The Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda

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Kuo, A. A., Hotez, E., Rosenau, K. A., Gragnani, C., Fernandes, P., Haley, M., on behalf of the AIR-P NATIONAL COORDINATING CENTER, Rudolph, D., Croen, L. A., Massolo, M. L., Graham Holmes, L., Shattuck, P., Shea, L., Wilson, R., Martinez-Agosto, J. A., on behalf of the AIR-P STEERING COMMITTEE, Brown, H. M., Dwyer, P., Gassner, D. L.,..., & BUREAU, o. b. o. t. H. R. A. S. A. M. A. C. H. (2022). The Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda. Pediatrics, 149(Supplement 4). https://doi.org/10.1542/peds.2020-049437d

Journal or book title
PEDIATRICS
Publisher
American Academy of Pediatrics (AAP)
Volume
149
Issue
Supplement 4
Article number
e2020049437D
Publication date: 1 Apr 2022 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English
Publisher source (DOI) OpenAlex source

This publication is integrated into AutiHub through:

Authors

Publication authors
31
Publication authors identified as autistic
9 / 31 (29.0%)
  1. Alice A. Kuo
  2. Emily Hotez
  3. Kashia A. Rosenau
  4. Candace Gragnani
  5. Priyanka Fernandes
  6. Madeline Haley
  7. on behalf of the AIR-P NATIONAL COORDINATING CENTER
  8. Dawn Rudolph
  9. Lisa A. Croen
  10. Maria L Massolo
  11. Laura Graham Holmes
  1. Paul Shattuck
  2. Lindsay Shea
  3. Rujuta Wilson
  4. Julian A. Martinez-Agosto
  5. on behalf of the AIR-P STEERING COMMITTEE
  6. Heather M. Brown *
  7. Patrick Dwyer *
  8. Dena L. Gassner *
  9. Morénike Giwa Onaiwu *
  10. Steven K. Kapp *
  11. Ari Ne'eman *
  1. Jacalyn G. Ryan *
  2. TC Waisman *
  3. Zachary J. Williams *
  4. on behalf of the AUTISTIC RESEARCHER REVIEW BOARD
  5. Jessica N. DiBari
  6. Dana M. Foney
  7. Lauren R. Ramos
  8. Michael D. Kogan
  9. on behalf of the HEALTH RESOURCES AND SERVICES ADMINISTRATION MATERNAL AND CHILD HEALTH BUREAU

Abstract

OBJECTIVES: In the United States, autistic individuals experience disproportionate physical and mental health challenges relative to non-autistic individuals, including higher rates of co-occurring and chronic conditions and lower physical, social, and psychological health-related quality of life. The Autism Intervention Research Network on Physical Health (AIR-P) is an interdisciplinary, multicenter research network for scientific collaboration and infrastructure that aims to increase the life expectancy and quality of life for autistic individuals, with a focus on underserved or vulnerable populations. The current paper describes the development of the AIR-P Research Agenda. METHODS: Development of the research agenda involved an iterative and collaborative process between the AIR-P Advisory Board, Steering Committee, and Autistic Researcher Review Board. The methodology consisted of 3 phases: (1) ideation and design, (2) literature review and synthesis; and (3) network engagement. RESULTS: Six core research priorities related to the health of autistic individuals were identified: (1) primary care services and quality, (2) community-based lifestyle interventions, (3) health systems and services, (4) gender, sexuality, and reproductive health, (5) neurology, and (6) genetics. Specific topics within each of these priorities were identified. Four cross-cutting research priorities were also identified: (1) neurodiversity-oriented care, (2) facilitating developmental transitions, (3) methodologically rigorous intervention studies, and (4) addressing health disparities. CONCLUSIONS: The AIR-P Research Agenda represents an important step forward for enacting large-scale health-promotion efforts for autistic individuals across the lifespan. This agenda will catalyze autism research in historically underrepresented topic areas while adopting a neurodiversity-oriented approach to health-promotion.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 17:07.

Cited references
61
With a DOI
60
Without a DOI, from raw bibliography text
1
4 / 61 (6.6%) cited references include at least one author identified as autistic.
References with data to complete
1 / 61 (1.6%)
References with detected author names
60 / 61 (98.4%)
Without detected author names
1
Without a structured title
1
Without a stable identifier
1
References with raw author names still to review
1
References with external metadata lookup issues
1
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
304
From DOI or external metadata
304
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
1
86 / 304 (28.3%) names are linked to an author already present in AutiHub. 218 / 304 (71.7%) names are not yet linked.
Names linked to a person identified as autistic
13 / 304 (4.3%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 13 / 86 (15.1%). Distinct people identified as autistic: 7 / 273 (2.6%).
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