated for this publication.
Cited references with an identified autistic author
6 / 21 (28.6%)
Cited author occurrences identified as autistic
17 / 113 (15.0%)
Among occurrences linked to AutiHub author records: 17 / 51 (33.3%). Distinct cited authors identified as autistic: 16 / 84 (19.0%).
Cited author occurrences linked to AutiHub author records
51 / 113 (45.1%)
Distinct linked cited authors: 36 / 84 (42.9%)
Linked cited-author occurrences not identified as autistic
34 / 51 (66.7%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 34 / 113 (30.1%). Distinct linked cited authors not identified as autistic: 20 / 36 (55.6%).
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  2. Sisay Abayneh , Heidi Lempp , Sauharda Rai , Eshetu Girma , Medhanit Getachew , Atalay Alem et al. (2022). Empowerment training to support service user involvement in mental health system strengthening in rural Ethiopia: a mixed-methods pilot study . BMC Health Services Research, 22(1), 880-880. Springer Science and Business Media LLC.
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  3. Graham Thornicroft , Nisha Mehta , Sarah Clement , Sara Evans-Lacko , Mary Doherty * , Diana Rose et al. (2016). Evidence for effective interventions to reduce mental-health-related stigma and discrimination . The Lancet, 387(10023), 1123-1132. Elsevier BV.
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  6. Crean M. (2018). Minority scholars and insider-outsider researcher status: Challenges along a personal, professional and political continuum. Forum Qualitative Sozialforschung / Forum: Qualitative Social Research, 19(1), Article 1. https://doi.org/10 . 17169/fqs-19. 1. 2874
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  14. Sue Fletcher‐Watson (2024). Reporting participatory methods and author positionality in autism . Autism, 28(8), 1869-1871. SAGE Publications.
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  15. Bethlehem Tekola , Mersha Kinfe , Fikirte Girma , Charlotte Hanlon , Rosa A. Hoekstra (2020). Perceptions and experiences of stigma among parents of children with developmental disorders in Ethiopia: A qualitative study . Social Science & Medicine, 256, 113034. Elsevier BV.
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  16. Fangyuan Liu , Sander Begeer , Rosa A. Hoekstra , Chongying Wang , Anke Scheeren (2024). Self-Reported Psychosocial Outcomes of Autistic Adults Living in China and The Netherlands . Autism in Adulthood. SAGE Publications.
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  17. Elisa Genovesi , Ikram Ahmed , Moges Ayele , Winini Belay , Olivia Burningham , Amanda Chen et al. (2024). Exploring context for implementation of inclusive education for children with developmental disabilities in mainstream primary schools in Ethiopia . PLOS ONE, 19(8), e0307576. Public Library of Science (PLoS).
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