Favoris habituels : une sociologie sensorielle de l’autisme
Titre original en anglais : Habitual Favourites: A Sensory Sociology of Autism
Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.
À propos de la mention auteur·ice autisteRourke, R. (2017). Habitual Favourites: A Sensory Sociology of Autism [Dissertation]. Goldsmiths, University of London. https://doi.org/10.25602/gold.00020955
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Auteurs
Résumé
Cette thèse est issue d’un projet d’observation participante ethnographique de 10 mois mené au sein de clubs de jeunesse et sociaux gérés par une organisation caritative, réalisé entre septembre 2014 et juillet 2015. Elle examine les expériences sensorielles de personnes autistes en relation avec leurs activités favorites, routinières ou « favoris habituels », parallèlement à leur participation à des activités de club telles que les jeux de société, les jeux sur console, les discussions informelles et les sorties du club dans des espaces publics. La recherche comprenait 6 groupes de discussion réunissant 6 participants du club de jeunesse, tous blancs, dont 4 hommes et 2 femmes âgés de 16 à 25 ans, ainsi que 4 groupes de discussion réunissant 6 participants du club social, tous hommes et blancs, âgés de 25 à 65 ans et plus. L’étude adopte une approche relevant de la sociologie des sens afin d’explorer les manières habituelles dont les personnes autistes interagissent avec leurs « favoris ». La thèse soutient que les concepts de quasi-objet et de parasite révèlent les interdépendances complexes entre stabilité et perturbation dans l’expérience sensorielle. Cette complexité se reflète également dans les propres expériences de l’auteur, et des réflexions autoethnographiques examinent la manière dont les expériences habituelles et sensorielles influencent l’identité académique autiste, l’écriture et les pratiques de recherche. L’expérience sensorielle est utilement comprise à travers les influences de milieux situés d’interaction sensorielle et habituelle, qui sont mutuellement constitués par des relations distribuées entre humains et non-humains. Les expériences autistes constituent une manière d’explorer nos notions allant de soi de l’interaction sociale et d’élaborer des descriptions qui élargissent ce que nous considérons comme la condition humaine. L’attention sociologique portée à l’autisme dans le cadre des favoris habituels fournit des concepts empiriquement riches et nuancés permettant de développer des perspectives sur l’expérience autiste.
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