The Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda

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Kuo, A. A., Hotez, E., Rosenau, K. A., Gragnani, C., Fernandes, P., Haley, M., on behalf of the AIR-P NATIONAL COORDINATING CENTER, Rudolph, D., Croen, L. A., Massolo, M. L., Graham Holmes, L., Shattuck, P., Shea, L., Wilson, R., Martinez-Agosto, J. A., on behalf of the AIR-P STEERING COMMITTEE, Brown, H. M., Dwyer, P., Gassner, D. L.,..., & BUREAU, o. b. o. t. H. R. A. S. A. M. A. C. H. (2022). The Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda. Pediatrics, 149(Supplement 4). https://doi.org/10.1542/peds.2020-049437d

Publication date: 1 Apr 2022 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English
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Authors

Publication authors
31
Publication authors identified as autistic
9 / 31 (29.0%)
  1. Alice A. Kuo
  2. Emily Hotez
  3. Kashia A Rosenau
  4. Candace Gragnani
  5. Priyanka Fernandes
  6. Madeline Haley
  7. on behalf of the AIR-P NATIONAL COORDINATING CENTER
  8. Dawn Rudolph
  9. Lisa A. Croen
  10. Maria L Massolo
  11. Laura Graham Holmes
  1. Paul Shattuck
  2. Lindsay Shea
  3. Rujuta Wilson
  4. Julian A. Martinez-Agosto
  5. on behalf of the AIR-P STEERING COMMITTEE
  6. Heather M. Brown *
  7. Patrick Dwyer *
  8. Dena L. Gassner *
  9. Morénike Giwa Onaiwu *
  10. Steven K. Kapp *
  11. Ari Ne'eman *
  1. Jacalyn G. Ryan *
  2. TC Waisman *
  3. Zachary J. Williams *
  4. on behalf of the AUTISTIC RESEARCHER REVIEW BOARD
  5. Jessica N. DiBari
  6. Dana M. Foney
  7. Lauren R. Ramos
  8. Michael D. Kogan
  9. on behalf of the HEALTH RESOURCES AND SERVICES ADMINISTRATION MATERNAL AND CHILD HEALTH BUREAU

Abstract

OBJECTIVES: In the United States, autistic individuals experience disproportionate physical and mental health challenges relative to non-autistic individuals, including higher rates of co-occurring and chronic conditions and lower physical, social, and psychological health-related quality of life. The Autism Intervention Research Network on Physical Health (AIR-P) is an interdisciplinary, multicenter research network for scientific collaboration and infrastructure that aims to increase the life expectancy and quality of life for autistic individuals, with a focus on underserved or vulnerable populations. The current paper describes the development of the AIR-P Research Agenda. METHODS: Development of the research agenda involved an iterative and collaborative process between the AIR-P Advisory Board, Steering Committee, and Autistic Researcher Review Board. The methodology consisted of 3 phases: (1) ideation and design, (2) literature review and synthesis; and (3) network engagement. RESULTS: Six core research priorities related to the health of autistic individuals were identified: (1) primary care services and quality, (2) community-based lifestyle interventions, (3) health systems and services, (4) gender, sexuality, and reproductive health, (5) neurology, and (6) genetics. Specific topics within each of these priorities were identified. Four cross-cutting research priorities were also identified: (1) neurodiversity-oriented care, (2) facilitating developmental transitions, (3) methodologically rigorous intervention studies, and (4) addressing health disparities. CONCLUSIONS: The AIR-P Research Agenda represents an important step forward for enacting large-scale health-promotion efforts for autistic individuals across the lifespan. This agenda will catalyze autism research in historically underrepresented topic areas while adopting a neurodiversity-oriented approach to health-promotion.

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Cited references
61
Total cited references integrated for this publication.
Cited references with an identified autistic author
4 / 61 (6.6%)
Cited author occurrences identified as autistic
9 / 304 (3.0%)
Among occurrences linked to AutiHub author records: 9 / 73 (12.3%). Distinct cited authors identified as autistic: 5 / 275 (1.8%).
Cited author occurrences linked to AutiHub author records
73 / 304 (24.0%)
Distinct linked cited authors: 48 / 275 (17.5%)
Linked cited-author occurrences not identified as autistic
64 / 73 (87.7%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 64 / 304 (21.1%). Distinct linked cited authors not identified as autistic: 43 / 48 (89.6%).
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