Conception participative d’un réseau communautaire de l’autisme afin d’améliorer la participation communautaire, la santé et le bien-être

Titre original en anglais : Participatory design of an autism community network to enhance community participation, health, and well-being

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Carroll, J. M., Burge, J. D., Robertson, S., & Rosson, M. B. (2010). Participatory design of an autism community network to enhance community participation, health, and well-being. Proceedings of the 1st ACM International Health Informatics Symposium, 415-419. https://doi.org/10.1145/1882992.1883054

Date de publication: 11/11/2010 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
1 / 4 (25,0 %)
  1. John M. Carroll
  2. Jamika D. Burge
  3. Scott Robertson *
  4. Mary Beth Rosson

Résumé

Nous présentons une conception sociotechnique qui illustre comment une intervention de santé fondée sur un réseau communautaire peut mobiliser des ressources humaines au-delà des frontières sociales, et améliorer la santé et le bien-être des personnes des deux côtés de la frontière. Nous abordons spécifiquement la manière de réduire les obstacles à l’engagement social rencontrés par les personnes autistes qui souhaitent davantage de possibilités de vie favorables. Nous nous concentrons sur le milieu social d’une ville universitaire américaine, sur les frontières traditionnelles entre la ville et l’université, et sur les possibilités d’intégrer des ressources sociales dans ce contexte. Notre conception adopte la mise en réseau communautaire non seulement pour relier les personnes autistes vivant au sein d’un milieu social existant (étudiants universitaires de premier cycle ; enfants autistes locaux et leurs familles), mais aussi pour intégrer des individus entre les milieux. Notre idée principale de conception est que la facilitation des interactions entre les milieux peut amorcer et maintenir un cercle vertueux consistant à être aidé en aidant les autres.

We present a socio-technical design that illustrates how a community network health intervention can mobilize human resources across social boundaries, and enhance health and well-being for people on both sides of the boundary. We specifically address how to reduce the barriers to social engagement experienced by autistic individuals who want more supportive life opportunities. We focus on the social milieu of an American college town, on traditional town-gown boundaries, and on possibilities for integrating social resources within this context. Our design adopts community networking to not only connect autistic persons living within an existing social milieu (university undergraduates; local autistic children and their families), but also to integrate individuals across milieus. Our key design idea is that facilitating cross-milieu interactions can initiate and sustain a virtuous cycle of being helped by helping others.

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Références citées
47
Nombre total de références citées intégrées pour cette publication.
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0 / 47 (0,0 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
0 / 91 (0,0 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 0 / 15 (0,0 %). Auteurices cité·es distinct·es identifié·es comme autistes : 0 / 73 (0,0 %).
Occurrences citées rattachées à la base AutiHub
15 / 91 (16,5 %)
Auteurices cité·es distinct·es rattaché·es : 3 / 73 (4,1 %)
Occurrences rattachées, non identifiées comme autistes
15 / 15 (100,0 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 15 / 91 (16,5 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 3 / 3 (100,0 %).
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