La pertinence et l'acceptabilité d'un prototype de livre d'activités psychoéducatif co-conçu pour les enfants de sept à onze ans atteints de TDAH

Titre original en anglais : The suitability and acceptability of a co-designed prototype psychoeducational activity book for seven- to eleven-year-olds with ADHD

Powell, L., Wheeler, G., Redford, C., & Parker, J. (2021). The suitability and acceptability of a co-designed prototype psychoeducational activity book for seven- to eleven-year-olds with ADHD. Design for Health, 5(1), 4-25. https://doi.org/10.1080/24735132.2021.1928380

Date de publication: 01/05/2021 Ajout dans AutiHub: 09/08/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
1 / 4 (25,0 %)

Résumé

Les jeunes atteints de trouble déficitaire de l'attention avec hyperactivité (TDAH) peuvent bénéficier d'interventions psychoéducatives. La co-conception de ces interventions accroît l'engagement et l'impact. Toutefois, il existe très peu de ressources psychoéducatives co-conçues et adaptées à l'âge des jeunes atteints de TDAH. Un prototype de livre d'activités (« ADHD Hero Activity Book ») a donc été co-conçu afin d'enseigner aux enfants de 7 à 11 ans atteints de TDAH ce qu'est leur trouble et comment le gérer plus efficacement. Cet article décrit l'évaluation initiale de ce prototype. Neuf parents et onze enfants ont participé à neuf ateliers en ligne et à un appel téléphonique. La pertinence et l'acceptabilité du prototype de livre d'activités ont été examinées, et des axes d'amélioration ont été identifiés. Des notes illustrées ont été prises à des fins de validité des répondants et d'engagement. L'analyse thématique a identifié six thèmes : (1) Informations visuelles ; (2) Intérêt pour les sujets et engagement ; (3) Importance d'un contenu auquel il est possible de s'identifier ; (4) Importance de l'interaction avec le livre d'activités et d'un contenu adapté à l'âge ; (5) Aspects positifs du TDAH ; et (6) Le livre d'activités comme outil de communication. Des suggestions d'amélioration ont également été formulées. Les résultats indiquent que le livre d'activités est pertinent, acceptable et peut servir d'outil de communication entre les jeunes et les familles. Les recherches futures pourraient envisager l'élaboration de versions du livre d'activités destinées aux adolescents atteints de TDAH et aux jeunes présentant un trouble du spectre de l'autisme.

Young people with Attention Deficit Hyperactivity Disorder (ADHD) can benefit from psychoeducation interventions. Co-design of these interventions increases engagement and impact. However, there are very few age-appropriate co-designed psychoeducational resources for young people with ADHD. Therefore an activity book prototype (‘ADHD Hero Activity Book’) was co-designed to teach 7–11-year-olds with ADHD about their condition and how to manage it more effectively. This paper describes the initial evaluation of this prototype. Nine parents and eleven children took part across nine online workshops and one phone call. The suitability and acceptability of the activity book prototype was explored, and areas of improvement identified. Sketch notes were taken for respondent validity and engagement purposes. Thematic analysis identified six themes: (1) Visual information; (2) Topic interest and engagement; (3) Importance of relatable content; (4) Importance of activity book interaction and age-appropriate content; (5) Positive aspects of ADHD and (6) The activity book as a communication aid. Improvement suggestions were also provided. Results indicate the activity book is suitable, acceptable and can act as a communication aid between young people and families. Future research may consider the development of versions of the activity book for adolescents with ADHD and young people with Autism Spectrum Disorder.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
58
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
6 / 58 (10,3 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
6 / 194 (3,1 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 6 / 21 (28,6 %). Auteurices cité·es distinct·es identifié·es comme autistes : 1 / 176 (0,6 %).
Occurrences citées rattachées à la base AutiHub
21 / 194 (10,8 %)
Auteurices cité·es distinct·es rattaché·es : 9 / 176 (5,1 %)
Occurrences rattachées, non identifiées comme autistes
15 / 21 (71,4 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 15 / 194 (7,7 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 8 / 9 (88,9 %).
  1. Immy Holloway (2008). A-Z of qualitative research in healthcare .
    Type: Livre OpenAlex: https://openalex.org/W580929229
    OpenAlex
  2. Arthur D. Anastopoulos , Taylor F. Smith , Melanie E. Garrett , Erin Morrissey-Kane , Nicole K. Schatz , Jennifer L. Sommer et al. (2011). Self-Regulation of Emotion, Functional Impairment, and Comorbidity Among ChildrenWith AD/HD . Journal of Attention Disorders, 15(7), 583-592. SAGE Publications.
    Crossref OpenAlex OpenCitations
  3. Rosemary E. Vile Junod , George J. DuPaul , Asha K. Jitendra , Robert J. Volpe , Kristi S. Cleary (2006). Classroom observations of students with and without ADHD: Differences across types of engagement . Journal of School Psychology, 44(2), 87-104. Elsevier BV.
    Crossref OpenAlex OpenCitations
  4. (2006). Qualitative Research in Health Care . Wiley.
    OpenAlex OpenCitations
  5. Li Yang , Guan-nan Bai , Yu-feng Wang , Wen-Yi Niu (2015). Effectiveness of a focused, brief psychoeducation program for parents of ADHD children: improvement of medication adherence and symptoms . Neuropsychiatric Disease and Treatment, 11, 2721. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  6. Simon Eaton , Sue Roberts , Bridget Turner (2015). Delivering person centred care in long term conditions . BMJ, 350, h181. BMJ.
    Type: Article DOI: 10.1136/bmj.h181 OpenAlex: https://openalex.org/W2018197407
    Crossref OpenAlex OpenCitations
  7. C. Nussey , N. Pistrang , T. Murphy (2013). How does psychoeducation help? A review of the effects of providing information about T ourette syndrome and attention‐deficit/hyperactivity disorder . Child: Care, Health and Development, 39(5), 617-627. Wiley.
    Crossref OpenAlex OpenCitations
  8. Bandura Albert. (2000). “Cultivate Self-Efficacy for Personal and Organizational Effectiveness.” . Handbook of Principles of Organization Behavior, 2, 0011.
    Type: Autre
    Crossref
  9. Kate J. Lifford , Gordon T. Harold , Anita Thapar (2008). Parent–Child Relationships and ADHD Symptoms: A Longitudinal Analysis . Journal of Abnormal Child Psychology, 36(2), 285-296. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  10. Catherine Pope , Nicholas Mays (2006). Qualitative Methods in Health Research . Dans Qualitative Research in Health Care (pp. 1-11). Wiley.
    Type: Chapitre de livre DOI: 10.1002/9780470750841.ch1 OpenAlex: https://openalex.org/W1750936040
    Crossref OpenAlex OpenCitations
  11. J. Bauml (2006). Psychoeducation: A Basic Psychotherapeutic Intervention for Patients With Schizophrenia and Their Families . Schizophrenia Bulletin, 32(Supplement 1), S1-S9. Oxford University Press (OUP).
    Crossref OpenAlex OpenCitations
  12. Gyöngyi Fekete , Andrés Lucero (2019). P(L)AY ATTENTION! Co-designing for and with Children with Attention Deficit Hyperactivity Disorder (ADHD) . Dans Lecture Notes in Computer Science (pp. 368-386). Springer International Publishing.
    Type: Chapitre de livre DOI: 10.1007/978-3-030-29381-9_23 OpenAlex: https://openalex.org/W2970128128
    Crossref OpenAlex OpenCitations
  13. Simon Bignell , Kate Cain (2007). Pragmatic aspects of communication and language comprehension in groups of children differentiated by teacher ratings of inattention and hyperactivity . British Journal of Developmental Psychology, 25(4), 499-512. Wiley.
    Crossref OpenAlex OpenCitations
  14. Caroline P. Martin , Erin K. Shoulberg , Betsy Hoza , Aaron Vaughn , Daniel A. Waschbusch (2020). Factors Relating to the Presence and Modifiability of Self-Perceptual Bias Among Children with ADHD . Child Psychiatry & Human Development, 51(2), 281-293. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  15. Albert Bandura (2012). Cultivate Self‐efficacy for Personal and Organizational Effectiveness . Dans Handbook of Principles of Organizational Behavior (pp. 179-200). Wiley.
    Type: Chapitre de livre DOI: 10.1002/9781119206422.ch10 OpenAlex: https://openalex.org/W1853162924
    OpenAlex
  16. F. Xavier Castellanos , Rosemary Tannock (2002). Neuroscience of attention-deficit/hyperactivity disorder: the search for endophenotypes . Nature Reviews Neuroscience, 3(8), 617-628. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1038/nrn896 OpenAlex: https://openalex.org/W2017588448
    Crossref OpenAlex OpenCitations
  17. Danielle Willis , E. Rebekah Siceloff , Melanie Morse , Emily Neger , Kate Flory (2019). Stand-Alone Social Skills Training for Youth with ADHD: A Systematic Review . Clinical Child and Family Psychology Review, 22(3), 348-366. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  18. J. Tarver , D. Daley , K. Sayal (2014). Attention‐deficit hyperactivity disorder (ADHD ): an updated review of the essential facts . Child: Care, Health and Development, 40(6), 762-774. Wiley.
    Crossref OpenAlex OpenCitations
  19. Davis Aaron (2021). Low-Contact Do-Design: Considering More Flexible Spatiotemporal Models for the co-Design Workshop . Strategic Design Research Journal, 13(4).
    Type: Autre
    Crossref
  20. Yosuke Kita , Yuki Inoue (2017). The Direct/Indirect Association of ADHD/ODD Symptoms with Self-esteem, Self-perception, and Depression in Early Adolescents . Frontiers in Psychiatry, 8, 137-137. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  21. Julie A. Dopheide , Steven R. Pliszka (2009). Attention‐Deficit‐Hyperactivity Disorder: An Update . Pharmacotherapy: The Journal of Human Pharmacology and Drug Therapy, 29(6), 656-679. Wiley.
    OpenAlex
  22. Dewey John. (1997). Experience and Education. 1st Edn. The Kappa Delta Pi Lecture Series . Experience and Education. 1st Edn. The Kappa Delta Pi Lecture Series.
    Type: Autre
    Crossref
  23. George J. DuPaul , Lisa L. Weyandt , Grace M. Janusis (2011). ADHD in the Classroom: Effective Intervention Strategies . Theory Into Practice, 50(1), 35-42. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  24. Susan Michie , Maartje M van Stralen , Robert West (2011). The behaviour change wheel: A new method for characterising and designing behaviour change interventions . Implementation Science, 6(1), 42-42. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  25. Eric Emerson (2012). Deprivation, ethnicity and the prevalence of intellectual and developmental disabilities . Journal of Epidemiology and Community Health, 66(3), 218-224. BMJ.
    Crossref OpenAlex OpenCitations
  26. Benjamin Saunders , Julius Sim , Tom Kingstone , Shula Baker , Jackie Waterfield , Bernadette Bartlam et al. (2018). Saturation in qualitative research: exploring its conceptualization and operationalization . Quality & Quantity, 52(4), 1893-1907. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  27. Jennifer Theule , Judith Wiener , Rosemary Tannock , Jennifer M. Jenkins (2013). Parenting Stress in Families of Children With ADHD . Journal of Emotional and Behavioral Disorders, 21(1), 3-17. SAGE Publications.
    Crossref OpenAlex OpenCitations
  28. Gregory A. Fabiano , William E. Pelham , Erika K. Coles , Elizabeth M. Gnagy , Andrea Chronis-Tuscano , Briannon C. O'Connor (2009). A meta-analysis of behavioral treatments for attention-deficit/hyperactivity disorder . Clinical Psychology Review, 29(2), 129-140. Elsevier BV.
    Crossref OpenAlex OpenCitations
  29. Ginny Russell , Lauren R. Rodgers , Obioha C. Ukoumunne , Tamsin Ford (2014). Prevalence of Parent-Reported ASD and ADHD in the UK: Findings from the Millennium Cohort Study . Journal of Autism and Developmental Disorders, 44(1), 31-40. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  30. Maite Ferrin , Viviana Perez-Ayala , Samaa El-Abd , Teresa Lax-Pericall , Brian Jacobs , Andrea Bilbow et al. (2020). A Randomized Controlled Trial Evaluating the Efficacy of a Psychoeducation Program for Families of Children and Adolescents With ADHD in the United Kingdom: Results After a 6-Month Follow-Up . Journal of Attention Disorders, 24(5), 768-779. SAGE Publications.
    Crossref OpenAlex OpenCitations
  31. Guilherme V. Polanczyk , Giovanni A. Salum , Luisa S. Sugaya , Arthur Caye , Luis A. Rohde (2015). Annual Research Review: A meta‐analysis of the worldwide prevalence of mental disorders in children and adolescents . Journal of Child Psychology and Psychiatry, 56(3), 345-365. Wiley.
    Crossref OpenAlex OpenCitations
  32. Peter M. Wehmeier , Alexander Schacht , Russell A. Barkley (2010). Social and Emotional Impairment in Children and Adolescents with ADHD and the Impact on Quality of Life . Journal of Adolescent Health, 46(3), 209-217. Elsevier BV.
    Crossref OpenAlex OpenCitations
  33. Trisha Greenhalgh , CLAIRE JACKSON , SARA SHAW , TINA JANAMIAN (2016). Achieving Research Impact Through Co‐creation in Community‐Based Health Services: Literature Review and Case Study . The Milbank Quarterly, 94(2), 392-429. Wiley.
    Crossref OpenAlex OpenCitations
  34. Betsy Hoza , Alyson C. Gerdes , Sylvie Mrug , Stephen P. Hinshaw , William M. Bukowski , Joel A. Gold et al. (2005). Peer-Assessed Outcomes in the Multimodal Treatment Study of Children With Attention Deficit Hyperactivity Disorder . Journal of Clinical Child & Adolescent Psychology, 34(1), 74-86. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  35. Joe Langley , Gemma Wheeler , Rebecca Partridge , Remi Bec , Dan Wolstenholme , Lise Sproson (2020). Designing with and for Older People . Dans Intelligent Systems Reference Library (pp. 3-19). Springer International Publishing.
    Type: Chapitre de livre DOI: 10.1007/978-3-030-26292-1_1 OpenAlex: https://openalex.org/W2991349914
    Crossref OpenAlex OpenCitations
  36. Gemma Wheeler , Mills Nathaniel , Langley Joe (2020). The Starworks Project: Annual Report to National Institute for Health Research 2017-2018 . Sheffield Hallam University.
    Crossref OpenAlex OpenCitations
  37. Joe Langley , Daniel Wolstenholme , Jo Cooke (2018). ‘Collective making’ as knowledge mobilisation: the contribution of participatory design in the co-creation of knowledge in healthcare . BMC Health Services Research, 18(1), 585-585. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  38. Elizabeth B.-N. Sanders , Pieter Jan Stappers (2008). Co-creation and the new landscapes of design . CoDesign, 4(1), 5-18. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  39. Tessa Peasgood , Anupam Bhardwaj , Katie Biggs , John E. Brazier , David Coghill , Cindy L. Cooper et al. (2016). The impact of ADHD on the health and well-being of ADHD children and their siblings . European Child & Adolescent Psychiatry, 25(11), 1217-1231. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  40. David S. Mandell (2009). NIH-PA Author Manuscript . Lancet, 374(9701), 1627.
    Type: Autre
    Crossref
  41. Lauren Powell *Auteur·ice autiste. En savoir plus… , Jack Parker , Valerie Harpin (2018). What is the level of evidence for the use of currently available technologies in facilitating the self-management of difficulties associated with ADHD in children and young people? A systematic review . European Child & Adolescent Psychiatry, 27(11), 1391-1412. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  42. terje sagvolden , espen borgå johansen , heidi aase , vivienne ann russell (2005). a dynamic developmental theory of attention-deficit/hyperactivity disorder (adhd) predominantly hyperactive/impulsive and combined subtypes . Behavioral and Brain Sciences, 28(3), 397-419. Cambridge University Press (CUP).
    Crossref OpenAlex OpenCitations
  43. Lauren Powell *Auteur·ice autiste. En savoir plus… , Jack Parker , Valerie Harpin (2017). ADHD: Is There an App for That? A Suitability Assessment of Apps for the Parents of Children and Young People With ADHD . JMIR mHealth and uHealth, 5(10), e149. JMIR Publications Inc..
    Crossref OpenAlex OpenCitations
  44. Øyfrid Larsen Moen , Birgitta Hedelin , Marie Louise Hall-Lord (2016). Family Functioning, Psychological Distress, and Well-Being in Parents with a Child Having ADHD . Sage Open, 6(1). SAGE Publications.
    Crossref OpenAlex OpenCitations
  45. (s. d.). National Institute for Health and Care Exellence (NICE). 2018. “Attention Deficit Hyperactivity Disorder: Diagnosis and Management Clinical Guideline [CG72].” Accessed 10 November 2020. https://www.nice.org.uk/guidance/cg72
    Type: Autre
    Crossref
  46. Mina A. Rosenqvist , Arvid Sjölander , Eivind Ystrom , Henrik Larsson , Ted Reichborn‐Kjennerud (2019). Adverse family life events during pregnancy and ADHD symptoms in five‐year‐old offspring . Journal of Child Psychology and Psychiatry, 60(6), 665-675. Wiley.
    Crossref OpenAlex OpenCitations
  47. O’Regan Fin. (2020). “Characteristics of ADHD.” . Special Educational Needs: A Guide for Inclusive Practice, 240.
    Type: Autre
    Crossref
  48. Susan E Levy , David S. Mandell , Robert T. Schultz (2009). Autism . The Lancet, 374(9701), 1627-1638. Elsevier BV.
    OpenCitations
  49. (s. d.). OpenDataCommunities. 2020. “Indicies of Deprivation.” Accessed 3 November 2020. http://dclgapps.communities.gov.uk/imd/idmap.html .
    Type: Autre
    Crossref
  50. Lauren Powell *Auteur·ice autiste. En savoir plus… , Jack Parker , Val Harpin , Susan Mawson (2019). Guideline Development for Technological Interventions for Children and Young People to Self-Manage Attention Deficit Hyperactivity Disorder: Realist Evaluation . Journal of Medical Internet Research, 21(4), e12831. JMIR Publications Inc..
    Type: Article DOI: 10.2196/12831 OpenAlex: https://openalex.org/W2912268901
    Crossref OpenAlex OpenCitations
  51. Lauren Powell *Auteur·ice autiste. En savoir plus… , Jack Parker , Naomi Robertson , Valerie Harpin (2017). Attention Deficit Hyperactivity Disorder: Is There an App for That? Suitability Assessment of Apps for Children and Young People With ADHD . JMIR mHealth and uHealth, 5(10), e145. JMIR Publications Inc..
    Crossref OpenAlex OpenCitations
  52. Powell Lauren (2020). Paper Presented at the Online Proceedings of the 6th European Design4Health Conference . Paper Presented at the Online Proceedings of the 6th European Design4Health Conference.
    Type: Autre
    Crossref
  53. Lauren Powell *Auteur·ice autiste. En savoir plus… , Jack Parker , Anna Weighall , Valerie Harpin (2022). Psychoeducation Intervention Effectiveness to Improve Social Skills in Young People with ADHD: A Meta-Analysis . Journal of Attention Disorders, 26(3), 340-357. SAGE Publications.
    Crossref OpenAlex OpenCitations
  54. (s. d.). Powell Lauren Jack Parker and Val Harpin. 2017. University of Sheffield researchers used Lego to involve children with ADHD and their parents in research!. NIHR INVOLVE. Accessed 3 November 2020. https://www.invo.org.uk/posttypenewsletter/nihr-ppi-newsletter-autumn-2017/
    Type: Autre
    Crossref
  55. Sanders Elizabeth B. N. (2001). Paper Presented at the Proceedings of the 2001 IDSA Education Conference . Paper Presented at the Proceedings of the 2001 IDSA Education Conference.
    Type: Autre
    Crossref
  56. Lauren Powell *Auteur·ice autiste. En savoir plus… , Gemma Wheeler , Jenny Ruth Parker (2020). The co-design of a psychoeducational tool for children and young people with ADHD . White Rose Research Online (University of Leeds, The University of Sheffield, University of York).
    Type: Autre OpenAlex: https://openalex.org/W3154327474
    OpenAlex
  57. Skinner B. (1974). About Behaviourism/BF Skinner . About Behaviourism/BF Skinner.
    Type: Autre
    Crossref
  58. (s. d.). World Health Organization. 2011. “Children and Neurodevelopmental Behavioural Intellectual Disorders (NDBID).” Children’s Health and the Environment WHO Training Package for the Health Sector. Accessed 4 July 2017. www.who.int/ceh
    Type: Autre
    Crossref