Perspectives parentales concernant les enfants atteints de mutisme sélectif et d'autisme concomitant

Titre original en anglais : Parent perspectives of children with selective mutism and co-occurring autism

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

À propos de la mention auteur·ice autiste

Keville, S., Zormati, P., Shahid, A., Osborne, C., & Ludlow, A. K. (2023). Parent perspectives of children with selective mutism and co-occurring autism. International Journal of Developmental Disabilities, 70(7), 1251-1261. https://doi.org/10.1080/20473869.2023.2173835

Date de publication: 03/02/2023 Ajout dans AutiHub: 25/08/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
1 / 5 (20,0 %)

Résumé

Le mutisme sélectif (MS) et l'autisme coexistent fréquemment, exacerbant les déficits de communication sociale et l'anxiété associée. Cependant, les professionnels n'ont pas été disposés à diagnostiquer conjointement le MS et l'autisme, ce qui rend cruciale la nécessité de comprendre les expériences parentales liées à la prise en charge d'un enfant atteint de MS et d'autisme. La présente étude a utilisé l'Analyse Phénoménologique Interprétative (IPA) pour explorer l'expérience des parents prenant soin d'enfants atteints de MS et d'autisme. Des entretiens semi-structurés ont été menés auprès de onze mères et d'un père d'enfants âgés de 5 à 18 ans. Tous les enfants avaient reçu un diagnostic de MS et avaient entrepris, ou étaient alors en cours d'accomplissement, d'un processus diagnostique de l'autisme. L'analyse des transcriptions a abouti aux thèmes suivants : Complexités liées aux problèmes concomitants ; L'impact accablant du MS ; Le parcours diagnostique ; Trouver des solutions et défendre les intérêts. Les jugements et la minimisation des symptômes par les systèmes éducatif et de santé ont aggravé les retards de diagnostic, empêchant une intervention appropriée. Les complexités liées à la prise en charge d'un enfant atteint de MS et d'autisme, parallèlement à des incompréhensions plus larges, ont exacerbé le stress parental, avec des répercussions sur la famille. La défense des intérêts par les parents et des environnements sécurisants ont offert aux enfants des possibilités de mieux gérer le mutisme dépendant du contexte. Des améliorations de l'identification et une compréhension empreinte de compassion de la part des systèmes plus larges, en impliquant les parents comme parties prenantes essentielles, sont indispensables pour améliorer cette situation.

Selective mutism (SM) and autism frequently co-occur together, exacerbating social communication deficits and associated anxiety. However, professionals have lacked a readiness to diagnose SM and autism together, making the need to understand parental experiences of caring for a child with SM and autism crucial. The current study utilised Interpretative Phenomenological Analysis (IPA) to explore parents' experience of caring for children with SM and autism. Semi-structured interviews were conducted with eleven mothers and one father of children aged between 5 and 18 years. All children were diagnosed with SM and had undertaken, or were currently undertaking, an autism diagnostic process. Analysis of the transcripts resulted in the following themes: Complexities from co-occurring issues; The overwhelming impact of SM; The diagnostic journey; Finding solutions and advocacy. Judgements and minimisation of symptoms from educational and healthcare systems exacerbated delays in diagnosis preventing appropriate intervention. The complexities of caring for a child with SM and autism, alongside wider misunderstandings, exacerbated parental stress, impacting the family. Parental advocacy and safe environments provided opportunities for children to better manage contextually based mutism. Improvements in identification and compassionate understanding from wider systems by involving parents as key stakeholders are essential to improve this situation.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 12/09/2026 01:04.

Références citées
67
Avec un DOI
58
Sans DOI, à partir du texte brut de la bibliographie
9
2 / 67 (3,0 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
5 / 67 (7,5 %)
Références avec noms d’auteurices détectés
62 / 67 (92,5 %)
Sans nom d’auteurice détecté
5
Sans titre structuré
4
Sans identifiant stable
9
Références avec noms bruts d’auteurices restant à vérifier
3
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
202
À partir du DOI ou de métadonnées externes
202
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
3
26 / 202 (12,9 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 176 / 202 (87,1 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
2 / 202 (1,0 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 2 / 26 (7,7 %). Personnes distinctes identifiées comme autistes : 2 / 186 (1,1 %).
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