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On the increasing use of "extensive support needs" (ESN) to classify disabled people: "ESN as a label is currently used inconsistently. The variability of ESN definitions poses problems to research replication, validity, and synthesis" journals.sagepub.com/doi/10.1177/... autism-relevant

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Publication avec DOI Récupéré Publication crossref

Kevin M. Ayres, Tyler-Curtis C. Elliott (2026). What’s in a Label? On the Justification for Complete Participant Descriptions. Research and Practice for Persons with Severe Disabilities, 15407969261416409. SAGE Publications.

Date de publication
24/01/2026
Identifiant
10.1177/15407969261416409
Auteurs
Kevin M. Ayres, Tyler-Curtis C. Elliott
Source
Research and Practice for Persons with Severe Disabilities
Détails
15407969261416409
Type de référence
article
Éditeur
SAGE Publications
Source de métadonnées
crossref

Résumé

Labels used to describe people with disabilities have social and educational implications. Replication of scientific findings as well as the aggregation of meaningful research findings (e.g., meta-analysis) require detailed, relevant, and meaningful participant descriptions. Thus, we make the case that participant labels also carry scientific implications and researchers should choose based upon clear guidelines such that the label or descriptor will convey the same information to all who use it. For example, we analyze the term “extensive support needs” (ESN) and the scientific implications of this label. We describe the various ways researchers define ESN and the limitations of these existing definitions. Specifically, we discuss external validity, replication, and international dissemination concerns. Finally, we recommend ways researchers with people with intellectual disability can report participants that remedy these concerns.

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