Comment les parents autistes vivent la parentalité? Une étude qualitative des avantages et des défis rencontrés par des parents autistes au Québec

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Désormeaux-Moreau, M., Poulin, M. H., & Couture, M. (2024). Comment les parents autistes vivent la parentalité? Une étude qualitative des avantages et des défis rencontrés par des parents autistes au Québec. Canadian Journal of Disability Studies, 13(3), 252-282. https://doi.org/10.15353/cjds.v13i3.1169

Journal or book title
Canadian Journal of Disability Studies
Publisher
University of Waterloo
Volume
13
Issue
3
Pages
252-282
Publication date: 17 Dec 2024 Added to AutiHub: 5 Jul 2026 Type: Article Article language: French
Publisher source (DOI) Full text OpenAlex source

This publication is integrated into AutiHub through:

Authors

Publication authors
3
Publication authors identified as autistic
1 / 3 (33.3%)
  1. Marjorie Désormeaux-Moreau *
  2. Marie-Hélène Poulin
  3. Mélanie Couture

Abstract

Les recherches sur la parentalité et l’autisme se sont principalement attachées à l’expérience de parents présumés allistes d’enfants autistes. Or, les parents autistes peuvent avoir des expériences différentes, influencées par leur fonctionnement neurocognitif. Les inégalités sociales qu’ils rencontrent et les attentes neuronormatives d’être parent peuvent complexifier leur expérience et augmenter leurs défis. S’inscrivant dans une étude descriptive transversale sur la participation sociale des adultes autistes au Québec (Canada), cette étude explore l’expérience parentale d’adultes autistes en documentant les avantages et les difficultés perçues à être parent autiste. Recueillies par le biais d’un questionnaire en ligne, les données ont été soumises à une analyse de contenu inductive. Les avantages d’être parent autiste sont principalement liés à des caractéristiques individuelles souvent associées à l’autisme, tandis que les défis sont principalement liés à des obstacles environnementaux. Être le parent autiste d’un enfant autiste comporte également des avantages et des défis spécifiques, principalement liés à la réalité partagée et à l’(in)compatibilité des besoins entre le parent et l’enfant. Les constats issus de cette étude mettent en évidence la nécessité de reconnaître et de valoriser la diversité des expériences parentales, de même que de remettre en question les attentes neuronormatives concernant la parentalité. Ils soulignent également l’urgence de rompre avec l’impératif de neuronormativité qui invalide et infériorise les parents autistes pour promouvoir des perspectives neuroinclusives et neuroaffirmatives.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 3 Oct 2026 01:00.

Cited references
22
With a DOI
22
Without a DOI, from raw bibliography text
0
7 / 22 (31.8%) cited references include at least one author identified as autistic.
References with data to complete
0 / 22 (0.0%)
References with detected author names
22 / 22 (100.0%)
Without detected author names
0
Without a structured title
0
Without a stable identifier
0
References with raw author names still to review
0
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
54
From DOI or external metadata
54
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
0
31 / 54 (57.4%) names are linked to an author already present in AutiHub. 23 / 54 (42.6%) names are not yet linked.
Names linked to a person identified as autistic
9 / 54 (16.7%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 9 / 31 (29.0%). Distinct people identified as autistic: 7 / 49 (14.3%).
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    OpenAlex
  10. Bethan Collins (2017). Independence: proposing an initial framework for occupational therapy . Scandinavian Journal of Occupational Therapy, 24(6), 398-409. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1080/11038128.2016.1271011 OpenAlex: https://openalex.org/W2577457196
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  12. A. L. Pohl , S. K. Crockford , M. Blakemore , Carrie T. Allison , Simon Baron-Cohen (2020). A comparative study of autistic and non-autistic women’s experience of motherhood . Molecular Autism, 11(1), 3. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s13229-019-0304-2 OpenAlex: https://openalex.org/W3000239743
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    OpenAlex
  14. Júlia Campos Clímaco (2020). Análise das construções possíveis de maternidades nos estudos feministas e da deficiência . Revista Estudos Feministas, 28(1). FapUNIFESP (SciELO).
    Type: Article DOI: 10.1590/1806-9584-2020v28n154235 OpenAlex: https://openalex.org/W3027022323
    OpenAlex
  15. Peter Mitchell , Elizabeth Sheppard , Sarah Cassidy (2021). Autism and the double empathy problem: Implications for development and mental health . British Journal of Developmental Psychology, 39(1), 1-18. Wiley.
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    OpenAlex
  16. Amber-Sophie Dugdale , Andrew R. Thompson , Alexandra Leedham , Nigel Beail , Megan Freeth (2021). Intense connection and love: The experiences of autistic mothers . Autism, 25(7), 1973-1984. SAGE Publications.
    Type: Article DOI: 10.1177/13623613211005987 OpenAlex: https://openalex.org/W3154030996
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  18. Se Kwang Hwang , Phil Heslop (2023). Autistic Parents’ Personal Experiences of Parenting and Support: Messages from an Online Focus Group . The British Journal of Social Work, 53(1), 276-295. Oxford University Press (OUP).
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  20. Simone Smit , Jeremy Hopper (2023). Love, Joy, and a Lens of Childhood Trauma: Exploring Factors That Impact the Mental Health and Well-Being of Autistic Parents via Iterative Phenomenological Analysis . Autism in Adulthood, 5(1), 63-75. SAGE Publications.
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  21. Damian Milton * , Emine Gurbuz , Beatriz López (2022). The ‘double empathy problem’: Ten years on . Autism, 26(8), 1901-1903. SAGE Publications.
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  22. Katy Johanna Benson (2023). Perplexing Presentations: Compulsory Neuronormativity and Cognitive Marginalisation in Social Work Practice with Autistic Mothers of Autistic Children . The British Journal of Social Work, 53(3), 1445-1464. Oxford University Press (OUP).
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    OpenAlex