Examen des obstacles et des facteurs facilitant la prestation de services de santé mentale aux personnes autistes en Irlande : une enquête auprès de psychiatres

Titre original en anglais : Examining the barriers and facilitators to mental health service provision for autistic people in Ireland: a survey of psychiatrists

Sources de métadonnées utilisées pour cette référence

OpenAlex Crossref OpenCitations
En savoir plus sur les sources utilisées

Gallagher, L., Crane, L., Dinneen, T., Ibrahim, N., Mulryan, N., Bolshakova, N., Harris, A. G., O’Rourke, L., & Pellicano, E. (2025). Examining the barriers and facilitators to mental health service provision for autistic people in Ireland: a survey of psychiatrists. Irish Journal of Psychological Medicine, 42(3), 182-190. https://doi.org/10.1017/ipm.2025.9

Date de publication: 04/04/2025 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
Source OpenAlex Source éditeur (DOI) Texte intégral

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
9
Auteur·ices de la publication identifié·es comme autistes
1 / 9 (11,1 %)
  1. Louise Gallagher
  2. Laura Crane
  3. Thomas Dinneen
  4. Noha Ibrahim
  5. Niamh Mulryan
  1. Nadia Bolshakova
  2. Adam G. Harris *
  3. Linda O’Rourke
  4. Elizabeth Pellicano

Résumé

Contexte : Les personnes autistes présentent des niveaux élevés de mauvaise santé mentale et un risque accru de suicide tout au long de la vie. Pourtant, les personnes autistes signalent des difficultés à communiquer avec les professionnels de santé et à accéder à un éventail de services de santé. Parallèlement, les professionnels de la santé mentale d'autres pays font état de liens entre leur confiance lorsqu'ils travaillent avec des patients autistes et le degré de connaissances et de formation sur l'autisme auxquels ils peuvent accéder. Méthodes : Nous avons cherché à examiner quels facteurs aidaient ou entravaient les collègues irlandais de la santé mentale lorsqu'ils travaillaient avec des usagers autistes des services de santé. Une enquête en ligne utilisant des mesures quantitatives et qualitatives a été diffusée auprès de psychiatres membres du College of Psychiatrists of Ireland, tant en formation qu'au niveau de consultant, d'avril 2021 à avril 2022. Résultats : Les connaissances sur l'autisme étaient élevées parmi les psychiatres (n = 140), mais les scores d'auto-efficacité étaient variables, en particulier en ce qui concerne les parcours de soins. L'auto-efficacité était meilleure chez les psychiatres dont la file active comprenait des enfants et des jeunes ou des personnes présentant des déficiences intellectuelles concomitantes. Trois thèmes qualitatifs clés ont émergé concernant les capacités et la formation des professionnels de la santé mentale, les moyens d'améliorer la prestation de services de santé mentale pour les personnes autistes, ainsi que le besoin crucial de co-création et de soins affirmatifs de la neurodiversité. Conclusions : L'étude a mis en évidence des défis systémiques et professionnels critiques dans la fourniture de soins de santé mentale aux personnes autistes en Irlande. Nous formulons des recommandations visant à réduire ces défis et à permettre le développement de soins inclusifs fondés sur des données probantes destinés aux personnes autistes.

Background: Autistic people have high levels of mental ill-health and an increased risk of suicide across the lifespan. Yet autistic people report difficulties communicating with healthcare professionals and accessing a range of healthcare services. At the same time, mental healthcare workers in other countries are reporting links between confidence when working with autistic patients and the degree of autism knowledge and training they can access. Methods: We sought to examine what factors helped or hindered Irish mental healthcare colleagues when working with autistic healthcare service users. An online survey using quantitative and qualitative metrics was circulated among psychiatrists who are members of the College of Psychiatrists of Ireland, both in training and at consultant level, from April 2021 to April 2022. Results: Knowledge of autism was high among psychiatrists (n = 140), but self-efficacy scores were variable, particularly in relation to care pathways. Self-efficacy was better among psychiatrists with caseloads of children and youth or individuals with co-occurring intellectual disabilities. Three key qualitative themes emerged relating to capacity and training of mental health professionals, ways to improve mental health services provision for autistic individuals and also the critical need for co-creation and neurodiversity affirmative care. Conclusions: The study highlighted critical systemic and professional challenges in providing mental health care to autistic people in Ireland. We provide recommendations for reducing these challenges and for enabling the development of inclusive, evidenced-based care to autistic individuals.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
40
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
7 / 40 (17,5 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
11 / 192 (5,7 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 11 / 78 (14,1 %). Auteurices cité·es distinct·es identifié·es comme autistes : 8 / 169 (4,7 %).
Occurrences citées rattachées à la base AutiHub
78 / 192 (40,6 %)
Auteurices cité·es distinct·es rattaché·es : 58 / 169 (34,3 %)
Occurrences rattachées, non identifiées comme autistes
67 / 78 (85,9 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 67 / 192 (34,9 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 50 / 58 (86,2 %).
  1. Ousseny Zerbo , Maria L Massolo , Yinge Qian , Lisa A. Croen (2015). A Study of Physician Knowledge and Experience with Autism in Adults in a Large Integrated Healthcare System . Journal of Autism and Developmental Disorders, 45(12), 4002-4014. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-015-2579-2 OpenAlex: https://openalex.org/W1258271155
    Crossref OpenAlex OpenCitations
  2. Pia Bradshaw , Elizabeth Pellicano , Mieke van Driel , Anna Urbanowicz (2019). How Can We Support the Healthcare Needs of Autistic Adults Without Intellectual Disability? Current Developmental Disorders Reports, 6(2), 45-56. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40474-019-00159-9 OpenAlex: https://openalex.org/W2944177211
    Crossref OpenAlex OpenCitations
  3. Victoria Newell , Lucy Phillips , Chris Jones , Ellen Townsend , Caroline Richards , Sarah Cassidy (2023). A systematic review and meta-analysis of suicidality in autistic and possibly autistic people without co-occurring intellectual disability . Molecular Autism, 14(1), 12-12. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s13229-023-00544-7 OpenAlex: https://openalex.org/W4324354182
    Crossref OpenAlex OpenCitations
  4. Lauren I. Brookman-Frazee , Amy Drahota , Nicole Stadnick (2012). Training Community Mental Health Therapists to Deliver a Package of Evidence-Based Practice Strategies for School-Age Children with Autism Spectrum Disorders: A Pilot Study . Journal of Autism and Developmental Disorders, 42(8), 1651-1661. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-011-1406-7 OpenAlex: https://openalex.org/W2024314044
    Crossref OpenAlex OpenCitations
  5. Sheena K. Au‐Yeung , Louise Bradley , Ashley Robertson , Rebecca Shaw , Simon Baron-Cohen , Sarah Cassidy (2019). Experience of mental health diagnosis and perceived misdiagnosis in autistic, possibly autistic and non-autistic adults . Autism, 23(6), 1508-1518. SAGE Publications.
    Type: Article DOI: 10.1177/1362361318818167 OpenAlex: https://openalex.org/W2905534692
    Crossref OpenAlex OpenCitations
  6. Tatja Hirvikoski , Ellenor Mittendorfer-Rutz , Marcus Boman , Henrik Larsson , Paul Lichtenstein , Sven Bölte (2016). Premature mortality in autism spectrum disorder . British Journal of Psychiatry, 208(3), 232-238. Royal College of Psychiatrists.
    Type: Article DOI: 10.1192/bjp.bp.114.160192 OpenAlex: https://openalex.org/W2168424072
    Crossref OpenAlex OpenCitations
  7. Aalia Akhtar Hayat , Areej Habib Meny , Nabila Salahuddin , Faisal M. Alnemary , Kumar-Ricky Ahuja , Muhammad Waqar Azeem (2019). Assessment of knowledge about childhood autism spectrum disorder among healthcare workers in Makkah-Saudi Arabia . Pakistan Journal of Medical Sciences, 35(4), 951-957. Pakistan Journal of Medical Sciences.
    Type: Article DOI: 10.12669/pjms.35.4.605 OpenAlex: https://openalex.org/W2954187849
    Crossref OpenAlex OpenCitations
  9. David Mason , Helen McConachie , Deborah Garland , Alex Petrou , Jacqui Rodgers , Jeremy R. Parr (2018). Predictors of quality of life for autistic adults . Autism Research, 11(8), 1138-1147. Wiley.
    Type: Article DOI: 10.1002/aur.1965 OpenAlex: https://openalex.org/W2800039438
    Crossref OpenAlex OpenCitations
  10. Shenae Calleja , Fakir M. Amirul Islam , Jonathan Kingsley , Rachael McDonald (2020). Healthcare access for autistic adults . Medicine, 99(29), e20899. Ovid Technologies (Wolters Kluwer Health).
    Type: Article DOI: 10.1097/md.0000000000020899 OpenAlex: https://openalex.org/W3043350455
    Crossref OpenAlex OpenCitations
  11. Silvana Unigwe , Carole Buckley , Laura Crane , Lorcan Kenny , Anna Remington , Elizabeth Pellicano (2017). GPs’ confidence in caring for their patients on the autism spectrum: an online self-report study . British Journal of General Practice, 67(659), e445-e452. Royal College of General Practitioners.
    Type: Article DOI: 10.3399/bjgp17x690449 OpenAlex: https://openalex.org/W2614102167
    Crossref OpenAlex OpenCitations
  12. Pia Bradshaw , Claire Pickett , Mieke L van Driel , Katie Brooker , Anna Urbanowicz (2021). Recognising, supporting and understanding Autistic adults in general practice settings . Australian Journal of General Practice, 50(3), 126-130. The Royal Australian College of General Practitioners.
    Type: Article DOI: 10.31128/ajgp-11-20-5722 OpenAlex: https://openalex.org/W3130006675
    Crossref OpenAlex OpenCitations
  13. Osnat Atun-Einy , Ayelet Ben-Sasson (2018). Pediatric allied healthcare professionals’ knowledge and self-efficacy regarding ASD . Research in Autism Spectrum Disorders, 47, 1-13. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2017.12.001 OpenAlex: https://openalex.org/W2777949567
    Crossref OpenAlex OpenCitations
  14. Kristy A. Anderson , Collette Sosnowy , Alice A. Kuo , Paul Shattuck (2018). Transition of Individuals With Autism to Adulthood: A Review of Qualitative Studies . Pediatrics, 141(Supplement_4), S318-S327. American Academy of Pediatrics (AAP).
    Type: Article DOI: 10.1542/peds.2016-4300i OpenAlex: https://openalex.org/W2796352845
    Crossref OpenAlex OpenCitations
  15. Louise Kirby , Katy-Louise Payne (2023). Knowledge of autism gained by learning from people through a local UK Autism Champion Network: A health and social care professional perspective . Autism, 27, 136236132311679. SAGE Publications.
    Type: Article DOI: 10.1177/13623613231167902 OpenAlex: https://openalex.org/W4367834236
    Crossref OpenAlex
  16. Laura Crane , I. A. Davidson , Rachel Prosser , Elizabeth Pellicano (2019). Understanding psychiatrists' knowledge, attitudes and experiences in identifying and supporting their patients on the autism spectrum: online survey . BJPsych Open, 5(3), e33-e33. Royal College of Psychiatrists.
    Type: Article DOI: 10.1192/bjo.2019.12 OpenAlex: https://openalex.org/W2935455368
    Crossref OpenAlex OpenCitations
  17. Virginia Braun , Victoria Clarke (2022). Thematic Analysis: A Practical Guide . QMiP Bulletin, 1(33), 46-50. British Psychological Society.
    Type: Article DOI: 10.53841/bpsqmip.2022.1.33.46 OpenAlex: https://openalex.org/W4315749638
    Crossref OpenAlex
  20. Meng-Chuan Lai , Evdokia Anagnostou , Max Wiznitzer , Carrie Allison , Simon Baron-Cohen (2020). Evidence-based support for autistic people across the lifespan: maximising potential, minimising barriers, and optimising the person–environment fit . The Lancet Neurology, 19(5), 434-451. Elsevier BV.
    Type: Article DOI: 10.1016/s1474-4422(20)30034-x OpenAlex: https://openalex.org/W3009489683
    Crossref OpenAlex OpenCitations
  21. Louise Camm-Crosbie , Louise Bradley , Rebecca Shaw , Simon Baron-Cohen , Sarah Cassidy (2019). ‘People like me don’t get support’: Autistic adults’ experiences of support and treatment for mental health difficulties, self-injury and suicidality . Autism, 23(6), 1431-1441. SAGE Publications.
    Type: Article DOI: 10.1177/1362361318816053 OpenAlex: https://openalex.org/W2902777586
    Crossref OpenAlex OpenCitations
  22. Nick Walker * , Dora M Raymaker * (2021). Toward a Neuroqueer Future: An Interview with Nick Walker . Autism in Adulthood, 3(1), 5-10. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2020.29014.njw OpenAlex: https://openalex.org/W3106097568
    Crossref OpenAlex OpenCitations
  23. Daniel Gilmore , Anne Longo , Morgan Krantz , Deondray Radford , Brittany N. Hand (2022). Five Ways Providers Can Improve Mental Healthcare for Autistic Adults: A Review of Mental Healthcare Use, Barriers to Care, and Evidence-Based Recommendations . Current Psychiatry Reports, 24(10), 565-571. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s11920-022-01362-z OpenAlex: https://openalex.org/W4291464338
    Crossref OpenAlex OpenCitations
  24. David Mason , J. Mackintosh , H. McConachie , Jacqui Rodgers , Tracy Finch , Jeremy R. Parr (2019). Quality of life for older autistic people: The impact of mental health difficulties . Research in Autism Spectrum Disorders, 63, 13-22. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2019.02.007 OpenAlex: https://openalex.org/W2932678029
    Crossref OpenAlex OpenCitations
  25. Martina Micai , Antonio Ciaramella , Tommaso Salvitti , Francesca Fulceri , Laura Maria Fatta , Luise Poustka et al. (2021). Autistic Adult Health and Professional Perceptions of It: Evidence From the ASDEU Project . Frontiers in Psychiatry, 12, 614102. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyt.2021.614102 OpenAlex: https://openalex.org/W3166897399
    Crossref OpenAlex OpenCitations
  26. Meng-Chuan Lai , Caroline Kassee , Richard Besney , Sarah Bonato , Laura Hull , Will Mandy et al. (2019). Prevalence of co-occurring mental health diagnoses in the autism population: a systematic review and meta-analysis . The Lancet Psychiatry, 6(10), 819-829. Elsevier BV.
    Type: Article DOI: 10.1016/s2215-0366(19)30289-5 OpenAlex: https://openalex.org/W2936336589
    Crossref OpenAlex OpenCitations
  27. National Disability Authority (2017). Models of good Practice in Effectively Supporting the Needs of Adults with Autism, without a Concurrent Intellectual Disability, Living in the Community [Report]. National Disability Authority. https://nda.ie/publications/good-practice-in-supporting-adults-with-autism .
    Type: Autre
    Crossref
  28. National Institute for Health and Care Excellence. (2012). Autism spectrum disorder in adults: Diagnosis and management (NICE Clinical Guideline No. 142). https://www.nice.org.uk/guidance/cg142 .
    Type: Autre
    Crossref
  30. Natasha Malik-Soni , Andrew Shaker , Helen Luck , Anne E. Mullin , Ryan E. Wiley , M. E. Suzanne Lewis et al. (2022). Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood . Pediatric Research, 91(5), 1028-1035. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1038/s41390-021-01465-y OpenAlex: https://openalex.org/W3136657450
    Crossref OpenAlex OpenCitations
  31. Alison Jayne Doherty , Helen Atherton , Paul Boland , Richard P. Hastings , Lucy Hives , Kerry Hood et al. (2020). Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review . BJGP Open, 4(3), bjgpopen20X101030. Royal College of General Practitioners.
    Type: Article DOI: 10.3399/bjgpopen20x101030 OpenAlex: https://openalex.org/W2989625113
    Crossref OpenAlex OpenCitations
  32. (2023). Autism Innovation Strategy - Analysis of Initial Public Consultation Submissions . Autism Innovation Strategy - Analysis of Initial Public Consultation Submissions.
    Type: Autre
    Crossref
  33. Dawn Adams , Kate Young (2021). A Systematic Review of the Perceived Barriers and Facilitators to Accessing Psychological Treatment for Mental Health Problems in Individuals on the Autism Spectrum . Review Journal of Autism and Developmental Disorders, 8(4), 436-453. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40489-020-00226-7 OpenAlex: https://openalex.org/W3094212365
    Crossref OpenAlex OpenCitations
  36. (s. d.). Joint Committee on Autism, Final Report of the Joint Committee on Autism. 2023. Government of Ireland https://data.oireachtas.ie/ie/oireachtas/committee/dail/33/joint_committee_on_autism/reports/2023/2023-06-14_final-report-of-the-joint-committee-on-autism_en.pdf .
    Type: Autre
    Crossref
  37. Lisa D. Hawke , Natasha Yasmin Sheikhan , Hamer Bastidas-Bilbao , Terri Rodak (2024). Experience-based co-design of mental health services and interventions: A scoping review . SSM - Mental Health, 5, 100309. Elsevier BV.
    Type: Article DOI: 10.1016/j.ssmmh.2024.100309 OpenAlex: https://openalex.org/W4392881949
    Crossref OpenAlex OpenCitations
  38. Meng-Chuan Lai (2023). Mental health challenges faced by autistic people . Nature Human Behaviour, 7(10), 1620-1637. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1038/s41562-023-01718-2 OpenAlex: https://openalex.org/W4387823017
    Crossref OpenAlex OpenCitations
  39. Department of Health (2006) A Vision for Change. 2006, Government of Ireland: Dublin Ireland. https://www.hse.ie/eng/services/publications/mentalhealth/mental-health---a-vision-for-change.pdf .
    Type: Autre
    Crossref
  40. Department of Health (2020) Sharing the Vision. A Mental Health Policy for Everyone, Government of Ireland: Dublin, Ireland. https://www.gov.ie/en/publication/2e46f-sharing-the-vision-a-mental-health-policy-for-everyone/ .
    Type: Autre
    Crossref