L'échelle d'évaluation de l'observation sensorielle de l'autisme (SOAR) : élaborée à l'aide du cadre PROMIS®

Titre original en anglais : The Sensory Observation Autism Rating Scale (SOAR): Developed using the PROMIS ® framework

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Unwin, K., Barbaro, J., Uljarević, M., Hussain, A., Chetcuti, M., & Lane, A. E. (2022). The Sensory Observation Autism Rating Scale (SOAR): Developed using the PROMIS ® framework. Autism Research, 16(3), 617-629. https://doi.org/10.1002/aur.2881

Date de publication: 24/12/2022 Ajout dans AutiHub: 07/09/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

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Auteurs

Auteur·ices des publications
6
Auteur·ices de la publication identifié·es comme autistes
1 / 6 (16,7 %)
  1. Katy Unwin
  2. Josephine Barbaro *
  3. Mirko Uljarević
  1. Azul Hussain
  2. Madison Chetcuti
  3. Alison. E. Lane

Résumé

Résumé Les personnes autistes perçoivent le monde sensoriel différemment, ce qui a des répercussions sur le comportement. Des témoignages de première main et des recherches fondées sur des groupes ont montré que les différences sensorielles ont des répercussions sur divers aspects, notamment la vie familiale, l'anxiété, la participation et la vie quotidienne. Il est largement rapporté que les différences sensorielles précoces sont associées à une cascade de différences développementales, ce qui suggère qu'un diagnostic précoce de l'autisme et une cartographie sensorielle pourraient permettre la mise en place de soutiens favorisant l'épanouissement. Cependant, des outils de mesure appropriés ne sont pas disponibles, car tous reposent sur des rapports de tiers ou sont des mesures d'observation qui incluent des modalités ou des domaines limités et nécessitent l'administration de stimuli. Par conséquent, en suivant les recommandations de référence pour l'élaboration de mesures énoncées par le cadre PROMIS®, nous avons créé l'échelle d'évaluation de l'observation sensorielle de l'autisme (SOAR). Nous avons identifié les comportements sensoriels dans l'ensemble des principaux domaines et modalités grâce à une revue approfondie de la littérature sur l'autisme et le sensoriel ainsi qu'à des groupes de discussion avec des parties prenantes de l'autisme. La banque initiale d'items a ensuite été affinée par un panel d'experts et par le codage vidéo de cinq minutes de jeu libre provenant d'évaluations Autism Diagnostic Observation Schedule de 105 enfants autistes et présentant un retard de développement appariés selon l'âge et le sexe (âgés de 13 à 36 mois ; 38 filles). Vingt-cinq pour cent supplémentaires de l'échantillon ont fait l'objet d'un double codage afin d'étudier la fidélité interévaluateurs. Les données observationnelles et l'examen par des experts ont soutenu la réduction de la banque d'items à 37 items. Nous proposons que la SOAR affinée présente une excellente validité apparente et écologique, ainsi qu'une fidélité interévaluateurs (corrélation intraclasse = 0,87-0,99). Après une collecte de données supplémentaire et un affinage, la SOAR est prometteuse pour caractériser pleinement les comportements sensoriels chez les enfants autistes et indiquer des soutiens utiles.

Abstract Autistic people experience the sensory world differently, impacting behavior. First‐hand accounts and group‐based research have found that sensory differences impact a range of things including family life, anxiety, participation, and daily living. Early sensory differences are widely reported to be associated with a cascade of developmental difference, suggesting that early autism diagnosis and sensory mapping could enable the provision of supports to facilitate flourishing. However, appropriate measurement tools are not available as all rely on proxy report or are observation measures which include limited modalities or domains and require the administration of stimuli. Therefore, following the gold‐standard recommendations for measurement development outlined by the PROMIS® framework, we created the Sensory Observation Autism Rating scale (SOAR). We identified sensory behaviors across all primary domains and modalities through an extensive autism‐sensory literature review and from focus groups with autism stakeholders. The initial item bank was then refined by an expert panel and through video coding five‐minutes of free play from Autism Diagnostic Observation Schedule assessments of 105 age‐ and gender‐matched autistic and developmentally delayed children (aged 13–36 months; 38 female). An additional 25% of the sample were double coded to investigate interrater reliability. Observational data and expert review supported the reduction of the item bank to 37 items. We propose that the refined SOAR has excellent face and ecological validity, along with interrater reliability (Intraclass correlation = 0.87–0.99). Following further data collection and refinement, SOAR has promise to fully characterize sensory behaviors in autistic children and indicate useful supports.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 12/09/2026 01:04.

Références citées
64
Avec un DOI
53
Sans DOI, à partir du texte brut de la bibliographie
11
1 / 64 (1,6 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
4 / 64 (6,2 %)
Références avec noms d’auteurices détectés
60 / 64 (93,8 %)
Sans nom d’auteurice détecté
4
Sans titre structuré
4
Sans identifiant stable
11
Références avec noms bruts d’auteurices restant à vérifier
3
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
321
À partir du DOI ou de métadonnées externes
321
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
3
92 / 321 (28,7 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 229 / 321 (71,3 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
1 / 321 (0,3 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 1 / 92 (1,1 %). Personnes distinctes identifiées comme autistes : 1 / 244 (0,4 %).
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