The TRACE Framework: Improving Reporting of Sensory, Communication, and Contextual Factors in Autistic Physical-Health Research

Srinivasan, H. B. (2026). The TRACE Framework: Improving Reporting of Sensory, Communication, and Contextual Factors in Autistic Physical-Health Research. Autism in Adulthood. https://doi.org/10.1177/25739581261477976

Publication date: 14 Aug 2026 Added to AutiHub: 16 Aug 2026 Type: Article Article language: English

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Abstract

Autistic adults frequently report that sensory load, communication constraints, unclear pacing, and unannounced proximity or touch shape whether physical-health research procedures are accessible. Yet physical-health research rarely reports these contextual conditions, limiting interpretability and obscuring who was able to participate. Existing reporting guidelines (e.g., Consolidated Standards of Reporting Trials [CONSORT], Strengthening the Reporting of Observational Studies in Epidemiology [STROBE], Template for Intervention Description and Replication, Standard Protocol Items: Recommendations for Interventional Trials, and Guidance for Reporting Involvement of Patients and the Public 2) improve transparency around study design and outcomes but do not prompt reporting of access-relevant context for autistic participants. Without this information, researchers cannot determine whether outcomes reflect the procedure itself, the conditions under which participation occurred, or whether findings generalize across autistic adults with differing support needs. This article introduces Transparent Reporting of Autistic Context and Environment (TRACE), a minimum reporting standard for physical-health research involving autistic adults. TRACE is intended primarily as a reporting guideline for disseminating research findings, analogous to established frameworks such as CONSORT and STROBE, with the goal of improving transparency in articles and supplementary materials. TRACE synthesizes evidence from autistic health research, participatory toolkits, and related mechanistic literatures to identify contextual factors that influence participation. The framework specifies nine reporting domains, including sensory context, communication access, pacing and predictability, proximity and touch practices, and access modifications. TRACE also includes a reporting checklist, an ultrabrief methods template, and expanded guidance for specialty contexts. As a practical add-on to existing reporting standards, TRACE makes access-relevant context visible, supporting clearer interpretation, comparability across studies, and more inclusive physical-health research.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

  1. Sherry R. Arnstein (1969). A Ladder Of Citizen Participation . Journal of the American Institute of Planners, 35(4), 216-224. Informa UK Limited.
    Crossref OpenAlex
  2. C. F. Sambo , M. Liang , G. Cruccu , G. D. Iannetti (2012). Defensive peripersonal space: the blink reflex evoked by hand stimulation is increased when the hand is near the face . Journal of Neurophysiology, 107(3), 880-889. American Physiological Society.
    Crossref OpenAlex
  3. An-Wen Chan , Jennifer M. Tetzlaff , Doug Altman , Andreas Laupacis , Peter C. Gøtzsche , Karmela Krleža-Jerić et al. (2013). SPIRIT 2013 Statement: Defining Standard Protocol Items for Clinical Trials . Annals of Internal Medicine, 158(3), 200-207. American College of Physicians.
    Crossref OpenAlex
  4. Katherine McDonald , Dora M Raymaker *Autistic author. Learn more… (2013). Paradigm Shifts in Disability and Health: Toward More Ethical Public Health Research . American Journal of Public Health, 103(12), 2165-2173. American Public Health Association.
    Crossref OpenAlex
  5. T. C. Hoffmann , P. P. Glasziou , I. Boutron , R. Milne , R. Perera , David Moher et al. (2014). Better reporting of interventions: template for intervention description and replication (TIDieR) checklist and guide . BMJ, 348(mar07 3), g1687-g1687. BMJ.
    Crossref OpenAlex
  6. K. F Schulz , Doug Altman , David Moher , for the CONSORT Group (2010). CONSORT 2010 Statement: updated guidelines for reporting parallel group randomised trials . BMJ, 340(mar23 1), c332-c332. BMJ.
    Type: Article DOI: 10.1136/bmj.c332 OpenAlex: https://openalex.org/W2481029616
    Crossref OpenAlex
  7. Meghan L. Marsac , Nancy Kassam-Adams , Aimee K. Hildenbrand , Elizabeth Nicholls , Flaura K. Winston , Stephen S. Leff et al. (2016). Implementing a Trauma-Informed Approach in Pediatric Health Care Networks . JAMA Pediatrics, 170(1), 70. American Medical Association (AMA).
    Crossref OpenAlex
  8. Erik von Elm , Doug Altman , Matthias Egger , Stuart J Pocock , Peter C Gøtzsche , Jan P Vandenbroucke et al. (2007). The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) Statement: Guidelines for Reporting Observational Studies . PLoS Medicine, 4(10), e296. Public Library of Science (PLoS).
    Crossref OpenAlex
  9. Natasha Malik-Soni , Andrew Shaker , Helen Luck , Anne E. Mullin , Ryan E. Wiley , M. E. Suzanne Lewis et al. (2022). Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood . Pediatric Research, 91(5), 1028-1035. Springer Science and Business Media LLC.
    Crossref OpenAlex
  10. Andrew P. Owens , Christopher J. Mathias , Valeria Iodice (2021). Autonomic Dysfunction in Autism Spectrum Disorder . Frontiers in Integrative Neuroscience, 15, 787037-787037. Frontiers Media SA.
    Crossref OpenAlex
  11. Andrea Serino (2019). Peripersonal space (PPS) as a multisensory interface between the individual and the environment, defining the space of the self . Neuroscience & Biobehavioral Reviews, 99, 138-159. Elsevier BV.
    Crossref OpenAlex
  12. Hussein Ibrahim , Xiaoxuan Liu , Samantha Cruz Rivera , David Moher , An-Wen Chan , Matthew R. Sydes et al. (2021). Reporting guidelines for clinical trials of artificial intelligence interventions: the SPIRIT-AI and CONSORT-AI guidelines . Trials, 22(1), 11-11. Springer Science and Business Media LLC.
    Crossref OpenAlex
  13. Sins Invalid (2016). Skin, Tooth, and Bone: The Basis of Movement Is Our People: A Disability Justice Primer . Skin, Tooth, and Bone: The Basis of Movement Is Our People: A Disability Justice Primer.
    Type: Other
    Crossref