A Call for Expanding the Diversity of Voices in Autism Research Engagement

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Salt, M. (2021). A Call for Expanding the Diversity of Voices in Autism Research Engagement. Canadian Journal of Autism Equity, 1(1), 46-48. https://doi.org/10.15173/cjae.v1i1.4991

Publication date: 6 Apr 2021 Added to AutiHub: 29 Sep 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

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Authors

Publication authors
1
Publication authors identified as autistic
1 / 1 (100.0%)
  1. Mackenzie Salt *

Abstract

Recently, there has been a push to increase research engagement within the autism community. Historically, research engagement has largely focused on childhood disability research and participatory autism research remains rare (den Houting et al., 2021). This gap in the literature can often result in the substitution of parents’ voices for those of their Autistic children within the framework of family-centred services. This article argues that research engagement should be conducted in a way that can represent the wider autism community and cautions against allowing voices of one element of the autism community to speak for the whole.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 07:50.

Cited references
8
With a DOI
8
Without a DOI, from raw bibliography text
0
2 / 8 (25.0%) cited references include at least one author identified as autistic.
References with data to complete
0 / 8 (0.0%)
References with detected author names
8 / 8 (100.0%)
Without detected author names
0
Without a structured title
0
Without a stable identifier
0
References with raw author names still to review
0
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
40
From DOI or external metadata
40
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
0
20 / 40 (50.0%) names are linked to an author already present in AutiHub. 20 / 40 (50.0%) names are not yet linked.
Names linked to a person identified as autistic
8 / 40 (20.0%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 8 / 20 (40.0%). Distinct people identified as autistic: 8 / 38 (21.1%).
  1. T. W. Carroll , M. P. Gutmann (2011). The Limits of Autonomy: The Belmont Report and the History of Childhood . Journal of the History of Medicine and Allied Sciences, 66(1), 82-115. Oxford University Press (OUP).
    Type: Article DOI: 10.1093/jhmas/jrq021 OpenAlex: https://openalex.org/W1984594292
    OpenAlex
  2. Shuoqi Shen , Krissy A.R. Doyle‐Thomas , Lori Beesley , Amir Karmali , Laura Williams , Nadia Tanel et al. (2017). How and why should we engage parents as co‐researchers in health research? A scoping review of current practices . Health Expectations, 20(4), 543-554. Wiley.
    Type: Article DOI: 10.1111/hex.12490 OpenAlex: https://openalex.org/W2515754279
    OpenAlex OpenCitations
  3. Peter Rosenbaum (2011). Family-centred research: what does it mean and can we do it? Developmental Medicine & Child Neurology, 53(2), 99-100. Wiley.
    Type: Article DOI: 10.1111/j.1469-8749.2010.03871.x OpenAlex: https://openalex.org/W2044832347
    OpenAlex
  5. Megan L. E. Clark , Dawn Adams (2020). Listening to parents to understand their priorities for autism research . PLOS ONE, 15(8), e0237376. Public Library of Science (PLoS).
    Type: Article DOI: 10.1371/journal.pone.0237376 OpenAlex: https://openalex.org/W3048464255
    OpenAlex
  7. Sandra Moll , Michelle Wyndham-West , Gillian Mulvale , Sean Park , Alexis Buettgen , Michelle Phoenix et al. (2020). Are you really doing ‘codesign’? Critical reflections when working with vulnerable populations . BMJ Open, 10(11), e038339. BMJ.
    Type: Article DOI: 10.1136/bmjopen-2020-038339 OpenAlex: https://openalex.org/W3094844007
    OpenAlex
  8. Peter Rosenbaum , Susanne King , Mary Law , Gillian King , Jan Evans (1998). Family-Centred Service . Physical & Occupational Therapy In Pediatrics, 18(1), 1-20. Informa UK Limited.
    Type: Article DOI: 10.1080/j006v18n01_01 OpenAlex: https://openalex.org/W2012949609
    OpenAlex