The loneliness of me: The assumption of social disinterest and its worrying consequences in autism

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Moseley, R. L. & Sui, J. (2019). The loneliness of me: The assumption of social disinterest and its worrying consequences in autism. Behavioral and Brain Sciences, 42. https://doi.org/10.1017/s0140525x18002303

Publication date: 1 Jan 2019 Added to AutiHub: 6 Jul 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

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Authors

Publication authors
2
Publication authors identified as autistic
1 / 2 (50.0%)
  1. Rachel L. Moseley *
  2. Jie Sui

Abstract

Abstract We share Jaswal & Akhtar's concerns about the unintended repercussions of assumed social disinterest in autism. We expand consideration of these consequences with discussion of the literature and our own work on loneliness, mental ill-health, and self-representation, which is a cornerstone to social and emotional health. Further study is needed with expansive, mixed methodologies and involvement of the autistic community.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 13:58.

Cited references
17
With a DOI
16
Without a DOI, from raw bibliography text
1
1 / 17 (5.9%) cited references include at least one author identified as autistic.
References with data to complete
1 / 17 (5.9%)
References with detected author names
16 / 17 (94.1%)
Without detected author names
1
Without a structured title
1
Without a stable identifier
1
References with raw author names still to review
1
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
62
From DOI or external metadata
62
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
4
31 / 62 (50.0%) names are linked to an author already present in AutiHub. 31 / 62 (50.0%) names are not yet linked.
Names linked to a person identified as autistic
6 / 62 (9.7%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 6 / 31 (19.4%). Distinct people identified as autistic: 6 / 60 (10.0%).
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    Crossref OpenAlex OpenCitations
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    Crossref OpenAlex OpenCitations
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    Crossref OpenAlex OpenCitations
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    Crossref OpenAlex OpenCitations
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    Crossref OpenAlex OpenCitations
  10. Amanda D. Heidgerken , Gary Geffken , Avani Modi , Laura Frakey (2005). A Survey of Autism Knowledge in a Health Care Setting . Journal of Autism and Developmental Disorders, 35(3), 323-330. Springer Science and Business Media LLC.
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    Crossref OpenAlex OpenCitations
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    Crossref OpenAlex OpenCitations
  12. Darren Hedley , Mirko Uljarevic , Mathilda Wilmot , Amanda Richdale , Cheryl Dissanayake (2018). Understanding depression and thoughts of self-harm in autism: A potential mechanism involving loneliness . Research in Autism Spectrum Disorders, 46, 1-7. Elsevier BV.
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    Crossref OpenAlex OpenCitations
  13. Aoife Hickey , Jason Crabtree , Joshua Stott (2018). ‘Suddenly the first fifty years of my life made sense’: Experiences of older people with autism . Autism, 22(3), 357-367. SAGE Publications.
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    Crossref OpenAlex OpenCitations
  14. Sarah Cassidy , Louise Bradley , E. Bowen , Sarah Wigham , Jacqui Rodgers (2018). Measurement properties of tools used to assess depression in adults with and without autism spectrum conditions: A systematic review . Autism Research, 11(5), 738-754. Wiley.
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    Crossref OpenAlex OpenCitations
  15. F. K. Barg , R. Huss-Ashmore , M. N. Wittink , G. F. Murray , H. R. Bogner , Joseph J Gallo (2006). A Mixed-Methods Approach to Understanding Loneliness and Depression in Older Adults . The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 61(6), S329-S339. Oxford University Press (OUP).
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    Crossref OpenAlex OpenCitations
  16. Karri Gillespie-Smith , Carrie Ballantyne , Holly P. Branigan , David J. Turk , Sheila J. Cunningham (2018). The I in autism: Severity and social functioning in autism are related to self‐processing . British Journal of Developmental Psychology, 36(1), 127-141. Wiley.
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    Crossref OpenAlex OpenCitations
  17. Cusack J., Shaw S., Spiers J. & Sterry R. (2016) Personal tragedies, public crisis: The urgent need for a national response to early death in autism. Autistica website. Available at: https://www.autistica.org.uk/downloads/files/Personal-tragedies-public-crisis-ONLINE.pdf .
    Type: Other
    Crossref