Comment les parents autistes vivent la parentalité? Une étude qualitative des avantages et des défis rencontrés par des parents autistes au Québec

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Désormeaux-Moreau, M., Poulin, M. H., & Couture, M. (2024). Comment les parents autistes vivent la parentalité? Une étude qualitative des avantages et des défis rencontrés par des parents autistes au Québec. Canadian Journal of Disability Studies, 13(3), 252-282. https://doi.org/10.15353/cjds.v13i3.1169

Publication date: 17 Dec 2024 Added to AutiHub: 5 Jul 2026 Type: Article Article language: French
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Authors

Publication authors
3
Publication authors identified as autistic
1 / 3 (33.3%)
  1. Marjorie Désormeaux-Moreau *
  2. Marie-Hélène Poulin
  3. Mélanie Couture

Abstract

Les recherches sur la parentalité et l’autisme se sont principalement attachées à l’expérience de parents présumés allistes d’enfants autistes. Or, les parents autistes peuvent avoir des expériences différentes, influencées par leur fonctionnement neurocognitif. Les inégalités sociales qu’ils rencontrent et les attentes neuronormatives d’être parent peuvent complexifier leur expérience et augmenter leurs défis. S’inscrivant dans une étude descriptive transversale sur la participation sociale des adultes autistes au Québec (Canada), cette étude explore l’expérience parentale d’adultes autistes en documentant les avantages et les difficultés perçues à être parent autiste. Recueillies par le biais d’un questionnaire en ligne, les données ont été soumises à une analyse de contenu inductive. Les avantages d’être parent autiste sont principalement liés à des caractéristiques individuelles souvent associées à l’autisme, tandis que les défis sont principalement liés à des obstacles environnementaux. Être le parent autiste d’un enfant autiste comporte également des avantages et des défis spécifiques, principalement liés à la réalité partagée et à l’(in)compatibilité des besoins entre le parent et l’enfant. Les constats issus de cette étude mettent en évidence la nécessité de reconnaître et de valoriser la diversité des expériences parentales, de même que de remettre en question les attentes neuronormatives concernant la parentalité. Ils soulignent également l’urgence de rompre avec l’impératif de neuronormativité qui invalide et infériorise les parents autistes pour promouvoir des perspectives neuroinclusives et neuroaffirmatives.

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Cited references
22
Total cited references integrated for this publication.
Cited references with an identified autistic author
5 / 22 (22.7%)
Cited author occurrences identified as autistic
6 / 54 (11.1%)
Among occurrences linked to AutiHub author records: 6 / 23 (26.1%). Distinct cited authors identified as autistic: 4 / 49 (8.2%).
Cited author occurrences linked to AutiHub author records
23 / 54 (42.6%)
Distinct linked cited authors: 19 / 49 (38.8%)
Linked cited-author occurrences not identified as autistic
17 / 23 (73.9%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 17 / 54 (31.5%). Distinct linked cited authors not identified as autistic: 15 / 19 (78.9%).
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