“Change Isn't Exactly Easy”: Autistic University Students' Lived Learning Experiences During the COVID-19 Pandemic

This publication is included in the Autistic Autism Scholarship Project. three authors of this publication are identified as autistic in the project.

About the autistic author marker

Ballantine, J., Rocheleau, J., Macarios, J., Ross, G., & Artemeva, N. (2023). “Change Isn't Exactly Easy”: Autistic University Students' Lived Learning Experiences During the COVID-19 Pandemic. Autism in Adulthood, 5(3), 325-334. https://doi.org/10.1089/aut.2022.0032

Publication date: 24 Feb 2023 Added to AutiHub: 27 Oct 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
5
Publication authors identified as autistic
3 / 5 (60.0%)

Abstract

Background: The COVID-19 (coronavirus disease 2019) pandemic-related isolation measures caused significant unexpected changes in learning experiences for all university students, including autistic students. So far, there has been a lack of information on autistic university students' lived learning experiences caused by the changes in the teaching delivery formats from face-to-face to online during this time. Our study addressed this gap by investigating eight autistic students' reported learning experiences during the rapid changes caused by the pandemic and discussing student-advocated learning supports. Methods: The participants in this qualitative study were eight formally or self-diagnosed, English-speaking, autistic undergraduate and graduate university students from a mid-sized Canadian university. Participants took part in semi-structured interviews that focused on their learning experiences and preferences before and during the pandemic, including what supports they found helpful. To analyze and interpret the data, autistic and nonautistic researchers used reflexive thematic analysis and a consultative participatory approach. Results: Our findings suggest that individual (i.e., organizational skills; mental health), interactional (i.e., prior experiences interacting with instructors and teaching assistants), and environmental (i.e., sensory environments, class sizes, virtual learning environments) factors, which were interrelated, determined the nature and quality of these autistic students' learning experiences and their academic preferences during the pandemic. We also found that each autistic student reported unique learning experiences and needed individualized supports for their learning. Conclusions: Several interrelated factors (individual, interactional, and environmental) affected the nature and quality of autistic university students' experiences during the pandemic. Each student had unique experiences and needed individualized supports.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 27 Oct 2026 09:28.

Cited references
37
With a DOI
27
Without a DOI, from raw bibliography text
10
6 / 37 (16.2%) cited references include at least one author identified as autistic.
References with data to complete
6 / 37 (16.2%)
References with detected author names
31 / 37 (83.8%)
Without detected author names
6
Without a structured title
6
Without a stable identifier
10
References with raw author names still to review
6
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
91
From DOI or external metadata
91
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
8
47 / 91 (51.6%) names are linked to an author already present in AutiHub. 44 / 91 (48.4%) names are not yet linked.
Names linked to a person identified as autistic
11 / 91 (12.1%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 11 / 47 (23.4%). Distinct people identified as autistic: 10 / 86 (11.6%).
  1. Peter F. Troiano , Julie Ann Liefeld , Jennifer V. Trachtenberg (2010). Academic Support and College Success for Postsecondary Students with Learning Disabilities . Journal of College Reading and Learning, 40(2), 35-44. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  2. MIT Press (2020). Rapid Reviews COVID-19 . Rapid Reviews COVID-19.
    Type: Other
    Crossref
  3. Holly Else (2020). How a torrent of COVID science changed research publishing — in seven charts . Nature, 588(7839), 553-553. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  4. Bernice Andrews , John M. Wilding (2004). The relation of depression and anxiety to life‐stress and achievement in students . British Journal of Psychology, 95(4), 509-521. Wiley.
    Crossref OpenAlex OpenCitations
  5. Virginia Braun , Victoria Clarke (2006). Using thematic analysis in psychology . Qualitative Research in Psychology, 3(2), 77-101. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  6. Jacquie Ballantine , Natasha Artemeva (2020). Autistic university students’ accounts of interactions with nonautistic and autistic individuals: a rhetorical genre studies perspective . Revista da Anpoll, 51(2), 29-43. ANPOLL.
    Crossref OpenAlex OpenCitations
  7. Gena P. Barnhill (2016). Supporting Students With Asperger Syndrome on College Campuses . Focus on Autism and Other Developmental Disabilities, 31(1), 3-15. SAGE Publications.
    Crossref OpenAlex OpenCitations
  8. Sue Fletcher-Watson , Francesca Happé (2019). Autism . Routledge.
    Crossref OpenAlex OpenCitations
  9. Jamie Horder , C. Ellie Wilson , María Andreina Méndez , Declan Murphy (2014). Autistic Traits and Abnormal Sensory Experiences in Adults . Journal of Autism and Developmental Disorders, 44(6), 1461-1469. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  10. Elizabeth Pellicano (2010). Individual differences in executive function and central coherence predict developmental changes in theory of mind in autism. Developmental Psychology, 46(2), 530-544. American Psychological Association (APA).
    Type: Article DOI: 10.1037/a0018287 OpenAlex: https://openalex.org/W2163456511
    Crossref OpenAlex OpenCitations
  11. (n.d.). Waters W Sam A Steinbrenner J et al. Supporting Individuals with Autism through Uncertain Times. https://www.westridgeelementary.org/ourpages/auto/2011/9/2/43630395/Supporting%20Individuals%20with%20Autism%20through%20Uncertian%20Times%20Full%20Packet.pdf (Last accessed: January5 2020).
    Type: Other
    Crossref
  12. Celeste Meijs , Hieronymus J. M. Gijselaers , Kate M. Xu , Paul A. Kirschner , Renate H. M. De Groot (2021). The Relation Between Cognitively Measured Executive Functions and Reported Self-Regulated Learning Strategy Use in Adult Online Distance Education . Frontiers in Psychology, 12, 641972-641972. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  13. Dianne Zager , Carol S Alpern , Barbara McKeon , Janet Mulvey , Sue Maxam (2012). Educating College Students with Autism Spectrum Disorders . Routledge.
    Crossref OpenAlex
  14. Virginia Braun , Victoria Clarke (2021). One size fits all? What counts as quality practice in (reflexive) thematic analysis? Qualitative Research in Psychology, 18(3), 328-352. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  15. Joyce Davidson , Michael Orsini (2013). The Shifting Horizons of Autism Online . In Worlds of Autism (pp. 285-304). University of Minnesota Press.
    Crossref OpenAlex OpenCitations
  16. Dawn Adams , Kate Simpson , Lynda Davies , Chris Campbell , Libby Macdonald (2019). Online learning for university students on the autism spectrum: A systematic review and questionnaire study . Australasian Journal of Educational Technology, 35(6), 111-131. Australasian Society for Computers in Learning in Tertiary Education.
    Crossref OpenAlex OpenCitations
  17. Glenn Wilson (1996). Mindblindness—an essay on autism and theory of mind . Personality and Individual Differences, 20(2), 278-279. Elsevier BV.
    OpenAlex
  18. (n.d.). Fakhteh Yavari G. Phenomonological Study of the Experiences of Special Education Teachers Teaching Students with Autism Spectrum Disorders in Online Learning Environments during the COVID-19 Pandemic. ProQuest Dissertations Publishing; 2021. https://search.proquest.com/docview/2622985715?pq-origsite=primo (Last accessed: July4 2022).
    Type: Other
    Crossref
  19. (n.d.). Pearson LA. Instructional Design Autism Spectrum Disorders and Online Learning: What's Being Done? ProQuest LLC; 2014. https://search.proquest.com/docview/1527484764?pq-origsite=primo (Last accessed: July4 2022).
    Type: Other
    Crossref
  20. Renée Dijkhuis , Leo de Sonneville , Tim Ziermans , Wouter Staal , Hanna Swaab (2020). Autism Symptoms, Executive Functioning and Academic Progress in Higher Education Students . Journal of Autism and Developmental Disorders, 50(4), 1353-1363. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  21. Alberto Stefana , Eric A. Youngstrom , Christopher J. Hopwood , Antonios Dakanalis (2020). The COVID-19 pandemic brings a second wave of social isolation and disrupted services . European Archives of Psychiatry and Clinical Neuroscience, 270(6), 785-786. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  22. Kim Usher , Navjot Bhullar , Debra Jackson (2020). Life in the pandemic: Social isolation and mental health . Journal of Clinical Nursing, 29(15-16), 2756-2757. Wiley.
    Crossref OpenAlex OpenCitations
  23. Elizabeth Pellicano , Marc Stears (2020). The hidden inequalities of COVID-19 . Autism, 24(6), 1309-1310. SAGE Publications.
    Crossref OpenAlex OpenCitations
  24. Virginia Braun , Victoria Clarke (2022). Thematic Analysis . In Thematic Analysis: A Practical Guide (pp. 1-7). Springer International Publishing.
    Crossref OpenAlex
  25. (n.d.). Banyai I. Zoom Version 3. 5. 1995.
    Type: Other
    Crossref
  26. (n.d.). Max Planck Institute for Psycholinguistics. ELAN Version 5. 9. 2021.
    Type: Other
    Crossref
  27. Victoria Clarke , Virginia Braun (2014). Thematic Analysis . In Encyclopedia of Critical Psychology (pp. 1947-1952). Springer New York.
    OpenCitations
  28. (n.d.). QSR International Pty. Ltd. NVivo Qualitative Data Analysis Software. Version 12 Plus. 2021.
    Type: Other
    Crossref
  29. Alexandra F. Lightfoot (2018). Perspectives of North American postsecondary students with learning disabilities: A scoping review . J Postsecondary Educ Disability, 31(1), 57.
    Type: Other
    Crossref
  30. Milton D (2017). A Mismatch of Salience . A Mismatch of Salience.
    Type: Other
    Crossref
  31. S. Baron-Cohen (1997). Mindblindness: An Essay on Autism and Theory of Mind . Mindblindness: An Essay on Autism and Theory of Mind.
    Type: Other
    Crossref