Families’ Access to Early Intervention and Supports for Children With Developmental Disabilities

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Sapiets, S. J., Hastings, R. P., Stanford, C., & Totsika, V. (2022). Families’ Access to Early Intervention and Supports for Children With Developmental Disabilities. Journal of Early Intervention, 45(2), 103-121. https://doi.org/10.1177/10538151221083984

Publication date: 8 Apr 2022 Added to AutiHub: 18 Oct 2026 Type: Article Article language: English
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Publication authors
4
Publication authors identified as autistic
1 / 4 (25.0%)
  1. Suzi Jayne Sapiets *
  2. Richard P. Hastings
  3. Catherine Stanford
  4. Vasiliki Totsika

Abstract

Early intervention (EI) provision is critical for families who have children with developmental disabilities (DD), but existing evidence suggests accessing EI is not always straightforward. The purpose of this study was to provide a comprehensive description of access to various EI supports (e.g., professionals, services, interventions) for families of young children with suspected or diagnosed DD across the United Kingdom and to investigate perceived ease of access to support, unmet need for support, and barriers and facilitators of access to support. Overall, 673 parental caregivers of children aged 0 to 6 years with suspected or diagnosed DD (e.g., developmental delay, intellectual disability, autism) completed our survey anonymously. Across education, health, and social care, services accessed the most were pediatrics (N = 569, 84.5%), speech and language (N = 567, 84.2%), and general medical practice (N = 530, 78.8%). However, only 18.9% (N = 127) accessed packaged interventions. More than three-quarters (N = 508, 75.5%) reported an unmet need for early support, indicating a mismatch between the availability and capacity of services and demand for support. Parents also reported common barriers (e.g., obstructive services and unhelpful professionals) and facilitators (e.g., supportive and competent professionals, enabling parent factors) of access. Implications for policy, practice, and research are discussed.

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69
With a DOI
59
Without a DOI, from raw bibliography text
10
3 / 69 (4.3%) cited references include at least one author identified as autistic.
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10 / 69 (14.5%)
References with detected author names
59 / 69 (85.5%)
Without detected author names
10
Without a structured title
10
Without a stable identifier
10
References with raw author names still to review
10
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
273
From DOI or external metadata
273
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
11
62 / 273 (22.7%) names are linked to an author already present in AutiHub. 211 / 273 (77.3%) names are not yet linked.
Names linked to a person identified as autistic
3 / 273 (1.1%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 3 / 62 (4.8%). Distinct people identified as autistic: 3 / 250 (1.2%).
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