Co-creating the Stress Autism Mate (SAM): development of an mHealth application for autistic adults using a design thinking approach

van Asselt, A. & Roke, Y. (2025). Co-creating the Stress Autism Mate (SAM): development of an mHealth application for autistic adults using a design thinking approach. Health Psychology and Behavioral Medicine, 13(1), 2597607-2597607. https://doi.org/10.1080/21642850.2025.2597607

Publication date: 7 Dec 2025 Added to AutiHub: 6 Aug 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
2
Publication authors identified as autistic
1 / 2 (50.0%)

Abstract

Background: Mobile health (mHealth) applications are becoming increasingly popular for delivering mental health support, yet insights on how to tailor them effectively for autistic individuals remain limited. Methods: This paper describes the co-creation process of the Stress Autism Mate (SAM), a free, evidence-based stress management application for autistic adults. Results: Development was guided by the five stages of the Design Thinking framework: Empathise, Define, Ideate, Prototype, and Test. Various challenges encountered over seven years of development are outlined, along with the iterative refinements made to address them. Based on continuous feedback from autistic adults, development emphasised a minimalist, predictable interface, essential personalisation options, and stress-related insights readily applicable to daily life. Discussion: The lessons learned may offer practical guidance for designing tailored mHealth applications for autistic adults and other populations with specific needs or preferences.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Bibliography inclusion overview

These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:31.

Cited references
41
Total cited references integrated for this publication.
Cited references with an identified autistic author
3 / 41 (7.3%)
Cited author occurrences identified as autistic
5 / 156 (3.2%)
Among occurrences linked to AutiHub author records: 5 / 40 (12.5%). Distinct cited authors identified as autistic: 5 / 148 (3.4%).
Cited author occurrences linked to AutiHub author records
40 / 156 (25.6%)
Distinct linked cited authors: 34 / 148 (23.0%)
Linked cited-author occurrences not identified as autistic
35 / 40 (87.5%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 35 / 156 (22.4%). Distinct linked cited authors not identified as autistic: 29 / 34 (85.3%).
  1. Virginia Braun , Victoria Clarke (2006). Using thematic analysis in psychology . Qualitative Research in Psychology, 3(2), 77-101. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  2. Stephanie H. Ameis , Meng-Chuan Lai , Benoit H. Mulsant , Péter Szatmári (2020). Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond . Molecular Autism, 11(1), 61-61. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  3. Daehyoung Lee , Georgia C Frey , Donetta J Cothran , Jaroslaw Harezlak , Patrick C Shih (2022). Effects of a Gamified, Behavior Change Technique–Based Mobile App on Increasing Physical Activity and Reducing Anxiety in Adults With Autism Spectrum Disorder: Feasibility Randomized Controlled Trial . JMIR Formative Research, 6(7), e35701. JMIR Publications Inc..
    Type: Article DOI: 10.2196/35701 OpenAlex: https://openalex.org/W4285321274
    Crossref OpenAlex OpenCitations
  4. Maithilee Kunda , Ashok K. Goel (2011). Thinking in Pictures as a Cognitive Account of Autism . Journal of Autism and Developmental Disorders, 41(9), 1157-1177. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  5. Rosa Mª Baños , Rocío Herrero , Mª Dolores Vara (2022). What is the Current and Future Status of Digital Mental Health Interventions? The Spanish Journal of Psychology, 25, e5-e5. Cambridge University Press (CUP).
    Crossref OpenAlex OpenCitations
  6. Froukje Sleeswijk Visser , Pieter Jan Stappers , Remko van der Lugt , Elizabeth B-N Sanders (2005). Contextmapping: experiences from practice . CoDesign, 1(2), 119-149. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  7. Kamila Markram , Henry Markram (2010). The Intense World Theory – A Unifying Theory of the Neurobiology of Autism . Frontiers in Human Neuroscience, 4, 224-224. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  8. Bonouvrie J. Hogedoorn A. Demirel S. & Roke Y. (2025). Beweging stress en slaappatronen bij autistische mensen [Manuscript in preparation].
    Type: Other
    Crossref
  9. Amon Rapp , Federica Cena , Romina Castaldo , Roberto Keller , Maurizio Tirassa (2018). Designing technology for spatial needs: Routines, control and social competences of people with autism . International Journal of Human-Computer Studies, 120, 49-65. Elsevier BV.
    Crossref OpenAlex OpenCitations
  10. Kirsten Hoeberichts , Yvette Roke , Irene Niks , Peter N. van Harten (2024). The effect of the stress autism mate app on perceived stress, coping, and resilience in adults with autism: a single-case experimental design . Frontiers in Psychiatry, 15, 1347947-1347947. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  11. Valerie Gay , Peter Leijdekkers (2014). Design of emotion-aware mobile apps for autistic children . Health and Technology, 4(1), 21-26. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  12. Damen F. (2023). Stresssignalering in eigen regie: ervaringen van gebruikers van de stress autism mate . Sociale Psychiatrie, 42(1), 7.
    Type: Other
    Crossref
  13. Sevda Demirel , Yvette Roke , Adriaan W Hoogendoorn , Jamie Hoefakker , Kirsten Hoeberichts , Peter N van Harten (2024). Assessing the Effectiveness of STAPP@Work, a Self-Management Mobile App, in Reducing Work Stress and Preventing Burnout: Single-Case Experimental Design Study . Journal of Medical Internet Research, 26, e48883. JMIR Publications Inc..
    Type: Article DOI: 10.2196/48883 OpenAlex: https://openalex.org/W4390958110
    Crossref OpenAlex OpenCitations
  14. Anne Masi , Marilena M. DeMayo , Nicholas Glozier , Adam J. Guastella (2017). An Overview of Autism Spectrum Disorder, Heterogeneity and Treatment Options . Neuroscience Bulletin, 33(2), 183-193. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  15. Sander Van de Cruys , Kris Evers , Ruth Van der Hallen , Lien Van Eylen , Bart Boets , Lee de-Wit et al. (2014). Precise minds in uncertain worlds: Predictive coding in autism. Psychological Review, 121(4), 649-675. American Psychological Association (APA).
    Type: Article DOI: 10.1037/a0037665 OpenAlex: https://openalex.org/W2098533845
    Crossref OpenAlex OpenCitations
  16. M-A Edel , A Rudel , C Hubert , D Scheele , M Brüne , G Juckel et al. (2010). Alexithymia, emotion processing and social anxiety in adults with ADHD . European Journal of Medical Research, 15(9), 403-9. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  17. Emily R. Edwards , Nina L. J. Rose , Molly Gromatsky , Abigail Feinberg , David Kimhy , John T. Doucette et al. (2021). Alexithymia, Affective Lability, Impulsivity, and Childhood Adversity in Borderline Personality Disorder . Journal of Personality Disorders, 35(Supplement A), 114-131. Guilford Publications.
    Crossref OpenAlex OpenCitations
  18. Sun Jae Moon , Jinseub Hwang , Harrison Scott Hill , Ryan Kervin , Kirstin Brown Birtwell , John Torous et al. (2020). Mobile device applications and treatment of autism spectrum disorder: a systematic review and meta-analysis of effectiveness . Archives of Disease in Childhood, 105(5), 458-462. BMJ.
    Crossref OpenAlex OpenCitations
  19. Rachael Maun , Marc Fabri , Pip Trevorrow (2024). Participatory Methods to Engage Autistic People in the Design of Digital Technology: A Systematic Literature Review . Journal of Autism and Developmental Disorders, 54(8), 2960-2971. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  20. GGZ Standaarden. (2017). Zorgstandaarden: Autisme. https://www.ggzstandaarden.nl/zorgstandaarden/autisme/introductie
    Type: Other
    Crossref
  21. Catherine Lord , Traolach Brugha , Tony Charman , James Cusack *Autistic author. Learn more… , Guillaume Dumas , Thomas Frazier et al. (2020). Autism spectrum disorder . Nature Reviews Disease Primers, 6(1), 1. Springer Science and Business Media LLC.
    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
  22. Kirsten Hoeberichts , Yvette Roke , Irene Niks , Peter N. van Harten (2023). Use of a mHealth Mobile Application to Reduce Stress in Adults with Autism: a Pre-Post Pilot Study of the Stress Autism Mate (SAM) . Advances in Neurodevelopmental Disorders, 7(2), 268-276. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  23. Anoushka Thoen , Jean Steyaert , Kaat Alaerts , Kris Evers , Tine Van Damme (2023). A Systematic Review of Self-Reported Stress Questionnaires in People on the Autism Spectrum . Review Journal of Autism and Developmental Disorders, 10(2), 295-318. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  24. Jung Won Kim , Thuc-Quyen Nguyen , Shih Yee-Marie Tan Gipson , Ah Lahm Shin , John Torous (2018). Smartphone Apps for Autism Spectrum Disorder—Understanding the Evidence . Journal of Technology in Behavioral Science, 3(1), 1-4. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  25. Emma M. Jaisle , Nicole B. Groves , Katie E. Black , Michael J. Kofler (2023). Linking ADHD and ASD Symptomatology with Social Impairment: The Role of Emotion Dysregulation . Research on Child and Adolescent Psychopathology, 51(1), 3-16. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  26. Pernille Skovbo Rasmussen , Anne Katrine Pagsberg (2019). Customizing Methodological Approaches in Qualitative Research on Vulnerable Children with Autism Spectrum Disorders . Societies, 9(4), 75. MDPI AG.
    Crossref OpenAlex OpenCitations
  27. King R. (2017). Designing with Data: Improving the User Experience with a/b Testing. Designing with Data: Improving the User Experience with a/b Testing..
    Type: Other
    Crossref
  28. Clayton Lewis , Cathleen Wharton (1997). Cognitive Walkthroughs . In Handbook of Human-Computer Interaction (pp. 717-732). Elsevier.
    Crossref OpenAlex OpenCitations
  29. Kranenborg K. (2021). Doelgroepparticipatie bij de ontwikkeling van sam . ICThealth, 7(5), 46.
    Type: Other
    Crossref
  30. Melanie Pellecchia , Rinad S Beidas , Gwendolyn Lawson , Nathaniel J Williams , Max Seidman , John R Kimberly et al. (2020). Does implementing a new intervention disrupt use of existing evidence-based autism interventions? Autism, 24(7), 1713-1725. SAGE Publications.
    Crossref OpenAlex OpenCitations
  31. Kirsten L Spaargaren , Yvette Roke , Sander Begeer , Annemieke van Straten , Heleen Riper , Kirstin Greaves-Lord et al. (2025). A randomized controlled trial into the effectiveness of a mobile health application (SAM) to reduce stress and improve well-being in autistic adults . Autism, 29(10), 2588-2603. SAGE Publications.
    Crossref OpenAlex OpenCitations
  32. Lange Nielsen S. Korthé Carlsen C. Roke Y. Schaap J. Van Daele T. & Bernaerts S. (2025). Guideline for user participation: adapting digital mental health across borders. Interreg North Sea SUPER. https://www.interregnorthsea.eu/super/guidelines
    Type: Other
    Crossref
  33. Michael D. Wolcott , Nikki G. Lobczowski (2021). Using cognitive interviews and think-aloud protocols to understand thought processes . Currents in Pharmacy Teaching and Learning, 13(2), 181-188. Elsevier BV.
    Crossref OpenAlex OpenCitations
  34. Daehyoung Lee , Georgia C. Frey , Patrick C. Shih (2025). Gamified Mobile Health Strategies for Promoting Physical Activity in Autistic Adults . Exercise and Sport Sciences Reviews, 53(2), 68-76. Ovid Technologies (Wolters Kluwer Health).
    Crossref OpenAlex OpenCitations
  35. Heather J Nuske , David S. Mandell (2021). Digital health should augment (not replace) autism treatment providers . Autism, 25(7), 1825-1827. SAGE Publications.
    Crossref OpenAlex OpenCitations
  36. Xiongyi Liu , Wenbing Zhao , Quan Qi , Xiong Luo (2023). A Survey on Autism Care, Diagnosis, and Intervention Based on Mobile Apps: Focusing on Usability and Software Design . Sensors, 23(14), 6260. MDPI AG.
    Crossref OpenAlex OpenCitations
  37. Steindal K. (2013). 10th International Autism-Europe Congress . 10th International Autism-Europe Congress.
    Type: Other
    Crossref
  38. van Asselt A. (2025). User experiences of the mobile stress autism mate (SAM) application: A qualitative study among autistic adults not receiving mental health care . User experiences of the mobile stress autism mate (SAM) application: A qualitative study among autistic adults not receiving mental health care.
    Type: Other
    Crossref
  39. Van Zwieten M. (2020). SAM helpt mensen met autisme omgaan met stress . ICThealth, 6(1), 48.
    Type: Other
    Crossref