The Autistic Advantage as an Researcher in Autism
This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.
About the autistic author markerWhitney, E. (2025). The Autistic Advantage as an Researcher in Autism. In Neurodivergent Education and Lifelong Learning (pp. 383-404). IGI Global Scientific Publishing. https://doi.org/10.4018/979-8-3693-8044-4.ch017 · ISBN : 9798369380444
Book containing this chapter, also included in AutiHub
- Edited by Nathan Keates; Krysia Emily Waldock (2025). Neurodivergent Education and Lifelong Learning
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Authors
Abstract
Studies have argued whether the autism research field has been fully welcoming to autistic researchers. Literature highlights that autistic researchers have unique strengths which are beneficial to the autism research field (Dwyer et al., 2021). As an openly autistic autism researcher I am in a unique position, I am able to approach participatory autism research from an inside perspective because of my experience of being ‘the researched'. Considering the autistic advantage in the context of an autism researcher as a notable part of the methodological approach, might seem unorthodox however many research projects are put together with little consideration in relation to autistic communication and rigid methodological approaches. This chapter will reflect on the two questions below. 1. How can personal experiences and knowledge of autism support the development of a fully collaborative research approach to allow the voices of autistic females to be heard? 2. How can creative and personalised approaches be used to engage autistic participants.
Bibliography cited by this reference
Cited references are imported from external metadata sources when they are available. The list may be partial.
Cited bibliography overview
These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 23 Oct 2026 07:41.
- With a DOI
- 43
- Without a DOI, from raw bibliography text
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- References with detected author names
- 51 / 56 (91.1%)
- Without detected author names
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- Without a structured title
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- Without a stable identifier
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- References with raw author names still to review
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- References with external metadata lookup issues
- 1
- From DOI or external metadata
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- From validated raw bibliography text
- 0
- Raw names already validated
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- Raw names still to review
- 11
-
Adam M. Samaha (2007). What Good Is the Social Model of Disability? The University of Chicago Law Review, 74(4), 1251. JSTOR.Crossref OpenAlex OpenCitations
-
E.Adams (1998). AdamsE. InghamS. (1998). Changing Places. The Children’s Society. Changing Places.Type: OtherCrossref
-
M. Ariel Cascio , Jonathan Weiss , Éric Racine , and the Autism Research Ethics Task Force (2020). Person-oriented ethics for autism research: Creating best practices through engagement with autism and autistic communities . Autism, 24(7), 1676-1690. SAGE Publications.Crossref OpenAlex OpenCitations
-
Fiety Meijer-Degen , Johan Lansen (2006). Alexithymia—A challenge to art therapy . The Arts in Psychotherapy, 33(3), 167-179. Elsevier BV.Crossref OpenAlex OpenCitations
-
Thomas Armstrong (2015). The Myth of the Normal Brain: Embracing Neurodiversity . AMA Journal of Ethics, 17(4), 348-352. American Medical Association (AMA).Type: Article DOI: 10.1001/journalofethics.2015.17.4.msoc1-1504 OpenAlex: https://openalex.org/W268075324Crossref OpenAlex OpenCitations
-
Sarah Crowe , Kathrin Cresswell , Ann Robertson , Guro Huby , Anthony Avery , Aziz Sheikh (2011). The case study approach . BMC Medical Research Methodology, 11(1), 100-100. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Angie Voyles Askham , Laura Dattaro (2021). Backlash from autistic community pauses research, exposes communication gaps . Spectrum. Simons Foundation.Crossref OpenAlex OpenCitations
-
TIM BOOTH , WENDY BOOTH (1996). Sounds of Silence: Narrative research with inarticulate subjects . Disability & Society, 11(1), 55-70. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Donna Williams *Autistic author. Learn more… (1996). Autism-An-Inside-Out Approach: An Innovative Look at the Mechanics of ‘Autism’ and its Developmental ‘Cousins’ .Type: Book OpenAlex: https://openalex.org/W614408088OpenAlex
-
L.Beardon (2017). Autism and Asperger Syndrome in Adults . Autism and Asperger Syndrome in Adults.Type: OtherCrossref
-
Julia Makhaeva , Christopher Frauenberger , Katta Spiel (2016). Creating creative spaces for co-designing with autistic children . Proceedings of the 14th Participatory Design Conference: Full papers - Volume 1, 51-60. ACM.Crossref OpenAlex OpenCitations
-
Jim Sinclair *Autistic author. Learn more… (2010). Being Autistic Together . Disability Studies Quarterly, 30(1). The Ohio State University Libraries.
-
L.Beardon (2020). BeardonL. (2020). Avoiding Anxiety in Autistic Children: a guide for autistic wellbeing. Sheldon Press. Avoiding Anxiety in Autistic Children: a guide for autistic wellbeing.Type: OtherCrossref
-
Monique Botha *Autistic author. Learn more… (2021). Academic, Activist, or Advocate? Angry, Entangled, and Emerging: A Critical Reflection on Autism Knowledge Production . Frontiers in Psychology, 12(727542), 727542. Frontiers Media SA.AutiHub · Autistic Autism Scholarship Project AutiHub · Documentation center Crossref OpenAlex OpenCitations
-
Alison Clark , Anne Trine Kjørholt , Peter Moss (2005). Beyond Listening: Children's Perspectives on Early Childhood Services .Type: Article OpenAlex: https://openalex.org/W1696833966OpenAlex
-
S. Robic , S. Sonié , P. Fonlupt , M.-A. Henaff , N. Touil , G. Coricelli et al. (2015). Decision-Making in a Changing World: A Study in Autism Spectrum Disorders . Journal of Autism and Developmental Disorders, 45(6), 1603-1613. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Damian E. M. Milton *Autistic author. Learn more… (2012). On the ontological status of autism: the ‘double empathy problem’ . Disability & Society, 27(6), 883-887. Informa UK Limited.
-
Sarah White (2013). The Triple I Hypothesis: Taking Another(’s) Perspective on Executive Dysfunction in Autism . Journal of Autism and Developmental Disorders, 43(1), 114-121. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Monique Botha *Autistic author. Learn more… , Eilidh Cage (2022). “Autism research is in crisis”: A mixed method study of researcher’s constructions of autistic people and autism research . Frontiers in Psychology, 13, 7397. Frontiers Media SA.AutiHub · Autistic Autism Scholarship Project AutiHub · Documentation center Crossref OpenAlex OpenCitations
-
Chantelle Makin , Vivian Hill , Elizabeth Pellicano (2017). The primary-to-secondary school transition for children on the autism spectrum: A multi-informant mixed-methods study . Autism & Developmental Language Impairments, 2, 1. SAGE Publications.Crossref OpenAlex OpenCitations
-
Nicola Shaughnessy (2013). Imagining Otherwise: Autism, Neuroaesthetics and Contemporary Performance . Interdisciplinary Science Reviews, 38(4), 321-334. SAGE Publications.Crossref OpenAlex OpenCitations
-
Monique Botha *Autistic author. Learn more… , Bridget Dibb , David M. Frost (2022). "Autism is me": an investigation of how autistic individuals make sense of autism and stigma . Disability & Society, 37(3), 427-453. Informa UK Limited.
-
Eleonora Farina , Alessandro Pepe , Veronica Ornaghi , Valeria Cavioni (2021). Trait Emotional Intelligence and School Burnout Discriminate Between High and Low Alexithymic Profiles: A Study With Female Adolescents . Frontiers in Psychology, 12, 645215-645215. Frontiers Media SA.Crossref OpenAlex OpenCitations
-
Dinah Murray *Autistic author. Learn more… , Mike Lesser *Autistic author. Learn more… , Wenn Lawson *Autistic author. Learn more… (2005). Attention, monotropism and the diagnostic criteria for autism . Autism, 9(2), 139-156. SAGE Publications.
-
British Educational Research Association (BERA). (2018). Ethical Guidelines for Educational Research. https://www.bera.ac.uk/researchers-resources/publications/ethicalguidelines-for-educational-research-2018Type: OtherCrossref
-
(2004). Multimethod Research . The SAGE Encyclopedia of Social Science Research Methods. Sage Publications, Inc..Crossref OpenAlex OpenCitations
-
Lauren Kenworthy , Benjamin Yerys , Laura G. Anthony , Gregory L. Wallace (2008). Understanding Executive Control in Autism Spectrum Disorders in the Lab and in the Real World . Neuropsychology Review, 18(4), 320-338. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Brugha, T., McManus, S., Meltzer, H., Smith, J., Scott, F., Purdon, S., Harris, J., & Bankart, J. (2009). Autism Spectrum Disorders in adults living in households throughout England (p. 13). The Health & Social Care Information Centre, Social Care Statistics. https://doc.ukdataservice.ac.uk/doc/6379/mrdoc/pdf/6379_apms_2007_autism_report.pdfType: OtherCrossref
-
Dean Keith Simonton (2001). Talent Development as a Multidimensional, Multiplicative, and Dynamic Process . Current Directions in Psychological Science, 10(2), 39-43. SAGE Publications.Crossref OpenAlex OpenCitations
-
Alena Clark (2008). ClarkA. MossP. KjørholtA. T. (2008). Beyond listening children’s perspectives on early childhood services. Policy Press. Beyond listening children’s perspectives on early childhood services.Type: OtherCrossref
-
Cáit Griffin , Michael Lombardo , Bonnie Auyeung (2016). Alexithymia in children with and without autism spectrum disorders . Autism Research, 9(7), 773-780. Wiley.Crossref OpenAlex OpenCitations
-
Catherine J. Crompton , Sonny Hallett *Autistic author. Learn more… , Danielle Ropar , Emma G. Flynn , Sue Fletcher-Watson (2020). ‘I never realised everybody felt as happy as I do when I am around autistic people’: A thematic analysis of autistic adults’ relationships with autistic and neurotypical friends and family . Autism, 24(6), 1438-1448. SAGE Publications.
-
Francesca Happé , Uta Frith (2009). The beautiful otherness of the autistic mind . Philosophical Transactions of the Royal Society B: Biological Sciences, 364(1522), 1345-1350. The Royal Society.Crossref OpenAlex OpenCitations
-
Catherine J. Crompton , Danielle Ropar , Claire VM Evans-Williams *Autistic author. Learn more… , Emma G. Flynn , Sue Fletcher-Watson (2020). Autistic peer-to-peer information transfer is highly effective . Autism, 24(7), 1704-1712. SAGE Publications.
-
Anat Kasirer , Nira Mashal (2014). Verbal creativity in autism: comprehension and generation of metaphoric language in high-functioning autism spectrum disorder and typical development . Frontiers in Human Neuroscience, 8, 615-615. Frontiers Media SA.Crossref OpenAlex OpenCitations
-
Lara Maister , Jon S. Simons , Kate Plaisted-Grant (2013). Executive functions are employed to process episodic and relational memories in children with autism spectrum disorders. Neuropsychology, 27(6), 615-627. American Psychological Association (APA).Crossref OpenAlex OpenCitations
-
Dwyer, Patrick *Autistic author. Learn more… , Sara M. Acevedo *Autistic author. Learn more… , Heather M. Brown *Autistic author. Learn more… , Jordan Grapel *Autistic author. Learn more… , Sandra Thom-Jones *Autistic author. Learn more… , Brett Ranon Nachman *Autistic author. Learn more… et al. (2021). An Expert Roundtable Discussion on Experiences of Autistic Autism Researchers . Autism in Adulthood, 3(3), 209-220. SAGE Publications.AutiHub · Autistic Autism Scholarship Project AutiHub · Documentation center Crossref OpenAlex OpenCitations
-
Sue Fletcher-Watson , Jonathan Adams *Autistic author. Learn more… , Kabie Brook *Autistic author. Learn more… , Tony Charman , Laura Crane , James Cusack *Autistic author. Learn more… et al. (2019). Making the future together: Shaping autism research through meaningful participation . Autism, 23(4), 943-953. SAGE Publications.AutiHub · Autistic Autism Scholarship Project AutiHub · Documentation center Crossref OpenAlex OpenCitations
-
Ginny Russell , Steven Kapp *Autistic author. Learn more… , Daisy Elliott , Chris Elphick , Ruth Gwernan‐Jones , Christabel Owens (2019). Mapping the Autistic Advantage from the Accounts of Adults Diagnosed with Autism: A Qualitative Study . Autism in Adulthood, 1(2), 124-133. SAGE Publications.
-
Damian E. M. Milton *Autistic author. Learn more… , Michael Bracher (2013). Autistics speak but are they heard? Med Sociol online, 7(2), 61.Type: Article OpenAlex: https://openalex.org/W2337764906OpenAlex
-
Sebastian B. Gaigg , Dermot Bowler (2018). A Relational Processing Framework of Memory in Autism Spectrum Disorder . In The Wiley Handbook of Memory, Autism Spectrum Disorder, and the Law (pp. 9-26). Wiley.Crossref OpenAlex OpenCitations
-
B A van der Kolk , D Pelcovitz , S Roth , F S Mandel , A McFarlane , J L Herman (1996). Dissociation, somatization, and affect dysregulation: the complexity of adaptation of trauma . American Journal of Psychiatry, 153(7), 83-93. American Psychiatric Association Publishing.Crossref OpenAlex OpenCitations
-
Aimee Grant *Autistic author. Learn more… , Helen Kara *Autistic author. Learn more… (2021). Considering the Autistic advantage in qualitative research: the strengths of Autistic researchers . Contemporary Social Science, 16(5), 589-603. Informa UK Limited.AutiHub · Autistic Autism Scholarship Project AutiHub · Documentation center Crossref OpenAlex OpenCitations
-
Louise Ola , Fiona Gullon-Scott (2020). Facial emotion recognition in autistic adult females correlates with alexithymia, not autism . Autism, 24(8), 2021-2034. SAGE Publications.Crossref OpenAlex OpenCitations
-
Damian E. M. Milton *Autistic author. Learn more… (2016). Disposable dispositions: reflections upon the work of Iris Marion Young in relation to the social oppression of autistic people . Disability & Society, 31(10), 1403-1407. Informa UK Limited.
-
Helen Kara *Autistic author. Learn more… (2020). Creative Research Methods . Bristol University Press.Crossref
-
David Jackson‐Perry (2017). Autism and Asperger syndrome in adults . Disability & Society, 32(8), 1280-1282. Informa UK Limited.OpenAlex
-
J.F. Wilson , V. Lodhia , D.P. Courtney , I.J. Kirk , J.P. Hamm (2017). Evidence of hyper-plasticity in adults with Autism Spectrum Disorder . Research in Autism Spectrum Disorders, 43-44, 40-52. Elsevier BV.Crossref OpenAlex OpenCitations
-
(n.d.). Lechêne, J. (2024, January 2). Decolonising autism. BPS; The British Psychological Society. https://www.bps.org.uk/psychologist/decolonising-autismType: OtherCrossref
-
Andrea MacLeod (2019). Interpretative Phenomenological Analysis (IPA) as a tool for participatory research within Critical Autism Studies: A systematic review . Research in Autism Spectrum Disorders, 64, 49-62. Elsevier BV.
-
Pernille Skovbo Rasmussen , Anne Katrine Pagsberg (2019). Customizing Methodological Approaches in Qualitative Research on Vulnerable Children with Autism Spectrum Disorders . Societies, 9(4), 75. MDPI AG.Crossref OpenAlex OpenCitations
-
Rachael Stacey *Autistic author. Learn more… , Eilidh Cage (2023). “Simultaneously Vague and Oddly Specific”: Understanding Autistic People's Experiences of Decision Making and Research Questionnaires . Autism in Adulthood, 5(3), 263-274. SAGE Publications.
-
Kerri P. Nowell , Courtney J. Bernardin , Cynthia Brown , Stephen Kanne (2021). Characterization of Special Interests in Autism Spectrum Disorder: A Brief Review and Pilot Study Using the Special Interests Survey . Journal of Autism and Developmental Disorders, 51(8), 2711-2724. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
D. E. M.Milton (2013). MiltonD. E. M. BracherM. (2013). Autistics speak but are they heard?BSA Medical Sociology Online. Autistics speak but are they heard?.Type: OtherCrossref
-
Moseley, R. (2022). Autism and the interpersonal theory of suicide. Scienceonthespectrum. https://www.scienceonthespectrum.net/its-2022Type: OtherCrossref
-
Donna Williams *Autistic author. Learn more… (1996). WilliamsD. (1996). Autism: An Inside-Out Approach: An Innovative Look at the ‘Mechanics’ of ‘Autism’ and its Developmental 'Cousins. Jessica Kingsley Publishers. Autism: An Inside-Out Approach: An Innovative Look at the ‘Mechanics’ of ‘Autism’ and its Developmental 'Cousins.Type: OtherCrossref