Parent perspectives of children with selective mutism and co-occurring autism

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Keville, S., Zormati, P., Shahid, A., Osborne, C., & Ludlow, A. K. (2023). Parent perspectives of children with selective mutism and co-occurring autism. International Journal of Developmental Disabilities, 70(7), 1251-1261. https://doi.org/10.1080/20473869.2023.2173835

Publication date: 3 Feb 2023 Added to AutiHub: 25 Aug 2026 Type: Article Article language: English
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Authors

Publication authors
5
Publication authors identified as autistic
1 / 5 (20.0%)
  1. Saskia Keville
  2. P. Zormati
  3. A. Shahid
  4. Clarissa Osborne *
  5. Amanda K. Ludlow

Abstract

Selective mutism (SM) and autism frequently co-occur together, exacerbating social communication deficits and associated anxiety. However, professionals have lacked a readiness to diagnose SM and autism together, making the need to understand parental experiences of caring for a child with SM and autism crucial. The current study utilised Interpretative Phenomenological Analysis (IPA) to explore parents' experience of caring for children with SM and autism. Semi-structured interviews were conducted with eleven mothers and one father of children aged between 5 and 18 years. All children were diagnosed with SM and had undertaken, or were currently undertaking, an autism diagnostic process. Analysis of the transcripts resulted in the following themes: Complexities from co-occurring issues; The overwhelming impact of SM; The diagnostic journey; Finding solutions and advocacy. Judgements and minimisation of symptoms from educational and healthcare systems exacerbated delays in diagnosis preventing appropriate intervention. The complexities of caring for a child with SM and autism, alongside wider misunderstandings, exacerbated parental stress, impacting the family. Parental advocacy and safe environments provided opportunities for children to better manage contextually based mutism. Improvements in identification and compassionate understanding from wider systems by involving parents as key stakeholders are essential to improve this situation.

Bibliography cited by this reference

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Cited bibliography overview

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Cited references
67
With a DOI
58
Without a DOI, from raw bibliography text
9
2 / 67 (3.0%) cited references include at least one author identified as autistic.
References with data to complete
5 / 67 (7.5%)
References with detected author names
62 / 67 (92.5%)
Without detected author names
5
Without a structured title
4
Without a stable identifier
9
References with raw author names still to review
3
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
202
From DOI or external metadata
202
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
3
26 / 202 (12.9%) names are linked to an author already present in AutiHub. 176 / 202 (87.1%) names are not yet linked.
Names linked to a person identified as autistic
2 / 202 (1.0%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 2 / 26 (7.7%). Distinct people identified as autistic: 2 / 186 (1.1%).
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