Support Preferences and Clinical Decision Support Systems (CDSS) in the Clinical Care of Autistic Children: Stakeholder Perspectives

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Sulek, R., Robertson, J., Goodall, E., Liew, A. W. C., Pillar, S., Upson, G., Whitehouse, A., Wicks, R., & Trembath, D. (2024). Support Preferences and Clinical Decision Support Systems (CDSS) in the Clinical Care of Autistic Children: Stakeholder Perspectives. Advances in Neurodevelopmental Disorders, 9(2), 355-365. https://doi.org/10.1007/s41252-024-00410-4

Publication date: 5 Jul 2024 Added to AutiHub: 12 Aug 2026 Type: Article Article language: English
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Authors

Publication authors
9
Publication authors identified as autistic
1 / 9 (11.1%)
  1. Rhylee Sulek
  2. Julia Robertson
  3. Emma Goodall *
  4. Alan Wee-Cheung Liew
  5. Sarah Pillar
  1. Gemma Upson
  2. Andrew Whitehouse
  3. Rachelle Wicks
  4. David Trembath

Abstract

Abstract Objectives Clinical decision support systems (CDSS) are increasingly utilised within healthcare settings to enhance decision making. However, few studies have investigated their application in the context of clinical services for autistic people, with no research to date exploring the perspectives of the key stakeholders who are, or in the future may be, impacted by their use. Given the importance of stakeholder perspectives in ensuring that CDSSs are relevant, feasible, and acceptable to those who use them, the aim of this study was to examine the views of key stakeholders in relation to support preferences and a proposed CDSS intended to aide in the selection of the most appropriate supports for autistic children. Method Using a co-designed, mixed-methods approach, 20 participants comprising autistic adults, parents of autistic children, and practitioners providing services to autistic children were invited to participate in focus groups, or an open-ended online survey, to explore views regarding support provision and any opportunities, barriers, recommendations, and support for the use of CDSSs in clinical practice. Results Participants highlighted potential benefits of using a CDSS in clinical practice, such as creating efficiencies and consistency in decision making when selecting therapies and supports, provided it was part of a holistic approach to working with autistic children. Potential barriers largely centred on concerns about the safety of data to be utilised within the system. Conclusions The findings indicate that CDSS have the potential to play a valuable role in selecting supports for autistic children, providing appropriate safeguarding occurs.

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These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:31.

Cited references
21
Total cited references integrated for this publication.
Cited references with an identified autistic author
3 / 21 (14.3%)
Cited author occurrences identified as autistic
3 / 73 (4.1%)
Among occurrences linked to AutiHub author records: 3 / 15 (20.0%). Distinct cited authors identified as autistic: 3 / 73 (4.1%).
Cited author occurrences linked to AutiHub author records
15 / 73 (20.5%)
Distinct linked cited authors: 15 / 73 (20.5%)
Linked cited-author occurrences not identified as autistic
12 / 15 (80.0%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 12 / 73 (16.4%). Distinct linked cited authors not identified as autistic: 12 / 15 (80.0%).
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