Billet publié sur Bluesky le 29/07/2025 12:13

Résumé

Co-production, a collaborative approach to research and practice, has gained traction in neurodiversity studies as a means to include autistic and otherwise neurodivergent individuals. However, superficial or under-supported co-production risks losing its transformative potential, leaving contributors feeling exploited or excluded. This commentary draws on personal experience as a late-diagnosed autistic and attention deficit hyperactivity disorder (ADHD) academic woman to examine the risks of tokenistic or extractive co-production and proposes a justice-oriented vision rooted in equity, accountability, and solidarity. Key terms are defined, the distinction between inclusion and equity is explored, and practical principles for ethical co-production are outlined. Emphasising ethical listening, intersectionality, and clear feedback loops, this paper offers a constructive path towards relational justice and neurodivergent leadership. Lay Abstract Co-production in neurodivergence research aims to involve autistic and neurodivergent people as equal partners, but shallow efforts can leave contributors feeling used or ignored. As a late-diagnosed autistic and ADHD academic woman, I explore these challenges and propose a better way forward. Too often, neurodivergent voices are heard but not acted upon, turning co-production into storytelling without power-sharing. This commentary outlines six principles for ethical co-production, focusing on equity, transparency, and diverse inclusion, especially for marginalised groups like non-speaking individuals or those with intellectual disabilities. By valuing lived experience as expertise, ensuring clear feedback, and supporting neurodivergent leadership, research can truly empower communities. Funders and researchers must provide accessible tools, fair pay, and shared decision-making to make co-production meaningful. This approach not only improves research but also drives real-world change in policy and practice, respecting neurodivergent identities. Written for researchers, funders, and advocates, this commentary offers a practical roadmap to transform co-production into a tool for justice and collaboration, ensuring neurodivergent people are partners, not just participants.