Overcoming barriers to autistic health care: towards autism-friendly practices

This publication is included in the Autistic Autism Scholarship Project. three authors of this publication are identified as autistic in the project.

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Johnson, M., Doherty, M., & Shaw, S. C. (2022). Overcoming barriers to autistic health care: towards autism-friendly practices. British Journal of General Practice, 72(719), 255-256. https://doi.org/10.3399/bjgp22x719513

Publication date: 26 May 2022 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

This publication is integrated into AutiHub through:

Authors

Publication authors
3
Publication authors identified as autistic
3 / 3 (100.0%)
  1. Mona Johnson *
  2. Mary Doherty *
  3. Sebastian C.K. Shaw *

Abstract

Rates of autism diagnosis have increased over the past 20 years, reflecting increased awareness and recognition both by patients and by GPs. Indeed, many GPs are discovering autistic traits in themselves mirroring the shift towards increased diagnosis among those without co-occurring intellectual disability. While a fall in referrals for autism assessment occurred early in the pandemic, high profile celebrity revelations, media coverage, and perhaps the pandemic itself, continue to track with climbing numbers of referrals (Table 1). In fact, the number of referrals in the first quarter of 2021/2022 were more than double that of the corresponding period in 2019/2020.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 01:00.

Cited references
15
With a DOI
11
Without a DOI, from raw bibliography text
3
6 / 15 (40.0%) cited references include at least one author identified as autistic.
References with data to complete
3 / 15 (20.0%)
References with detected author names
12 / 15 (80.0%)
Without detected author names
3
Without a structured title
3
Without a stable identifier
3
References with raw author names still to review
2
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
58
From DOI or external metadata
58
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
2
38 / 58 (65.5%) names are linked to an author already present in AutiHub. 20 / 58 (34.5%) names are not yet linked.
Names linked to a person identified as autistic
14 / 58 (24.1%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 14 / 38 (36.8%). Distinct people identified as autistic: 8 / 51 (15.7%).
  1. C. S. Allely (2013). Pain Sensitivity and Observer Perception of Pain in Individuals with Autistic Spectrum Disorder . The Scientific World Journal, 2013(1), 916178-916178. Wiley.
    Type: Article DOI: 10.1155/2013/916178 OpenAlex: https://openalex.org/W2165083688
    Crossref OpenAlex OpenCitations
  2. Ginny Russell , Sal Stapley , Tamsin Newlove‐Delgado , Andrew Salmon , Rhianna White , Fiona Warren et al. (2022). Time trends in autism diagnosis over 20 years: a UK population‐based cohort study . Journal of Child Psychology and Psychiatry, 63(6), 674-682. Wiley.
    Type: Article DOI: 10.1111/jcpp.13505 OpenAlex: https://openalex.org/W3193769374
    Crossref OpenAlex OpenCitations
  3. Tatja Hirvikoski , Ellenor Mittendorfer-Rutz , Marcus Boman , Henrik Larsson , Paul Lichtenstein , Sven Bölte (2016). Premature mortality in autism spectrum disorder . British Journal of Psychiatry, 208(3), 232-238. Royal College of Psychiatrists.
    Type: Article DOI: 10.1192/bjp.bp.114.160192 OpenAlex: https://openalex.org/W2168424072
    Crossref OpenAlex OpenCitations
  5. Silvana Unigwe , Carole Buckley , Laura Crane , Lorcan Kenny , Anna Remington , Elizabeth Pellicano (2017). GPs’ confidence in caring for their patients on the autism spectrum: an online self-report study . British Journal of General Practice, 67(659), e445-e452. Royal College of General Practitioners.
    Type: Article DOI: 10.3399/bjgp17x690449 OpenAlex: https://openalex.org/W2614102167
    Crossref OpenAlex OpenCitations
  6. NHS Digital (2021) Autism statistics quarter 1 (April to June) 2019–20 to quarter 1 (April to June) 2021–22. Autism waiting time statistics, https://digital.nhs.uk/data-and-information/publications/statistical/autism-statistics/quarter-1-2019-20-to-quarter-1-2021-22 (accessed 27 Apr 2022).
    Type: Other
    Crossref
  7. Sebastian C.K. Shaw * , Lucy-Jane Davis , Mary Doherty * (2022). Considering autistic patients in the era of telemedicine: the need for an adaptable, equitable, and compassionate approach . BJGP Open, 6(1), BJGPO.2021.0174. Royal College of General Practitioners.
    Type: Article DOI: 10.3399/bjgpo.2021.0174 OpenAlex: https://openalex.org/W4206988063
    Crossref OpenAlex OpenCitations
  8. Ewelina Rydzewska , Laura A. Hughes-McCormack , Christopher Gillberg , Angela Henderson , Cecilia MacIntyre , Julie Rintoul et al. (2019). General health of adults with autism spectrum disorders – A whole country population cross-sectional study . Research in Autism Spectrum Disorders, 60(April 2019), 59-66. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2019.01.004 OpenAlex: https://openalex.org/W2912237256
    Crossref OpenAlex OpenCitations
  12. Harriet Emma Clare Sharp , Hugo D. Critchley , Jessica A. Eccles (2021). Connecting brain and body: Transdiagnostic relevance of connective tissue variants to neuropsychiatric symptom expression . World Journal of Psychiatry, 11(10), 805-820. Baishideng Publishing Group Inc..
    Type: Article DOI: 10.5498/wjp.v11.i10.805 OpenAlex: https://openalex.org/W3206275856
    Crossref OpenAlex OpenCitations
  13. Sebastian C.K. Shaw * , Lucy-Jane Davis (16289837) , Mary Doherty * (2022). Considering autistic patients in the era of telemedicine: the need for an adaptable, equitable, and compassionate approach . INDIGO (University of Illinois at Chicago).
    Type: Article OpenAlex: https://openalex.org/W4220652391
    OpenAlex
  14. Department of Health and Social Care (2019) ‘Right to be heard’: the Government’s response to the consultation on learning disability and autism training for health and care staff. https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/844356/autism-and-learning-disability-training-for-staff-consultation-response.pdf (accessed 27 Apr 2022).
    Type: Other
    Crossref
  15. (n.d.). NHS Health Education England The Oliver McGowan Mandatory Training in Learning Disability and Autism. https://www.hee.nhs.uk/our-work/learning-disability/oliver-mcgowan-mandatory-training-learning-disability-autism (accessed 27 Apr 2022).
    Type: Other
    Crossref