Beyond “Misleading”: Rethinking the Evaluation of Autism and ADHD Social Media Content

This publication is included in the Autistic Autism Scholarship Project. two authors of this publication are identified as autistic in the project.

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van Asselt, A., Venema-Avezaat, L., Reekers, D., Ras, Y., & Roke, Y. (2026). Beyond “Misleading”: Rethinking the Evaluation of Autism and ADHD Social Media Content. Autism in Adulthood. https://doi.org/10.1177/25739581261473988

Journal or book title
Autism in Adulthood
Publisher
SAGE Publications
Article number
25739581261473988
Publication date: 27 Jul 2026 Added to AutiHub: 6 Aug 2026 Type: Article Article language: English
Publisher source (DOI) OpenAlex source

This publication is integrated into AutiHub through:

Authors

Publication authors
5
Publication authors identified as autistic
2 / 5 (40.0%)
  1. Alvin van Asselt *
  2. Larissa Venema-Avezaat
  3. Desiree Reekers *
  4. Yvonne Ras
  5. Yvette Roke

Abstract

No structured abstract stored for this reference.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 3 Oct 2026 01:01.

Cited references
18
With a DOI
14
Without a DOI, from raw bibliography text
4
4 / 18 (22.2%) cited references include at least one author identified as autistic.
References with data to complete
2 / 18 (11.1%)
References with detected author names
16 / 18 (88.9%)
Without detected author names
2
Without a structured title
2
Without a stable identifier
4
References with raw author names still to review
2
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
49
From DOI or external metadata
49
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
2
17 / 49 (34.7%) names are linked to an author already present in AutiHub. 32 / 49 (65.3%) names are not yet linked.
Names linked to a person identified as autistic
7 / 49 (14.3%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 7 / 17 (41.2%). Distinct people identified as autistic: 7 / 49 (14.3%).
  2. Ingjerd Skafle , Elia Gabarron , Anders Nordahl-Hansen (2024). Social media shaping autism perception and identity . Autism, 28(10), 2489-2502. SAGE Publications.
    Type: Article DOI: 10.1177/13623613241230454 OpenAlex: https://openalex.org/W4392108253
    Crossref OpenAlex
  3. Marie Elwin , Lena Ek , Agneta Schröder , Lars Kjellin (2012). Autobiographical Accounts of Sensing in Asperger Syndrome and High-Functioning Autism . Archives of Psychiatric Nursing, 26(5), 420-429. Elsevier BV.
    Type: Article DOI: 10.1016/j.apnu.2011.10.003 OpenAlex: https://openalex.org/W2082557570
    Crossref OpenAlex
  4. Emily Brennan , Linnea A. Lampinen , Haden Paek , Xinyue Wang , Hailey Romano , Vanessa Bal (2025). Deconstructing Information About Autism Diagnosis in Adults on TikTok: A Cross-Sectional, Descriptive Content Analysis . Journal of Autism and Developmental Disorders. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-025-07123-0 OpenAlex: https://openalex.org/W4416022473
    Crossref OpenAlex
  6. Diego Aragon-Guevara , Grace Castle , Elisabeth Sheridan , Giacomo Vivanti (2025). The Reach and Accuracy of Information on Autism on TikTok . Journal of Autism and Developmental Disorders, 55(6), 1953-1958. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-023-06084-6 OpenAlex: https://openalex.org/W4385612059
    Crossref OpenAlex
  7. Anthony Yeung , Enoch Ng , Elia Abi-Jaoude (2022). TikTok and Attention-Deficit/Hyperactivity Disorder: A Cross-Sectional Study of Social Media Content Quality . The Canadian Journal of Psychiatry, 67(12), 899-906. SAGE Publications.
    Type: Article DOI: 10.1177/07067437221082854 OpenAlex: https://openalex.org/W4213417183
    Crossref OpenAlex
  8. Wietske de Vries , Laura Batstra , Arjen van Assen (2025). Exploring concept creep: Youth’s portrayal of ADHD on TikTok . SSM - Mental Health, 8, 100489. Elsevier BV.
    Type: Article DOI: 10.1016/j.ssmmh.2025.100489 OpenAlex: https://openalex.org/W4411988293
    Crossref OpenAlex
  9. Miranda Fricker (2007). Epistemic Injustice . Oxford University PressOxford.
    Type: Book DOI: 10.1093/acprof:oso/9780198237907.001.0001 OpenAlex: https://openalex.org/W4252633962
    Crossref OpenAlex
  10. Vasileia Karasavva , Caroline Miller , Nicole Groves , Andrés Montiel , Will Canu , Amori Mikami (2025). A double-edged hashtag: Evaluation of #ADHD-related TikTok content and its associations with perceptions of ADHD . PLOS ONE, 20(3), e0319335. Public Library of Science (PLoS).
    Type: Article DOI: 10.1371/journal.pone.0319335 OpenAlex: https://openalex.org/W4408614688
    Crossref OpenAlex
  12. Harding S. (1991). Whose science? Whose knowledge?: Thinking from women's lives . Whose science? Whose knowledge?: Thinking from women's lives.
    Type: Other
    Crossref
  13. Martha A Piper , Rebecca A. Charlton (2026). Common and unique menopause experiences among autistic and non-autistic people: A qualitative study . Journal of Health Psychology, 31(2), 801-816. SAGE Publications.
    Type: Article DOI: 10.1177/13591053251316500 OpenAlex: https://openalex.org/W4407599377
    Crossref OpenAlex
  14. B. A. Oroian , P. Nechita , A. Szalontay (2025). ADHD and Decision Paralysis: Overwhelm in a World of Choices . European Psychiatry, 68(S1), S161-S161. Royal College of Psychiatrists.
    Type: Article DOI: 10.1192/j.eurpsy.2025.406 OpenAlex: https://openalex.org/W4414180354
    Crossref OpenAlex
  15. (n.d.). 12. Ginapp CM. Young Adults with ADHD and Their Involvement in Online Communities: A Qualitative Study. Doctoral dissertation Yale University; 2023. Yale Medicine Thesis Digital Library. https://elischolar.library.yale.edu/ymtdl/4179/
    Type: Other
    Crossref
  17. (n.d.). 17. University of East Anglia. TikTok’s mental health ‘minefield’. 2026. https://www.uea.ac.uk/about/news/article/tiktoks-mental-health-minefield
    Type: Other
    Crossref
  18. Loepky J (2025). ADHD misinformation on TikTok skewing young adults’ perceptions about the condition . Healthline.
    Type: Other
    Crossref