Advancing care priorities for health and quality of life among older adults in the autism and/or intellectual disabilities communities: proceedings of an international Think Tank

This publication is included in the Autistic Autism Scholarship Project. four authors of this publication are identified as autistic in the project.

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Nicholas, D., Shafai, F., Edelson, S., Bal, V., Nelson, H., Lawson, W., Doherty, M., Geurts, H. M., Sullivan, W. F., Braden, B. B., Wallace, G. L., Share, M., St. John, L., Amaral, D. G., Whitaker, A. H., Watters, L. R., Robson, T., Gauthier, J., Moulanier, S.,..., & Trollor, J. (2025). Advancing care priorities for health and quality of life among older adults in the autism and/or intellectual disabilities communities: proceedings of an international Think Tank. BMC Proceedings, 19(S11), 15-15. https://doi.org/10.1186/s12919-025-00330-8

Journal or book title
BMC Proceedings
Publisher
Springer Science and Business Media LLC
Volume
19
Issue
S11
Pages
15-15
Article number
15
Publication date: 15 Jun 2025 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

This publication is integrated into AutiHub through:

Authors

Publication authors
27
Publication authors identified as autistic
4 / 27 (14.8%)
  1. David Nicholas
  2. Fakhri Shafai
  3. Stephen Edelson
  4. Vanessa Bal
  5. Hilary Nelson
  6. Wenn Lawson *
  7. Mary Doherty *
  8. Hilde M. Geurts
  9. William F. Sullivan
  1. B. Blair Braden
  2. Gregory L. Wallace
  3. Maxine Share *
  4. Laura St. John
  5. David G. Amaral
  6. Agnes H. Whitaker
  7. L. R. Watters
  8. Terri Robson *
  9. Joanne Gauthier
  1. Sylvère Moulanier
  2. Linda Perry
  3. Sandy Stemp
  4. Ellen Wilkinson
  5. Nancy Jokinen
  6. Margaret Bauman
  7. Robert L. Hendren
  8. Evdokia Anagnostou
  9. Julian Trollor

Abstract

As the number of older autistic adults and adults with intellectual disabilities grows, expanding capacity to meet their needs is crucial. On November 23-25, 2023, a Think Tank on aging in autism and/or intellectual disabilities was convened, with national and international delegates within this field. The Think Tank consisted of presentations focusing on key issues as well as a series of panel presentations addressing first-person lived experience, family caregiving, service provision in the community, and physical and mental health-based care. Discussion reflected lived experiences and care needs in this population, with an ultimate aim of advancing healthcare and community support. Delegates, who represent perspectives as self-advocates, family caregivers, service providers, clinicians and researchers, ranked guidelines and areas of focus identified in the literature in terms of the most important priorities for the near-term development of capacity building resources.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 17:07.

Cited references
30
With a DOI
19
Without a DOI, from raw bibliography text
9
7 / 30 (23.3%) cited references include at least one author identified as autistic.
References with data to complete
11 / 30 (36.7%)
References with detected author names
22 / 30 (73.3%)
Without detected author names
8
Without a structured title
11
Without a stable identifier
9
References with raw author names still to review
8
References with external metadata lookup issues
2
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
118
From DOI or external metadata
118
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
13
51 / 118 (43.2%) names are linked to an author already present in AutiHub. 67 / 118 (56.8%) names are not yet linked.
Names linked to a person identified as autistic
15 / 118 (12.7%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 15 / 51 (29.4%). Distinct people identified as autistic: 9 / 95 (9.5%).
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