Cyborg Assemblages: How autistic adults construct sociotechnical networks to support cognitive function
Williams, A. & Park, C. (2023). Cyborg Assemblages: How autistic adults construct sociotechnical networks to support cognitive function. Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems, 1-15. https://doi.org/10.1145/3544548.3581556
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Abstract
Autism has become a popular context for accessible technology researchers, yet a majority of HCI projects for autism and ADHD do not engage in participatory methods or otherwise involve disabled stakeholders in the project and research design. Prior inquiry has identified executive function as a common difficulty for which technologies may provide novel benefits. In this study, we explore how autistic adults currently use technologies, broadly defined, to augment executive function and support themselves in day-to-day tasks. We collect qualitative data from narratives elicited during informal asynchronous interviews to conduct a digital ethnomethodology. Following from principles of Design Justice, crip technoscience, and cyborg assemblage theory, we investigate how autistic adults articulate their own sociotechnical environments into technologically mediated assemblages of executive function and interpersonal webs of care. These patterns of sociotechnical formation inform future work in research and design for tools that can mediate executive function for all users.
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-
Yasaman Hashemian , Marientina Gotsis (2013). Adventurous Dreaming Highflying Dragon . Proceedings of the 4th Conference on Wireless Health, 1-2. ACM.Crossref OpenAlex OpenCitations
-
Muhammad Haziq Lim Abdullah , Margot Brereton (2015). MyCalendar . Proceedings of the Annual Meeting of the Australian Special Interest Group for Computer Human Interaction, 1-9. ACM.Crossref OpenAlex OpenCitations
-
David Martin , Ian Sommerville (2004). Patterns of cooperative interaction . ACM Transactions on Computer-Human Interaction, 11(1), 59-89. Association for Computing Machinery (ACM).Crossref OpenAlex OpenCitations
-
Shaowen Bardzell , Jeffrey Bardzell (2011). Towards a feminist HCI methodology . Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, 675-684. ACM.Crossref OpenAlex OpenCitations
-
Acevedo Sara Maria (2018). Open Access Graduate Works. Retrieved . Open Access Graduate Works. Retrieved.Type: OtherCrossref
-
Yvonne Rogers (2012). HCI Theory: Classical, Modern, and Contemporary . Synthesis Lectures on Human-Centered Informatics, 5(2), 1-129. Springer Science and Business Media LLC.Crossref OpenCitations
-
Jennifer Mankoff , Gillian R. Hayes , Devva Kasnitz (2010). Disability studies as a source of critical inquiry for the field of assistive technology . Proceedings of the 12th international ACM SIGACCESS conference on Computers and accessibility, 3-10. ACM.Crossref OpenAlex OpenCitations
-
Asasumasu Kassiane (2012). Retrieved . Retrieved.Type: OtherCrossref
-
Aimi Hamraie , Kelly Fritsch (2019). Crip Technoscience Manifesto . Catalyst: Feminism, Theory, Technoscience, 5(1), 1-33. University of Toronto Libraries - UOTL.Crossref OpenAlex OpenCitations
-
Lisa Gilotty , Lauren Kenworthy , Lisa Sirian , David O. Black , Ann E. Wagner (2002). Adaptive Skills and Executive Function in Autism Spectrum Disorders . Child Neuropsychology, 8(4), 241-248. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Brandon S. Aylward , Diana E. Gal-Szabo , Sharief Taraman (2021). Racial, Ethnic, and Sociodemographic Disparities in Diagnosis of Children with Autism Spectrum Disorder . Journal of Developmental & Behavioral Pediatrics, 42(8), 682-689. Ovid Technologies (Wolters Kluwer Health).Crossref OpenAlex OpenCitations
-
Anna Williams *Autistic author. Learn more… , Juan E. Gilbert (2020). Perseverations of the academy: A survey of wearable technologies applied to autism intervention . International Journal of Human-Computer Studies, 143, 102485. Elsevier BV.
-
Andrea Ridgway , John Northup , Angie Pellegrin , Robert LaRue , Anne Hightsoe (2003). Effects of Recess on the Classroom Behavior of Children With and Without Attention-Deficit Hyperactivity Disorder. School Psychology Quarterly, 18(3), 253-268. American Psychological Association (APA).Crossref OpenAlex OpenCitations
-
Lauren Kenworthy , Laura G. Anthony , Daniel Q. Naiman , Lynn Cannon , Meagan C. Wills , Caroline Luong‐Tran et al. (2014). Randomized controlled effectiveness trial of executive function intervention for children on the autism spectrum . Journal of Child Psychology and Psychiatry, 55(4), 374-383. Wiley.Crossref OpenAlex OpenCitations
-
Cynthia L. Bennett , Daniela K. Rosner (2019). The Promise of Empathy . Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems, 1-13. ACM.Crossref OpenAlex OpenCitations
-
Cella M Sum , Rahaf Alharbi , Franchesca Spektor , Cynthia L Bennett , Christina N Harrington , Katta Spiel et al. (2022). Dreaming Disability Justice in HCI . CHI Conference on Human Factors in Computing Systems Extended Abstracts, 1-5. ACM.Crossref OpenAlex OpenCitations
-
Jennifer A. Rode (2011). Reflexivity in digital anthropology . Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, 123-132. ACM.Crossref OpenAlex OpenCitations
-
Monique Botha *Autistic author. Learn more… , David M. Frost (2020). Extending the Minority Stress Model to Understand Mental Health Problems Experienced by the Autistic Population . Society and Mental Health, 10(1), 20-34. SAGE Publications.
-
Lisa M. Tillmann-Healy (2003). Friendship as Method . Qualitative Inquiry, 9(5), 729-749. SAGE Publications.Crossref OpenAlex OpenCitations
-
Peter Francis , David Mellor , Lucy Firth (2009). Techniques and Recommendations for the Inclusion of Users with Autism in the Design of Assistive Technologies . Assistive Technology, 21(2), 57-68. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Louanne Boyd , Kathryn E. Ringland , Oliver L. Haimson , Helen Fernandez , Maria Bistarkey , Gillian R. Hayes (2015). Evaluating a Collaborative iPad Game's Impact on Social Relationships for Children with Autism Spectrum Disorder . ACM Transactions on Accessible Computing, 7(1), 1-18. Association for Computing Machinery (ACM).Crossref OpenAlex OpenCitations
-
Kathryn E. Ringland , Christine T. Wolf , Louanne Boyd , Mark S. Baldwin , Gillian R. Hayes (2016). Would You Be Mine . Proceedings of the 18th International ACM SIGACCESS Conference on Computers and Accessibility, 33-41. ACM.Crossref OpenAlex OpenCitations
-
Virginia Braun , Victoria Clarke (2019). Reflecting on reflexive thematic analysis . Qualitative Research in Sport, Exercise and Health, 11(4), 589-597. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Jasbir K. Puar (2012). “I would rather be a cyborg than a goddess”: Becoming-Intersectional in Assemblage Theory . philoSOPHIA, 2(1), 49-66. Project MUSE.OpenCitations
-
Oren Zuckerman , Ayelet Gal-Oz , Neta Tamir , Daphne Kopelman-Rubin (2015). Initial validation of an assistive technology to enhance executive functioning among children with ADHD . Proceedings of the 14th International Conference on Interaction Design and Children, 299-302. ACM.Crossref OpenAlex OpenCitations
-
Virginia Braun , Victoria Clarke (2021). One size fits all? What counts as quality practice in (reflexive) thematic analysis? Qualitative Research in Psychology, 18(3), 328-352. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Emily White , Gregory L. Wallace , Julia Bascom *Autistic author. Learn more… , Anna Chelsea Armour , Kelly Register‐Brown , Haroon Popal et al. (2017). Sex differences in parent‐reported executive functioning and adaptive behavior in children and young adults with autism spectrum disorder . Autism Research, 10(10), 1653-1662. Wiley.
-
Jennifer A. Rode (2011). A theoretical agenda for feminist HCI . Interacting with Computers, 23(5), 393-400. Oxford University Press (OUP).Crossref OpenAlex OpenCitations
-
Virginia Braun , Victoria Clarke (2021). Can I use TA? Should I use TA? Should I not use TA? Comparing reflexive thematic analysis and other pattern‐based qualitative analytic approaches . Counselling and Psychotherapy Research, 21(1), 37-47. Wiley.Crossref OpenAlex OpenCitations
-
Wesley Vernon (2009). The Delphi technique: A review . International Journal of Therapy and Rehabilitation, 16(2), 69-76. Mark Allen Group.Crossref OpenAlex OpenCitations
-
Braun Virginia (2022). Retrieved . Retrieved.Type: OtherCrossref
-
Katta Spiel , Emeline Brulé , Christopher Frauenberger , Gilles Bailly , Geraldine Fitzpatrick (2018). Micro-ethics for participatory design with marginalised children . Proceedings of the 15th Participatory Design Conference: Full Papers - Volume 1, 1-12. ACM.Crossref OpenAlex OpenCitations
-
Sarah Cassidy , Paul Bradley , Janine Robinson , Carrie Allison , Meghan McHugh , Simon Baron-Cohen (2014). Suicidal ideation and suicide plans or attempts in adults with Asperger's syndrome attending a specialist diagnostic clinic: a clinical cohort study . The Lancet Psychiatry, 1(2), 142-147. Elsevier BV.Crossref OpenAlex OpenCitations
-
Brule Emeline (2020). Design and Society. Retrieved . Design and Society. Retrieved.Type: OtherCrossref
-
Martin Cederlöf , Henrik Larsson , Paul Lichtenstein , Catarina Almqvist , Eva Serlachius , Jonas F. Ludvigsson (2016). Nationwide population-based cohort study of psychiatric disorders in individuals with Ehlers–Danlos syndrome or hypermobility syndrome and their siblings . BMC Psychiatry, 16(1), 207-207. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Orad Weisberg , Ayelet GalOz , Ruth Berkowitz , Noa Weiss , Oran Peretz , Shlomi Azoulai et al. (2014). TangiPlan . Proceedings of the 2014 conference on Interaction design and children, 293-296. ACM.Crossref OpenAlex OpenCitations
-
Sarah Cassidy , Louise Bradley , Rebecca Shaw , Simon Baron-Cohen (2018). Risk markers for suicidality in autistic adults . Molecular Autism, 9(1), 42. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Suvi Pihkala , Helena Karasti (2016). Reflexive engagement . Proceedings of the 14th Participatory Design Conference: Full papers - Volume 1, 21-30. ACM.Crossref OpenAlex OpenCitations
-
J. C. R. Licklider (1960). Man-Computer Symbiosis . IRE Transactions on Human Factors in Electronics, HFE-1(1), 4-11. Institute of Electrical and Electronics Engineers (IEEE).Crossref OpenAlex OpenCitations
-
Elizabeth Pellicano , Adam Dinsmore , Tony Charman (2014). What should autism research focus upon? Community views and priorities from the United Kingdom . Autism, 18(7), 756-770. SAGE Publications.
-
Network Design Justice (2018). Design Justice Network. Retrieved . Design Justice Network. Retrieved.Type: OtherCrossref
-
Paul Dourish (2006). Implications for design . Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, 541-550. ACM.Crossref OpenAlex OpenCitations
-
Anna Williams *Autistic author. Learn more… , Kiana Alikhademi , Juan E. Gilbert (2022). Design of a toolkit for real-time executive function assessment in custom-made virtual experiences and interventions . International Journal of Human-Computer Studies, 158, 102734. Elsevier BV.Crossref OpenAlex OpenCitations
-
Kathryn E. Ringland , Louanne Boyd , Heather Faucett , Amanda L.L. Cullen , Gillian R. Hayes (2017). Making in Minecraft . Proceedings of the 2017 Conference on Interaction Design and Children, 340-345. ACM.Crossref OpenAlex OpenCitations
-
Kathryn E. Ringland , Christine T. Wolf , Heather Faucett , Lynn Dombrowski , Gillian R. Hayes (2016). "Will I always be not social?" . Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems, 1256-1269. ACM.Crossref OpenAlex OpenCitations
-
Anna Williams *Autistic author. Learn more… , Juan E. Gilbert (2019). Cyborg Perspectives on Computing Research Reform . Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems, 1-11. ACM.Crossref OpenAlex OpenCitations
-
Christina Seery , Margo Wrigley , Fiona O'Riordan , Ken Kilbride , Jessica Bramham (2022). What adults with ADHD want to know: A Delphi consensus study on the psychoeducational needs of experts by experience . Health Expectations, 25(5), 2593-2602. Wiley.Crossref OpenAlex OpenCitations
-
Katta Spiel , Eva Hornecker , Anna Williams *Autistic author. Learn more… , Judith Good (2022). ADHD and Technology Research – Investigated by Neurodivergent Readers . CHI Conference on Human Factors in Computing Systems, 1-21. ACM.
-
Marianthi Kourti *Autistic author. Learn more… (2021). Working with Autistic Transgender and Non-Binary People . Jessica Kingsley Publishers.Crossref OpenAlex
-
David Zimmerman , Tamara Ownsworth , Analise O’Donovan , Jacqueline Roberts , Matthew J. Gullo (2017). Associations between executive functions and mental health outcomes for adults with autism spectrum disorder . Psychiatry Research, 253, 360-363. Elsevier BV.Crossref OpenAlex OpenCitations
-
Beibin Li , Adham Atyabi , Minah Kim , Erin Barney , Amy Yeojin Ahn , Yawen Luo et al. (2018). Social Influences on Executive Functioning in Autism . Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems, 1-13. ACM.Crossref OpenAlex OpenCitations
-
Katta Spiel , Laura Malinverni , Judith Good , Christopher Frauenberger (2017). Participatory Evaluation with Autistic Children . Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems, 5755-5766. ACM.Crossref OpenAlex OpenCitations
-
Kelly Mack , Emma McDonnell , Dhruv Jain , Lucy Lu Wang , Jon E. Froehlich , Leah Findlater (2021). What Do We Mean by “Accessibility Research”? Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems, 1-18. ACM.Crossref OpenAlex OpenCitations
-
Allison B. Ratto , Lauren Kenworthy , Benjamin E. Yerys , Julia Bascom *Autistic author. Learn more… , Andrea Trubanova Wieckowski , Susan W. White et al. (2018). What About the Girls? Sex-Based Differences in Autistic Traits and Adaptive Skills . Journal of Autism and Developmental Disorders, 48(5), 1698-1711. Springer Science and Business Media LLC.
-
Rachael Maun , Marc Fabri , Pip Trevorrow (2021). Adapting Participatory Design Activities for Autistic Adults: A Review . Lecture Notes in Computer Science, 300-314. Springer International Publishing.Crossref OpenAlex OpenCitations
-
Moushumi Sharmin , Md Monsur Hossain , Abir Saha , Maitraye Das , Margot Maxwell , Shameem Ahmed (2018). From Research to Practice . Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems, 1-16. ACM.Crossref OpenAlex OpenCitations
-
Meltzer Lynn (2018). Education: From Theory to Practice . Education: From Theory to Practice.Type: OtherCrossref
-
Mingus Mia (2011). Leaving Evidence. Retrieved . Leaving Evidence. Retrieved.Type: OtherCrossref
-
Montgomery Cal (2019). Retrieved . Retrieved.Type: OtherCrossref
-
Lucy Suchman (2006). Human-Machine Reconfigurations . Cambridge University Press.Crossref OpenAlex OpenCitations
-
Piepzna-Samarasinha Leah Lakshmi (2018). Care Work: Dreaming Disability Justice . Care Work: Dreaming Disability Justice.Type: OtherCrossref
-
Katta Spiel , Christopher Frauenberger , Os Keyes , Geraldine Fitzpatrick (2019). Agency of Autistic Children in Technology Research—A Critical Literature Review . ACM Transactions on Computer-Human Interaction, 26(6), 1-40. Association for Computing Machinery (ACM).Crossref OpenAlex OpenCitations
-
(n.d.). Jasbir K. Puar. 2011. “I would rather be a cyborg than a goddess”: Becoming-intersectional in assemblage theory. philoSOPHIA 2 1: 49–66. https://doi.org/10 . 1353/phi. 2012. 0006Crossref
-
Dubravka Miljković , Marina Đuranović , Tomislava Vidić (2019). Education - from theory to practice .Type: Article OpenAlex: https://openalex.org/W2948274809OpenAlex
-
Katta Spiel , Kathrin Gerling , Cynthia L. Bennett , Emeline Brulé , Anna Williams *Autistic author. Learn more… , Jennifer Rode et al. (2020). Nothing About Us Without Us . Extended Abstracts of the 2020 CHI Conference on Human Factors in Computing Systems, 1-8. ACM.Crossref OpenAlex OpenCitations
-
Epure, Elena, Viorica , Kille, Benjamin , Ingvaldsen, Jon, Espen , Deneckere, Rebecca , Salinesi, Camille , Albayrak, Sahin (2017). Challenging common bolus advisor for self-monitoring type-I diabetes patients using Reinforcement Learning . HAL (Le Centre pour la Communication Scientifique Directe).Type: Other DOI: 10.1145/nnnnnnn.nnnnnnn OpenAlex: https://openalex.org/W2966329817 Crossref: not found DataCite: not foundCrossref OpenAlex
-
Alise de Bie , Kate Brown , Adam Grearson , Amanda Ramkishun (2020). Care work: dreaming disability justice . Disability & Society, 35(2), 341-343. Informa UK Limited.OpenAlex
-
Julia Miele Rodas (2018). Autistic Disturbances . University of Michigan Press.Crossref OpenAlex OpenCitations
-
Anna Williams *Autistic author. Learn more… (2019). Metaeugenics and Metaresistance: From Manufacturing the ‘Includeable Body’ to Walking Away from the Broom Closet . Canadian Journal of Children's Rights / Revue canadienne des droits des enfants, 6(1), 60-77. Carleton University.
-
Dantas da Silva, Rodrigo , Pereira de Araújo, Jean, Jar , Ferreira, Álvaro , de Paiva, Pires , Alexsandro, Ricardo , Valentim, Medeiros et al. (2020). A Big Data Architecture to a Multiple Purpose in Healthcare Surveillance: The Brazilian Syphilis Case . HAL (Le Centre pour la Communication Scientifique Directe).Type: Other OpenAlex: https://openalex.org/W3002424897OpenAlex
-
Anon Ymous , Katta Spiel , Os Keyes , Anna Williams *Autistic author. Learn more… , Judith Good , Eva Hornecker et al. (2020). "I am just terrified of my future" Epistemic Violence in Disability Related Technology Research . Extended Abstracts of the 2020 CHI Conference on Human Factors in Computing Systems, 1-16. ACM.Crossref OpenAlex OpenCitations
-
Jonathan (2007). Smith and Mike Osborn . Smith and Mike Osborn.Type: OtherCrossref
-
Anna Williams *Autistic author. Learn more… , Kiana Alikhademi , Imani Munyaka , Juan E. Gilbert (2022). MetaCogs: Mitigating Executive Dysfunction via Agent-based Modeling for Metacognitive Strategy Development . ACM Transactions on Accessible Computing, 15(3), 1-32. Association for Computing Machinery (ACM).Crossref OpenAlex OpenCitations
-
(2019). NeuroClastic. Retrieved . NeuroClastic. Retrieved.Type: OtherCrossref
-
Jillian Weise The Cyborg (2022). The Pandemic Made Me Realize My Brain Is Already Cyborg. WIRED - Ideas. Retrieved . The Pandemic Made Me Realize My Brain Is Already Cyborg. WIRED - Ideas. Retrieved.Type: OtherCrossref
-
Williams Rua M. (2019). Gilbert . Gilbert.Type: OtherCrossref