Provider Perspectives on the Extension for Community Healthcare Outcomes Autism: Transition to Adulthood Program

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Cheak-Zamora, N., Farmer, J., Crossman, M. K., Malow, B. A., Mazurek, M. O., Kuhlthau, K., Stobbe, G., Loftin, R., Agrawal, M. M., Tapia, M., Hess, A., Davis, K., & Sohl, K. (2020). Provider Perspectives on the Extension for Community Healthcare Outcomes Autism: Transition to Adulthood Program. Journal of Developmental & Behavioral Pediatrics, 42(2), 91-100. https://doi.org/10.1097/dbp.0000000000000872

Publication date: 9 Oct 2020 Added to AutiHub: 2 Oct 2026 Type: Article Article language: English
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Authors

Publication authors
13
Publication authors identified as autistic
1 / 13 (7.7%)
  1. Nancy Cheak-Zamora
  2. Justin Farmer
  3. Morgan K. Crossman
  4. Beth A Malow
  5. Micah O Mazurek
  1. Karen Kuhlthau
  2. Gary Stobbe
  3. Rachel Loftin
  4. Mavara M Agrawal
  5. Mark Tapia *
  1. Amy Hess
  2. Katrina Davis
  3. Kristin Sohl

Abstract

ABSTRACT: Objective: Despite their complex health care needs, transition-aged youth diagnosed with autism spectrum disorder (TAY-ASD) receive few transition services and describe difficulty finding adult providers. A 12-week primary care provider (PCP) training was developed to improve the delivery of transition services for TAY-ASD [Extension for Community Healthcare Outcomes (ECHO) Autism: Transition to Adulthood program]. The current study examines the PCPs' perspectives and experiences of the program and application of the training material. Methods: This study used a qualitative descriptive framework to explore the experiences and perspectives of 10 PCPs who completed the ECHO Autism: Transition to Adulthood program. Semistructured focus groups, conducted through Zoom videoconferencing, were used to explore these topics. Results: Three overarching categories were identified: (1) beneficial and influential aspects of the ECHO, (2) perceived challenges, and (3) suggestions for improvements and adjustments. Overall, participants found the program highly beneficial, describing an increased sense of community and comprehensive recommendations from a multidisciplinary team. Challenges included difficulties participating in the program during clinical hours and difficulties meeting the educational needs of participants with a wide range of previous experience caring for TAY-ASD. Recommendations included embedding the location-specific material into the program to account for regional differences and the use of an online platform for participants to ask questions and discuss issues outside of the regular sessions. Conclusion: The study results can inform the development and implementation of new virtual PCP trainings and future ECHOs, including the revision and broad implementation of the ongoing ECHO Autism: Transition to Adulthood program.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 16:32.

Cited references
27
With a DOI
24
Without a DOI, from raw bibliography text
3
1 / 27 (3.7%) cited references include at least one author identified as autistic.
References with data to complete
2 / 27 (7.4%)
References with detected author names
25 / 27 (92.6%)
Without detected author names
2
Without a structured title
0
Without a stable identifier
1
References with raw author names still to review
0
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
138
From DOI or external metadata
138
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
0
33 / 138 (23.9%) names are linked to an author already present in AutiHub. 105 / 138 (76.1%) names are not yet linked.
Names linked to a person identified as autistic
1 / 138 (0.7%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 1 / 33 (3.0%). Distinct people identified as autistic: 1 / 117 (0.9%).
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