Advancing care priorities for health and quality of life among older adults in the autism and/or intellectual disabilities communities: proceedings of an international Think Tank

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Nicholas, D., Shafai, F., Edelson, S. M., Bal, V., Nelson, H., Lawson, W., Doherty, M., Geurts, H. M., Sullivan, W. F., Braden, B. B., Wallace, G. L., Share, M., John, L. S., Amaral, D. G., Whitaker, A. H., Watters, L. R., Robson, T., Gauthier, J., Moulanier, S.,..., & Trollor, J. N. (2025). Advancing care priorities for health and quality of life among older adults in the autism and/or intellectual disabilities communities: proceedings of an international Think Tank. BMC Proceedings, 19(S11), 15-15. https://doi.org/10.1186/s12919-025-00330-8

Publication date: 15 Jun 2025 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English
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Authors

Publication authors
27
Publication authors identified as autistic
2 / 27 (7.4%)
  1. David Nicholas
  2. Fakhri Shafai
  3. Stephen M. Edelson
  4. Vanessa Bal
  5. Hilary Nelson
  6. Wenn Lawson *
  7. Mary Doherty *
  8. Hilde M. Geurts
  9. William F. Sullivan
  1. B. Blair Braden
  2. Gregory L. Wallace
  3. Maxine Share
  4. Laura St. John
  5. David G. Amaral
  6. Agnes H. Whitaker
  7. L. R. Watters
  8. Terri Robson
  9. Joanne Gauthier
  1. Sylvère Moulanier
  2. Linda Perry
  3. Sandy Stemp
  4. Ellen Wilkinson
  5. Nancy Jokinen
  6. Margaret Bauman
  7. Robert L. Hendren
  8. Evdokia Anagnostou
  9. Julian N Trollor

Abstract

As the number of older autistic adults and adults with intellectual disabilities grows, expanding capacity to meet their needs is crucial. On November 23-25, 2023, a Think Tank on aging in autism and/or intellectual disabilities was convened, with national and international delegates within this field. The Think Tank consisted of presentations focusing on key issues as well as a series of panel presentations addressing first-person lived experience, family caregiving, service provision in the community, and physical and mental health-based care. Discussion reflected lived experiences and care needs in this population, with an ultimate aim of advancing healthcare and community support. Delegates, who represent perspectives as self-advocates, family caregivers, service providers, clinicians and researchers, ranked guidelines and areas of focus identified in the literature in terms of the most important priorities for the near-term development of capacity building resources.

Bibliography cited by this reference

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Bibliography inclusion overview

These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:30.

Cited references
30
Total cited references integrated for this publication.
Cited references with an identified autistic author
7 / 30 (23.3%)
Cited author occurrences identified as autistic
15 / 118 (12.7%)
Among occurrences linked to AutiHub author records: 15 / 50 (30.0%). Distinct cited authors identified as autistic: 9 / 95 (9.5%).
Cited author occurrences linked to AutiHub author records
50 / 118 (42.4%)
Distinct linked cited authors: 35 / 95 (36.8%)
Linked cited-author occurrences not identified as autistic
35 / 50 (70.0%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 35 / 118 (29.7%). Distinct linked cited authors not identified as autistic: 26 / 35 (74.3%).
4 cited bibliography entries could not be fully enriched from DOI metadata.
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