Decolonizing autism research: Integrating Indigenous ways of knowing, being, and doing

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Bruno, G., Lindblom, A., Tupou, J., Kewene, F., Waisman, T., & Magiati, I. (2025). Decolonizing autism research: Integrating Indigenous ways of knowing, being, and doing. Autism, 29(11), 2637-2643. https://doi.org/10.1177/13623613251382398

Publication date: 7 Oct 2025 Added to AutiHub: 6 Jul 2026 Type: Article Article language: English
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Authors

Publication authors
6
Publication authors identified as autistic
1 / 6 (16.7%)
  1. Grant Bruno
  2. Anne Lindblom
  3. Jessica Tupou
  1. Fran Kewene
  2. TC Waisman *
  3. Iliana Magiati

Abstract

No structured abstract stored for this reference.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 11:55.

Cited references
58
With a DOI
40
Without a DOI, from raw bibliography text
18
5 / 58 (8.6%) cited references include at least one author identified as autistic.
References with data to complete
2 / 58 (3.4%)
References with detected author names
57 / 58 (98.3%)
Without detected author names
1
Without a structured title
2
Without a stable identifier
17
References with raw author names still to review
1
References with external metadata lookup issues
1
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
128
From DOI or external metadata
128
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
1
29 / 128 (22.7%) names are linked to an author already present in AutiHub. 99 / 128 (77.3%) names are not yet linked.
Names linked to a person identified as autistic
12 / 128 (9.4%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 12 / 29 (41.4%). Distinct people identified as autistic: 12 / 122 (9.8%).
  1. L. Claes , L. Kinzl , R. Neugebauer (1981). Experimentelle Untersuchungen zum Einfluß des Plattenmaterials auf die Entlastung und Atrophie des Knochens unter Osteosyntheseplatten - Experimental Studies on the Influence of Plate Material on Stress-Relief and Atrophy of the Bone beneath Osteosynthesis Plates . Walter de Gruyter GmbH.
    Type: Book DOI: 10.1515/bmte.1981.26.4.66 OpenAlex: https://openalex.org/W7236838
    Crossref OpenAlex
  2. Balto A. M. (2012). Multicultural studies from a Sámi perspective: Bridging traditions and challenges in an indigenous setting . Issues in Educational Research, 22(1), 1.
    Type: Other
    Crossref
  4. Leonie Pihama , Fiona Cram , Sheila Walker (2021). Creating Methodological Space: A Literature Review of Kaupapa Maori Research . Open Collections, 26(1), 30-43. Canadian Journal of Native Education.
    Type: Article DOI: 10.14288/cjne.v26i1.195910 OpenAlex: https://openalex.org/W74304713
    OpenAlex
  5. Boine E.M. (2007). Cultural aspects and treatment . Journal of Mental Health Care, 4(1), 108.
    Type: Other
    Crossref
  6. Sandy Marie Anglás Grande , Center for Environmental Philosophy, The University of North Texas (1999). Beyond the Ecologically Noble Savage . Environmental Ethics, 21(3), 307-320. Philosophy Documentation Center.
    Type: Article DOI: 10.5840/enviroethics199921320 OpenAlex: https://openalex.org/W606803931
    Crossref OpenAlex
  7. Bruno G. (2024). Bruno G. (2024). Decolonizing autism: An exploration into the experiences of first nations people in Canada. Decolonizing autism: An exploration into the experiences of first nations people in Canada.
    Type: Other
    Crossref
  8. Robert E. Rinehart , Karen Barbour , Clive C. Pope (2014). Ethnographic Worldviews . Springer Netherlands.
    Type: Book DOI: 10.1007/978-94-007-6916-8 OpenAlex: https://openalex.org/W1244970005
    OpenAlex
  10. Margaret Kovach (2020). Conversation Method in Indigenous Research . First Peoples Child & Family Review, 5(1), 40-48. Consortium Erudit.
    Type: Article DOI: 10.7202/1069060ar OpenAlex: https://openalex.org/W1557346151
    Crossref OpenAlex
  11. Radilaite Cammock , Malcolm Andrews (2023). Revisioning the Fijian Research Paradigm . Waka Kuaka | The Journal of the Polynesian Society, 132(1), 129-146. The Polynesian Society.
    Type: Article DOI: 10.15286/jps.132.1-2.129-146 OpenAlex: https://openalex.org/W4396533125
    Crossref OpenAlex
  12. Unaisi Nabobo-Baba (2008). Decolonising Framings in Pacific Research: Indigenous Fijian Vanua Research Framework as an Organic Response . AlterNative: An International Journal of Indigenous Peoples, 4(2), 140-154. SAGE Publications.
    Type: Article DOI: 10.1177/117718010800400210 OpenAlex: https://openalex.org/W1579625741
    Crossref OpenAlex
  14. Rhonda Koster , Kirstine Baccar , R. Harvey Lemelin (2012). Moving from research ON, to research WITH and FOR Indigenous communities: A critical reflection on community‐based participatory research . Canadian Geographies / Géographies canadiennes, 56(2), 195-210. Wiley.
    Type: Article DOI: 10.1111/j.1541-0064.2012.00428.x OpenAlex: https://openalex.org/W1870793702
    Crossref OpenAlex
  15. Chilisa B. (2019). Indigenous research methodologies . Indigenous research methodologies.
    Type: Other
    Crossref
  16. Travis Thompson (2013). Autism Research and Services for Young Children: History, Progress and Challenges . Journal of Applied Research in Intellectual Disabilities, 26(2), 81-107. Wiley.
    Type: Article DOI: 10.1111/jar.12021 OpenAlex: https://openalex.org/W2048253677
    Crossref OpenAlex
  18. Ranjan Datta , Nyojy U. Khyang , Hla Kray Prue Khyang , Hla Aung Prue Kheyang , Mathui Ching Khyang , Jebunnessa Chapola (2015). Participatory action research and researcher’s responsibilities: an experience with an Indigenous community . International Journal of Social Research Methodology, 18(6), 581-599. Informa UK Limited.
    Type: Article DOI: 10.1080/13645579.2014.927492 OpenAlex: https://openalex.org/W2061497656
    Crossref OpenAlex
  19. Richard Melling (2014). Worlds of autism: across the spectrum of neurological difference . Educational Psychology in Practice, 30(2), 208-209. Informa UK Limited.
    Type: Article DOI: 10.1080/02667363.2014.900914 OpenAlex: https://openalex.org/W2090217617
    OpenAlex
  20. Claire Laurier Decoteau , Meghan Daniel (2020). Scientific Hegemony and the Field of Autism . American Sociological Review, 85(3), 451-476. SAGE Publications.
    Type: Article DOI: 10.1177/0003122420922531 OpenAlex: https://openalex.org/W3027051074
    Crossref OpenAlex
  21. Michael Hart (2010). Indigenous Worldviews, Knowledge, and Research: The Development of an Indigenous Research Paradigm . Journal of Indigenous Social Development, 1(1).
    Type: Article OpenAlex: https://openalex.org/W2117947229
    Crossref OpenAlex
  22. Janette Dinishak (2016). The Deficit View and Its Critics . Disability Studies Quarterly, 36(4). The Ohio State University Libraries.
    Type: Article DOI: 10.18061/dsq.v36i4.5236 OpenAlex: https://openalex.org/W2559516930
    Crossref OpenAlex
  23. Shayne Walker , Anaru Eketone , Anita Gibbs (2006). An exploration of kaupapa Maori research, its principles, processes and applications . International Journal of Social Research Methodology, 9(4), 331-344. Informa UK Limited.
    Type: Article DOI: 10.1080/13645570600916049 OpenAlex: https://openalex.org/W2138390371
    Crossref OpenAlex
  24. Alexandra S Drawson , Elaine Toombs , Christopher J. Mushquash (2017). Indigenous Research Methods: A Systematic Review . International Indigenous Policy Journal, 8(2). University of Western Ontario, Western Libraries.
    Type: Article DOI: 10.18584/iipj.2017.8.2.5 OpenAlex: https://openalex.org/W2609831456
    Crossref OpenAlex
  25. Epeli Hau'ofa (2017). Our Sea of Islands . In Peoples of the Pacific (pp. 429-442). Routledge.
    Type: Book chapter DOI: 10.4324/9781315247175-26 OpenAlex: https://openalex.org/W2237422492
    Crossref OpenAlex
  26. Helen Tager‐Flusberg , Daniela Plesa Skwerer , Robert M Joseph , Brianna Brukilacchio , Jessica Decker , Brady Eggleston et al. (2017). Conducting research with minimally verbal participants with autism spectrum disorder . Autism, 21(7), 852-861. SAGE Publications.
    Type: Article DOI: 10.1177/1362361316654605 OpenAlex: https://openalex.org/W2474377819
    Crossref OpenAlex
  27. Roy Richard Grinker (2020). Autism, “Stigma,” Disability . Current Anthropology, 61(S21), S55-S67. University of Chicago Press.
    Type: Article DOI: 10.1086/705748 OpenAlex: https://openalex.org/W2981477278
    Crossref OpenAlex
  28. Tristram Ingham , Bernadette Jones , Paula Toko King , Kirsten Smiler , Helena Tuteao , Gabrielle Baker et al. (2024). Decolonizing Disability: Indigenous Māori Perspectives of Disability Research in the Modern Era . In Handbook of Disability (pp. 379-400). Springer Nature Singapore.
    Type: Book chapter DOI: 10.1007/978-981-19-6056-7_68 OpenAlex: https://openalex.org/W4399454521
    Crossref OpenAlex
  29. Isimeli Waibuta Tagicakiverata , Pam Nilan (2018). Veivosaki - yaga: a culturally appropriate Indigenous research method in Fiji . International Journal of Qualitative Studies in Education, 31(6), 545-556. Informa UK Limited.
    Type: Article DOI: 10.1080/09518398.2017.1422293 OpenAlex: https://openalex.org/W2784230107
    Crossref OpenAlex
  30. Bernadette Jones , Paula Toko King , Gabrielle Baker , Linda Waimarie Nikora , Huhana Hickey , Meredith Perry et al. (2024). Karanga rua, karanga maha: Māori with lived experience of disability self‐determining their own identities . Kōtuitui: New Zealand Journal of Social Sciences Online, 19(1), 45-64. Wiley.
    Type: Article DOI: 10.1080/1177083x.2023.2224422 OpenAlex: https://openalex.org/W4381805175
    Crossref OpenAlex
  31. Cindy Hanson (2012). Indigenous Research Methodologies . International Journal of Critical Indigenous Studies, 5(1), 93-95. Queensland University of Technology.
    Type: Article DOI: 10.5204/ijcis.v5i1.97 OpenAlex: https://openalex.org/W2801341947
    OpenAlex
  33. Bruno Marques , Greg Grabasch , Jacqueline McIntosh (2021). Fostering Landscape Identity Through Participatory Design With Indigenous Cultures of Australia and Aotearoa/New Zealand . Space and Culture, 24(1), 37-52. SAGE Publications.
    Type: Article DOI: 10.1177/1206331218783939 OpenAlex: https://openalex.org/W2811392608
    Crossref OpenAlex
  34. Merata Kawharu , Paul Tapsell , Paratene Tane (2024). Applying whakapapa research methodology in Māori kin communities in Aotearoa New Zealand . Kōtuitui: New Zealand Journal of Social Sciences Online, 19(1), 65-85. Wiley.
    Type: Article DOI: 10.1080/1177083x.2023.2227232 OpenAlex: https://openalex.org/W4384558300
    Crossref OpenAlex
  35. Saoirse Mac Carthaigh (2020). Beyond biomedicine: challenging conventional conceptualisations of autism spectrum conditions . Disability & Society, 35(1), 52-66. Informa UK Limited.
    Type: Article DOI: 10.1080/09687599.2019.1605884 OpenAlex: https://openalex.org/W2944034036
    Crossref OpenAlex
  36. Kewene F. W. (2017). Verbatim and Maori theatre techniques: Documenting people’s experiences of Hauora.
    Type: Other
    Crossref
  37. Thomas Stern (2019). Participatory action research and the challenges of knowledge democracy . Educational Action Research, 27(3), 435-451. Informa UK Limited.
    Type: Article DOI: 10.1080/09650792.2019.1618722 OpenAlex: https://openalex.org/W2945586921
    Crossref OpenAlex
  38. Junghee Lee (2009). Decolonising Māori narratives: Pūrākau as a method . MAI Review, 2(3), 1.
    Type: Other
    Crossref
  39. Nicole E. Rosen , Catherine Lord , Fred R. Volkmar (2021). The Diagnosis of Autism: From Kanner to DSM-III to DSM-5 and Beyond . Journal of Autism and Developmental Disorders, 51(12), 4253-4270. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-021-04904-1 OpenAlex: https://openalex.org/W3130188805
    Crossref OpenAlex
  40. Anne Lindbolm , Ylva Jannok Nutti (2022). Conceptualising Global Indigenous and Indigenist models of Inclusive and Equitable Education . World Studies in Education, 23(1), 135-154. James Nicholas Publishers.
    Type: Article DOI: 10.7459/wse/23.1.09 OpenAlex: https://openalex.org/W4296899063
    Crossref OpenAlex
  41. Stephen Ashworth (2021). Decolonizing research: Indigenous storywork as methodology . International Journal of Lifelong Education, 40(4), 430-433. Informa UK Limited.
    Type: Article DOI: 10.1080/02601370.2021.1959749 OpenAlex: https://openalex.org/W3191811299
    OpenAlex
  42. Jens-Ivar Nergård (2021). The Sámi Narrative Tradition . Routledge.
    Type: Book DOI: 10.4324/9781003201601 OpenAlex: https://openalex.org/W3204506947
    Crossref OpenAlex
  43. Marshall M. (2018). Determinants of Indigenous peoples’ health: Beyond the social . Determinants of Indigenous peoples’ health: Beyond the social, 44.
    Type: Other
    Crossref
  44. Litea Meo-Sewabu (2014). Research Ethics: An Indigenous Fijian Perspective . In Rethinking Anti-Discriminatory and Anti-Oppressive Theories for Social Work Practice (pp. 108-122). Macmillan Education UK.
    Type: Book chapter DOI: 10.1007/978-1-137-02398-8_8 OpenAlex: https://openalex.org/W2585626236
    Crossref
  45. Sereana Naepi (2016). Pacific Research Methodologies . Oxford Research Encyclopedia of Education. Oxford University PressNew York, NY.
    Type: Other DOI: 10.1093/acrefore/9780190264093.013.566 OpenAlex: https://openalex.org/W4229776119
    Crossref OpenAlex
  46. Mirfin-Veitch B. (2022). Tell me about you: A life story approach to understanding disabled people’s experiences in care (1950-1999) . Tell me about you: A life story approach to understanding disabled people’s experiences in care (1950-1999).
    Type: Other
    Crossref
  47. Linda Tuhiwai Smith (2021). Decolonizing Methodologies . Zed Books.
    Type: Book DOI: 10.5040/9781350225282 OpenAlex: https://openalex.org/W4251392789
    Crossref OpenAlex
  48. Eve Tuck , K. Wayne Yang (2014). R-Words: Refusing Research . In Humanizing Research: Decolonizing Qualitative Inquiry with Youth and Communities (pp. 223-248). SAGE Publications, Inc..
    Type: Book chapter DOI: 10.4135/9781544329611.n12 OpenAlex: https://openalex.org/W4254374956
    Crossref OpenAlex
  49. Napier K. (2021). Wahkotowin: Reconnecting to the spirit of nêhiyawêwin (Cree Language) . Engaged Scholar Journal, 7(1), 1.
    Type: Other
    Crossref
  50. O’Reilly-Scanlon K. (2004). Pathways to understanding””: Wahkohtowin” as a research methodology . McGill Journal of Education/revue Des Sciences De L’éducation De Mcgill, 39(1).
    Type: Other
    Crossref
  51. Amy Shawanda , Joshua Manitowabi (2023). Anishinaabe Dream Methodology . Turtle Island Journal of Indigenous Health, 1(3). University of Toronto Libraries - UOTL.
    Type: Article DOI: 10.33137/tijih.v1i3.38566 OpenAlex: https://openalex.org/W4385691613
    Crossref OpenAlex
  52. Pare M. (2025). Reclaiming imposed identity: Resistance in the tropes of the” noble savage” and the” Authentic Indian” . The Material Merge, 3(1).
    Type: Other
    Crossref
  53. Pihama L. (2002). Creating methodological space: A literature review of Kaupapa Maori research . Canadian Journal of Native Education, 26(1), 30.
    Type: Other
    Crossref
  54. Raymaker D (2013). Worlds of Autism: Across the Spectrum of Neurological Difference . Worlds of Autism: Across the Spectrum of Neurological Difference, 169.
    Type: Other
    Crossref
  55. Smith L. T. (2013). Ethnographic worldviews: Transformations and social justice . Ethnographic worldviews: Transformations and social justice, 15.
    Type: Other
    Crossref
  56. Smith L. T. (2019). Decolonizing research: Indigenous storywork as methodology . Decolonizing research: Indigenous storywork as methodology.
    Type: Other
    Crossref
  57. Vaai U. L. (2017). The relational self: Decolonising personhood in the Pacific (No Title) . The relational self: Decolonising personhood in the Pacific (No Title).
    Type: Other
    Crossref
  58. Wildcat M. (2018). Wahkohtowin in action . Const. F, 27, 13.
    Type: Other
    Crossref