Neighbourhood deprivation and access to early intervention and support for families of children with intellectual and developmental disabilities

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Laxton, S., Moriarty, C., Sapiets, S. J., Hastings, R. P., & Totsika, V. (2024). Neighbourhood deprivation and access to early intervention and support for families of children with intellectual and developmental disabilities. Journal of Policy and Practice in Intellectual Disabilities, 21(2), Article e12486. https://doi.org/10.1111/jppi.12486

Publication date: 29 Jan 2024 Added to AutiHub: 18 Oct 2026 Type: Article Article language: English
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Authors

Publication authors
5
Publication authors identified as autistic
1 / 5 (20.0%)
  1. Sophie Laxton
  2. Caitlin Moriarty
  3. Suzi Jayne Sapiets *
  4. Richard P. Hastings
  5. Vasiliki Totsika

Abstract

Abstract Ensuring families of children with intellectual and/or developmental disabilities (e.g., developmental delay, intellectual disability, autism) can access early intervention and support is important. Current research indicates there are family‐level socioeconomic disparities of access to early intervention and support, however, there is limited evidence on the relationship between neighbourhood‐level socioeconomic deprivation and access to support. Therefore, the aim of this study was to examine the relationship between neighbourhood deprivation and families' access to and unmet need for early intervention and support. We collected cross‐sectional data using a survey of 673 parental caregivers of young children with suspected or diagnosed intellectual and/or developmental disabilities in the UK. Multiple regression models were fitted for three early intervention and support outcome variables: access to early intervention; access to services across education, health, social care, and other sectors; and unmet need for services. Each regression model included a neighbourhood deprivation variable based on the index of multiple deprivation and five control variables: family‐level economic deprivation, country, caregivers' educational level, developmental disability diagnosis, and informal support sources. Neighbourhood deprivation was a significant independent predictor of access to services, but neighbourhood deprivation was not a significant predictor of access to early intervention or unmet need for services. Families living in the most deprived neighbourhoods accessed fewer services than other families. Socioeconomic disparities of access to early intervention and support, at both a neighbourhood and family level, exist for families of young children with suspected or diagnosed intellectual and/or developmental disabilities in the UK. Future research should focus on policy and other interventions aimed at addressing socioeconomic disparities at the neighbourhood and family level, to ensure equitable access to early intervention and support.

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Cited references
37
With a DOI
24
Without a DOI, from raw bibliography text
13
3 / 37 (8.1%) cited references include at least one author identified as autistic.
References with data to complete
2 / 37 (5.4%)
References with detected author names
35 / 37 (94.6%)
Without detected author names
2
Without a structured title
0
Without a stable identifier
9
References with raw author names still to review
0
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
123
From DOI or external metadata
123
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
0
28 / 123 (22.8%) names are linked to an author already present in AutiHub. 95 / 123 (77.2%) names are not yet linked.
Names linked to a person identified as autistic
3 / 123 (2.4%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 3 / 28 (10.7%). Distinct people identified as autistic: 1 / 111 (0.9%).
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