Participatory design of an autism community network to enhance community participation, health, and well-being

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Carroll, J. M., Burge, J. D., Robertson, S., & Rosson, M. B. (2010). Participatory design of an autism community network to enhance community participation, health, and well-being. Proceedings of the 1st ACM International Health Informatics Symposium, 415-419. https://doi.org/10.1145/1882992.1883054

Publication date: 11 Nov 2010 Added to AutiHub: 6 Jul 2026 Type: Article Article language: English
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Authors

Publication authors
4
Publication authors identified as autistic
1 / 4 (25.0%)
  1. John M. Carroll
  2. Jamika D. Burge
  3. Scott Robertson *
  4. Mary Beth Rosson

Abstract

We present a socio-technical design that illustrates how a community network health intervention can mobilize human resources across social boundaries, and enhance health and well-being for people on both sides of the boundary. We specifically address how to reduce the barriers to social engagement experienced by autistic individuals who want more supportive life opportunities. We focus on the social milieu of an American college town, on traditional town-gown boundaries, and on possibilities for integrating social resources within this context. Our design adopts community networking to not only connect autistic persons living within an existing social milieu (university undergraduates; local autistic children and their families), but also to integrate individuals across milieus. Our key design idea is that facilitating cross-milieu interactions can initiate and sustain a virtuous cycle of being helped by helping others.

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These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:31.

Cited references
47
Total cited references integrated for this publication.
Cited references with an identified autistic author
0 / 47 (0.0%)
Cited author occurrences identified as autistic
0 / 91 (0.0%)
Among occurrences linked to AutiHub author records: 0 / 15 (0.0%). Distinct cited authors identified as autistic: 0 / 73 (0.0%).
Cited author occurrences linked to AutiHub author records
15 / 91 (16.5%)
Distinct linked cited authors: 3 / 73 (4.1%)
Linked cited-author occurrences not identified as autistic
15 / 15 (100.0%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 15 / 91 (16.5%). Distinct linked cited authors not identified as autistic: 3 / 3 (100.0%).
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