Stigma Management Strategies of Autistic Social Media Users

Authors

Abstract

Background: Research on stigma management strategies in autism relies on questionnaires or experiments, leading to a gap in understanding of how to identify the strategies in naturalistic interactions. The identification of individual (adapting minority group characteristics) and collective (positively redeveloping the in-group) stigma management strategies in online communication is important for understanding how to improve the quality of social media experiences for autistic users. Methods: Using linguistic analysis and engaging with ethnographic perspectives on relationship management, this article develops a novel approach to the identification of individual and collective stigma management strategies of autistic social media users. We combine online observation and interviews with 34 autistic social media users with a corpus-assisted analysis of their posts, divided into two groups according to regular or limited mentions of autism. Results: We show that posts in the first group focus on information provision and exchange and include markers of shared understanding and community building as part of a collective strategy. Interviews with the authors reveal a strong sense of autistic identity and highlight the importance of staying true to one's specific communicative preferences. Posts in the second group are characterized by tentative language (e.g., "seem" and "not sure") as a way of avoiding social threats by users who report uncertainty and anxiety about misinterpretation of their messages. Conclusions: We show that autistic social media users have specific preferences in how they communicate and express connection online. However, due to negative experiences of social interactions some do not follow these preferences and instead select linguistic and visual resources that can reduce perceived risks of misunderstanding. We question the claims that the internet is inherently enabling for autistic users and call for further research and policy effort to ensure autistic sociality rights in all digital environments.

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