Our Challenges, Our Solutions: The Impact of Autism on Families

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Trew, S. (2025). Our Challenges, Our Solutions: The Impact of Autism on Families. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-025-07034-0

Publication date: 9 Sep 2025 Added to AutiHub: 16 Sep 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

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Authors

Publication authors
1
Publication authors identified as autistic
1 / 1 (100.0%)
  1. Sebastian Trew *

Abstract

Abstract This study investigated how autism impacts the relationships between family members and the family unit. It aimed to provide a deeper qualitative understanding by incorporating the perspectives of autistic adolescents and their family members, adding depth to existing quantitative findings. This qualitative study involved audio-recorded semi-structured in-depth interviews with 40 participants, including mothers, fathers, siblings, and autistic adolescents, recruited through autism and disability agencies in Canberra, Australia. Data collection and analysis followed a constructivist grounded theory approach. Reflexive journaling and iterative member checking ensured the accuracy and validity of the findings. The study found that autism significantly influenced family dynamics, leading to behaviors such as self-harm, anxiety, overstimulation, anger, and limited social and emotional awareness, which strained family relationships. Families reported increased stress and tension, particularly in the absence of regular support and respite. Despite these challenges, families employed various strategies to maintain close relationships and foster resilience, such as sharing memories, setting boundaries, and establishing routines. Positive outcomes included improved teamwork and strengthened bonds. Participants emphasized the importance of patience, understanding, and methodical problem-solving in maintaining a cohesive family dynamic. The study concludes that while autism poses significant challenges to family relationships, families can develop effective strategies to manage these challenges and foster resilience. The findings align with social identity theory, highlighting the role of family connectedness and social buffering in mitigating the negative impacts of autism on the family. Strong family bonds and a supportive environment are crucial for reducing stress and promoting positive identity formation. Continued support and targeted interventions are essential for enhancing family dynamics and improving the well-being of autistic individuals and their families.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 20 Sep 2026 01:01.

Cited references
108
With a DOI
93
Without a DOI, from raw bibliography text
14
9 / 108 (8.3%) cited references include at least one author identified as autistic.
References with data to complete
16 / 108 (14.8%)
References with detected author names
96 / 108 (88.9%)
Without detected author names
12
Without a structured title
15
Without a stable identifier
14
References with raw author names still to review
11
References with external metadata lookup issues
1
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
496
From DOI or external metadata
496
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
16
96 / 496 (19.4%) names are linked to an author already present in AutiHub. 400 / 496 (80.6%) names are not yet linked.
Names linked to a person identified as autistic
9 / 496 (1.8%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 9 / 96 (9.4%). Distinct people identified as autistic: 5 / 433 (1.2%).
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