Over and Over and Over: A Continued Call for Autistic Voices
This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.
About the autistic author markerCollis, R. (2021). Over and Over and Over: A Continued Call for Autistic Voices. Canadian Journal of Autism Equity, 1(1), 18-22. https://doi.org/10.15173/cjae.v1i1.4984
This publication is integrated into AutiHub through:
Authors
Abstract
As an Autistic student in a master’s degree, I focused on the way expertise is understood. I was specifically interested in how policy decisions in education were made without Autistic involvement. I looked at the literature that was used to make these decisions and interviewed Autistic people as to their thoughts on who should be considered experts when it comes to autism. I found that policy was driven by experts who had little to no direct experience with autism or Autistics and who had no personal connections to the approaches they recommended. I argue that Autistic people must be involved in research design, execution, implementation, dissemination, and policy decisions.
Bibliography cited by this reference
Cited references are imported from external metadata sources when they are available. The list may be partial.
Cited bibliography overview
These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 12 Sep 2026 01:04.
- With a DOI
- 16
- Without a DOI, from raw bibliography text
- 0
- References with detected author names
- 16 / 16 (100.0%)
- Without detected author names
- 0
- Without a structured title
- 0
- Without a stable identifier
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- References with raw author names still to review
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- References with external metadata lookup issues
- 0
- From DOI or external metadata
- 54
- From validated raw bibliography text
- 0
- Raw names already validated
- 0
- Raw names still to review
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Collins H. (2014). Are we all scientific experts now? Choice Reviews Online, 52(03), 52-1379-52-1379. American Library Association.OpenAlex
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Steven Epstein (1995). The Construction of Lay Expertise: AIDS Activism and the Forging of Credibility in the Reform of Clinical Trials . Science, Technology, & Human Values, 20(4), 408-437. SAGE Publications.OpenAlex OpenCitations
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Victoria Shea (2004). A perspective on the research literature related to early intensive behavioral intervention (Lovaas) for young children with autism . Autism, 8(4), 349-367. SAGE Publications.OpenAlex
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Victoria Shea (2005). A Perspective on the Research Literature Related to Early Intensive Behavioral Intervention (Lovaas) for Young Children With Autism . Communication Disorders Quarterly, 26(2), 102-111. SAGE Publications.OpenAlex
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Damian Milton *Autistic author. Learn more… , Richard Mills , Elizabeth Pellicano (2014). Ethics and Autism: Where is the Autistic Voice? Commentary on Post et al. Journal of Autism and Developmental Disorders, 44(10), 2650-2651. Springer Science and Business Media LLC.
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Damian Milton *Autistic author. Learn more… (2014). Autistic expertise: A critical reflection on the production of knowledge in autism studies . Autism, 18(7), 794-802. SAGE Publications.
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H.M. Collins , Robert Evans (2002). The Third Wave of Science Studies . Social Studies of Science, 32(2), 235-296. SAGE Publications.OpenAlex
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Michel Callon (1984). Some Elements of a Sociology of Translation: Domestication of the Scallops and the Fishermen of St Brieuc Bay . The Sociological Review, 32(1_suppl), 196-233. SAGE Publications.OpenAlex
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Henny Kupferstein *Autistic author. Learn more… (2018). Evidence of increased PTSD symptoms in autistics exposed to applied behavior analysis . Advances in Autism, 4(1), 19-29. Emerald.
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Christina Nicolaidis , Dora M. Raymaker *Autistic author. Learn more… , Steven K. Kapp *Autistic author. Learn more… , Mel Baggs *Autistic author. Learn more… , Elesia Ashkenazy *Autistic author. Learn more… , Katherine McDonald et al. (2019). The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants . Autism, 23(8), 2007-2019. SAGE Publications.
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Aileen Herlinda Sandoval-Norton , Gary Shkedy , Dalia Shkedy (2019). How much compliance is too much compliance: Is long-term ABA therapy abuse? Cogent Psychology, 6(1), 1641258. Informa UK Limited.OpenAlex
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Micheal Sandbank , Kristen Bottema-Beutel , Shannon Crowley LaPoint , Margaret Cassidy , Kacie Dunham-Carr , Jacob I. Feldman et al. (2020). Project AIM: Autism intervention meta-analysis for studies of young children. Psychological Bulletin, 146(1), 1. American Psychological Association (APA).OpenAlex
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Daniel A. Wilkenfeld *Autistic author. Learn more… , Allison M. McCarthy (2020). Ethical Concerns with Applied Behavior Analysis for Autism Spectrum “Disorder” . Kennedy Institute of Ethics Journal, 30(1), 31-69. Project MUSE.
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Kristen Bottema-Beutel , Shannon Crowley LaPoint , Micheal Sandbank , Tiffany Woynaroski (2021). Research Review: Conflicts of Interest (COIs) in autism early intervention research – a meta‐analysis of COI influences on intervention effects . Journal of Child Psychology and Psychiatry, 62(1), 5-15. Wiley.OpenAlex
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Mark Rodgers , David Marshall , Mark Simmonds , Ann Le Couteur , Mousumi Biswas , Kath Wright et al. (2020). Interventions based on early intensive applied behaviour analysis for autistic children: a systematic review and cost-effectiveness analysis . Health Technology Assessment, 24(35), 1-306. National Institute for Health and Care Research.OpenAlex
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Michelle Dawson *Autistic author. Learn more… , Sue Fletcher-Watson (2021). Commentary: What conflicts of interest tell us about autism intervention research—a commentary on Bottema‐Beutel et al. (2020) . Journal of Child Psychology and Psychiatry, 62(1), 16-18. Wiley.