Participatory Development of a Suicide Prevention Program for Autism Community Organizations

Metadata sources used for this reference

OpenAlex Crossref OpenCitations
Learn more about the sources used

Kirby, A. V., Feldman, K., Duncan-Ishcomer, B., Kripke-Ludwig, R., Joyce, A., Lee, W., Rodriguez, K., Siddeek, Z., Darlington, A., Atisme, A., Clark, W., Murthi, K., Wexler, L., & Nicolaidis, C. (2025). Participatory Development of a Suicide Prevention Program for Autism Community Organizations. OTJR: Occupational Therapy Journal of Research, 46(2), 240-246. https://doi.org/10.1177/15394492251391675

Publication date: 26 Nov 2025 Added to AutiHub: 22 Aug 2026 Type: Article Article language: English
OpenAlex source Publisher source (DOI)

This publication is integrated into AutiHub through:

Authors

Publication authors
14
Publication authors identified as autistic
4 / 14 (28.6%)
  1. Anne V. Kirby
  2. K. Feldman
  3. Bobbi Duncan-Ishcomer *
  4. Rachel Kripke-Ludwig *
  5. A. Joyce
  1. W. Lee
  2. Kayla Rodriguez *
  3. Zack Siddeek *
  4. A. Darlington
  5. Alissa Atisme
  1. W. Clark
  2. Kavitha Murthi
  3. L. Wexler
  4. Christina Nicolaidis

Abstract

Participatory research is critical for developing appropriate and effective programs for specific communities. Suicide is a health inequity for autistic people and prevention is a high priority for autistic community members. Using community-based participatory research with autistic partners, we aimed to develop a research-informed, conceptually grounded, and community-supported suicide prevention program for the autism community. The participatory, multistep program development process included regular meetings to integrate existing research with an established intervention framework and was informed by 38 qualitative research interviews with autistic adults, family members, and mental health providers. The development process resulted in a four-part, virtual, education and community empowerment program—Forming Love around Autistic People to Prevent Suicide (FLAPS)—aimed at supporting organizations to engage in multilevel suicide prevention efforts. Participatory research that meaningfully engages autistic community partners can support the development of promising programs to promote suicide prevention for autistic people.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 22 Aug 2026 23:04.

Cited references
25
With a DOI
18
Without a DOI, from raw bibliography text
7
4 / 25 (16.0%) cited references include at least one author identified as autistic.
References with data to complete
5 / 25 (20.0%)
References with detected author names
20 / 25 (80.0%)
Without detected author names
5
Without a structured title
5
Without a stable identifier
7
References with raw author names still to review
5
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
139
From DOI or external metadata
139
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
15
69 / 139 (49.6%) names are linked to an author already present in AutiHub. 70 / 139 (50.4%) names are not yet linked.
Names linked to a person identified as autistic
14 / 139 (10.1%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 14 / 69 (20.3%). Distinct people identified as autistic: 12 / 122 (9.8%).
  2. María Arqueros , Victoria Jamett-Cuevas , Valeska Pulgar-Vera , Roberto Santander-Gonzalez , Andrés Pemau , Percy Álvarez-Cabrera (2025). Camouflaging and suicide behavior in adults with autism spectrum condition: A mixed methods systematic review . Research in Autism, 121-122, 202540. Elsevier BV.
    Type: Article DOI: 10.1016/j.reia.2025.202540 OpenAlex: https://openalex.org/W4408049688
    Crossref OpenAlex OpenCitations
  3. L. Wexler , Diane McEachern , Gloria DiFulvio , Cristine Smith , Louis F. Graham , Kirk Dombrowski (2016). Creating a Community of Practice to Prevent Suicide Through Multiple Channels: Describing the Theoretical Foundations and Structured Learning of PC CARES . International Quarterly of Community Health Education, 36(2), 115-122. SAGE Publications.
    Type: Article DOI: 10.1177/0272684x16630886 OpenAlex: https://openalex.org/W2274992482
    Crossref OpenAlex OpenCitations
  4. Hsiu-Fang Hsieh , Sarah E. Shannon (2005). Three Approaches to Qualitative Content Analysis . Qualitative Health Research, 15(9), 1277-1288. SAGE Publications.
    Type: Article DOI: 10.1177/1049732305276687 OpenAlex: https://openalex.org/W2142225512
    Crossref OpenAlex OpenCitations
  5. Autistic Self-Advocacy Network. (2024). Position statements. http://autisticadvocacy.org/about-asan/positionstatements/
    Type: Other
    Crossref
  7. Kristie K. Patten , Kavitha Murthi , Dora D. Onwumere , Emily C. Skaletski , Lauren M. Little , Scott D. Tomchek (2024). Occupational Therapy Practice Guidelines for Autistic People Across the Lifespan . American Journal of Occupational Therapy, 78(3), 653-706. SAGE Publications.
    Type: Article DOI: 10.5014/ajot.2024.078301 OpenAlex: https://openalex.org/W4397024040
    Crossref OpenAlex OpenCitations
  9. Claire M Brown , Victoria Newell , Ensu Sahin , Darren Hedley (2024). Updated Systematic Review of Suicide in Autism: 2018–2024 . Current Developmental Disorders Reports, 11(4), 225-256. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40474-024-00308-9 OpenAlex: https://openalex.org/W4402498229
    Crossref OpenAlex OpenCitations
  10. Damian F Santomauro , Darren Hedley , Ensu Sahin , Traolach Brugha , Mohsen Naghavi , Theo Vos et al. (2024). The global burden of suicide mortality among people on the autism spectrum: A systematic review, meta-analysis, and extension of estimates from the Global Burden of Disease Study 2021 . Psychiatry Research, 341, 116150. Elsevier BV.
    Type: Article DOI: 10.1016/j.psychres.2024.116150 OpenAlex: https://openalex.org/W4401750101
    Crossref OpenAlex OpenCitations
  11. L. Wexler , Suzanne Rataj , Jerreed Ivanich , Jya Plavin , Anna Mullany , Roberta Moto et al. (2019). Community mobilization for rural suicide prevention: Process, learning and behavioral outcomes from Promoting Community Conversations About Research to End Suicide (PC CARES) in Northwest Alaska . Social Science & Medicine, 232, 398-407. Elsevier BV.
    Type: Article DOI: 10.1016/j.socscimed.2019.05.028 OpenAlex: https://openalex.org/W2945048231
    Crossref OpenAlex OpenCitations
  12. Sarah Cassidy , Louise Bradley , Heather Cogger-Ward , Jacqui Rodgers (2021). Development and validation of the suicidal behaviours questionnaire - autism spectrum conditions in a community sample of autistic, possibly autistic and non-autistic adults . Molecular Autism, 12(1), 46. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s13229-021-00449-3 OpenAlex: https://openalex.org/W3167453398
    Crossref OpenAlex OpenCitations
  13. Stephen Platt , Thomas Niederkrotenthaler (2020). Suicide Prevention Programs . Crisis, 41(Supplement 1), S99-S124. Hogrefe Publishing Group.
    Type: Article DOI: 10.1027/0227-5910/a000671 OpenAlex: https://openalex.org/W3013694039
    Crossref OpenAlex OpenCitations
  14. Centers for Disease Control and Prevention. (2022). Suicide prevention resource for action: A compilation of the best available evidence. https://www.cdc.gov/suicide/resources/prevention.html
    Type: Other
    Crossref
  15. Israel B. A. (2003). Community-based participatory research for health . Community-based participatory research for health, 56.
    Type: Other
    Crossref
  16. Jacqui Rodgers , Sarah Cassidy , Mirabel Pelton , Jane Goodwin , Janelle Wagnild , Nawaraj Bhattarai et al. (2024). Feasibility and acceptability of autism adapted safety plans: an external pilot randomised controlled trial . eClinicalMedicine, 73, 102662. Elsevier BV.
    Type: Article DOI: 10.1016/j.eclinm.2024.102662 OpenAlex: https://openalex.org/W4399260110
    Crossref OpenAlex OpenCitations
  17. Alice Turnock , Kate Langley , Catherine R.G. Jones (2022). Understanding Stigma in Autism: A Narrative Review and Theoretical Model . Autism in Adulthood, 4(1), 76-91. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2021.0005 OpenAlex: https://openalex.org/W4214570045
    Crossref OpenAlex OpenCitations
  19. Lauren A. White , L. Wexler , Addie Weaver , Roberta Moto , Tanya Kirk , Suzanne Rataj et al. (2022). Implementation beyond the clinic: Community‐driven utilization of research evidence from PC CARES, a suicide prevention program . American Journal of Community Psychology, 70(3-4), 365-378. Wiley.
    Type: Article DOI: 10.1002/ajcp.12609 OpenAlex: https://openalex.org/W4283655918
    Crossref OpenAlex OpenCitations
  20. Benjamin Joffe Schindel , Briella Baer Chen , Holly C. Wilcox , Alison R. Marvin , J. Kiely Law , Paul H. Lipkin (2024). Suicidal Thoughts and Behaviors Among Children and Adolescents With Autism Spectrum Disorder . JAMA Pediatrics, 178(6), 620. American Medical Association (AMA).
    Type: Article DOI: 10.1001/jamapediatrics.2024.0207 OpenAlex: https://openalex.org/W4393385928
    Crossref OpenAlex OpenCitations
  21. Patient-Centered Outcomes Research Institute. (2025). Engagement in research: Foundational expectations for partnerships. https://www.pcori.org/sites/default/files/PCORI-Foundational-Expectations-for-Partnerships-In-Research.pdf
    Type: Other
    Crossref
  22. Morganne Reid , Daylin Delgado , Julia M. Heinly , Bridgett Kiernan , Samantha Shapiro , Lisa Morgan et al. (2024). Suicidal Thoughts and Behaviors in People on the Autism Spectrum . Current Psychiatry Reports, 26(11), 563-572. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s11920-024-01533-0 OpenAlex: https://openalex.org/W4402974117
    Crossref OpenAlex OpenCitations
  23. Ullman K. Landsteiner A. Linskens E. MacDonald R. McKenzie L. Murdoch M. Sayer N. Stroebel B. Sultan S. Venables N. Wilt T. J. (2021). Risk and protective factors across socioecological levels of risk for suicide: An evidence map. U. S. Department of Veterans Affairs. https://www.ncbi.nlm.nih.gov/books/NBK575591/
    Type: Other
    Crossref
  24. Wenger E. (1999). Communities of practice: Learning, meaning, and identity . Communities of practice: Learning, meaning, and identity.
    Type: Other
    Crossref
  25. World Health Organization. (2012). Public health action for the prevention of suicide: A framework. https://apps.who.int/iris/bitstream/handle/10665/75166/9789241503570_eng.pdf
    Type: Other
    Crossref