Pour une recherche participative dans le trouble du spectre de l’autisme

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Pieron, M., Lacroix, A., Chokron, S., & Demily, C. (2025). Pour une recherche participative dans le trouble du spectre de l’autisme. L'Encéphale, 51(5), 563-565. https://doi.org/10.1016/j.encep.2024.11.020

Publication date: 15 Feb 2025 Added to AutiHub: 9 Aug 2026 Type: Article Article language: English
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Authors

Publication authors
4
Publication authors identified as autistic
1 / 4 (25.0%)
  1. Marie Pieron
  2. Adeline Lacroix *
  3. Sylvie Chokron
  4. Caroline Demily

Abstract

Participatory research applied to autism spectrum disorder is an emerging research methodology. In this type of project, researchers and clinicians collaborate with autistic people, their families and professionals on research projects that are jointly determined, making the most of everyone's strengths, skills and knowledge. The resulting work addresses issues identified as priorities by all partners. The aim is to bridge the gap between research, clinical practice and the experience of autistic people. This opinion piece reviews this methodology, its scientific and societal value, and the ethical issues and limitations it raises. It also sheds light on the particular attention that needs to be paid to methodological aspects and the resources that need to be put in place to ensure that everyone can play their part to the full, scientists and autistic people alike.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Bibliography inclusion overview

These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:31.

Cited references
21
Total cited references integrated for this publication.
Cited references with an identified autistic author
7 / 21 (33.3%)
Cited author occurrences identified as autistic
16 / 118 (13.6%)
Among occurrences linked to AutiHub author records: 16 / 56 (28.6%). Distinct cited authors identified as autistic: 14 / 110 (12.7%).
Cited author occurrences linked to AutiHub author records
56 / 118 (47.5%)
Distinct linked cited authors: 49 / 110 (44.5%)
Linked cited-author occurrences not identified as autistic
40 / 56 (71.4%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 40 / 118 (33.9%). Distinct linked cited authors not identified as autistic: 35 / 49 (71.4%).
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