En partant de nous : imaginer des approches politiques relationnelles et co-conçues pour améliorer l'accès aux soins de santé des personnes rurales en situation de handicap

Titre original en anglais : Starting with us: Imagining relational, co‐designed policy approaches to improve healthcare access for rural people with disability

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Quilliam, C., O'Shea, A., Holgate, N., & Alston, L. (2022). Starting with us: Imagining relational, co‐designed policy approaches to improve healthcare access for rural people with disability. Australian Journal of Rural Health, 30(6), 809-815. https://doi.org/10.1111/ajr.12891

Date de publication: 20/06/2022 Ajout dans AutiHub: 07/08/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
1 / 4 (25,0 %)
  1. Claire Quilliam *
  2. Amie O'Shea
  3. Nadine Holgate
  4. Laura Alston

Résumé

Résumé Contexte L'accès aux soins de santé pour les Australiens ruraux est un problème complexe, en particulier pour les personnes rurales en situation de handicap. Les cadres contemporains d'accès aux soins de santé en Australie tendent à négliger la géographie, à utiliser une approche « taille unique » et à ne pas tenir compte des relations précieuses entre les principaux acteurs des soins de santé ruraux, y compris les personnes rurales en situation de handicap, les services de santé ruraux et les professionnels de santé. La Convention des Nations Unies relative aux droits des personnes handicapées exige du gouvernement australien qu'il implique les personnes en situation de handicap dans la conception des politiques qui façonneront leur vie quotidienne, y compris leur accès aux soins de santé. Toutefois, la nature et la mesure dans lesquelles les personnes rurales en situation de handicap, les professionnels de santé ruraux et d'autres acteurs ruraux clés participent à la conception des politiques australiennes ayant une incidence sur la santé des personnes rurales en situation de handicap sont inconnues. Objectif Cet article examine les approches adoptées pour impliquer les personnes rurales en situation de handicap et les professionnels de santé dans la conception des politiques australiennes relatives au handicap ayant une incidence sur l'accès aux soins de santé, et réimagine les processus futurs susceptibles d'améliorer l'accès aux soins de santé des personnes rurales en situation de handicap. Approche Des perspectives de co-conception et d'éthique du care sont appliquées aux approches de conception des politiques dans cet article. Nous abordons ce travail en tant qu'universitaires ruraux spécialisés dans le handicap et la santé, professionnels de santé ruraux, ainsi qu'en tant que personnes rurales en situation de handicap, de neurodivergence et membres de la famille de personnes en situation de handicap. Conclusion Nous soutenons que les futures approches politiques co-conçues pourraient se concentrer sur l'impulsion d'un changement vers l'équité dans l'accès aux soins de santé pour les personnes rurales en situation de handicap en tirant parti de la nature relationnelle des soins de santé ruraux.

Abstract Context Access to healthcare for rural Australians is a wicked problem, particularly for rural people with disability. Contemporary healthcare access frameworks in Australia tend to overlook geography, use a ‘one‐size‐fits‐all approach’, and disregard the valuable relationships between key rural healthcare stakeholders, including rural people with disability, rural health services and health professionals. The United Nation's Convention on the Rights of Persons with Disabilities requires the Australian Government to engage people with disability in the design of policies that will shape their day‐to‐day lives, including their access to healthcare. However, the nature and extent to which rural people with disability, rural health professionals and other key rural stakeholders are involved in the design of Australian policies impacting the health of rural people with disability are unknown. Aim This paper examines approaches taken to engage rural people with disability and health professionals in the design of Australian disability policy impacting healthcare access, and reimagines future processes which can improve healthcare access for rural people with disability. Approach Co‐design and ethics of care lenses are applied to policy design approaches in this paper. We approach this work as rural disability and health academics, rural health professionals, and as rural people with disability, neurodivergence and family members of people with disability. Conclusion We argue future co‐designed policy approaches could focus on driving change towards equity in healthcare access for rural people with disability by harnessing the relational nature of rural healthcare.

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Références citées
38
Nombre total de références citées intégrées pour cette publication.
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3 / 38 (7,9 %)
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Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 3 / 7 (42,9 %). Auteurices cité·es distinct·es identifié·es comme autistes : 1 / 71 (1,4 %).
Occurrences citées rattachées à la base AutiHub
7 / 77 (9,1 %)
Auteurices cité·es distinct·es rattaché·es : 4 / 71 (5,6 %)
Occurrences rattachées, non identifiées comme autistes
4 / 7 (57,1 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 4 / 77 (5,2 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 3 / 4 (75,0 %).
1 entrée de bibliographie citée n’a pas pu être entièrement enrichie à partir des métadonnées DOI.
Crossref: introuvable (1)
  1. Nerida Hyett , Amanda Kenny , Virginia Dickson-Swift (2014). How can rural health be improved through community participation? Analysis & Policy Observatory. Deeble Institute for Health Policy Research.
    Type: Autre DOI: 10.4225/50/557e6dcdeadcd OpenAlex: https://openalex.org/W186173515 Crossref: introuvable
    Crossref OpenAlex
  2. Australian Bureau of Statistics (2019). Disability, ageing and carers, Australia: Summary of findings, 2018: Table 4.3 All persons, living in households, disability status, by age, sex and geographic location–2018, proportion of persons . Disability, ageing and carers, Australia: Summary of findings, 2018: Table 4.3 All persons, living in households, disability status, by age, sex and geographic location–2018, proportion of persons.
    Type: Autre
    Crossref
  3. S. Allender , J. Hayward , S. Gupta , A. Sanigorski , S. Rana , H. Seward et al. (2020). Bayesian strategy selection identifies optimal solutions to complex problems using an example from GP prescribing . npj Digital Medicine, 3(1), 7-7. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1038/s41746-019-0205-y OpenAlex: https://openalex.org/W2999311600
    Crossref OpenAlex OpenCitations
  4. Joan Cocks (2006). The Ethics of Care: Personal, Political, and Global . Perspectives on Politics, 4(4), 755-757. Cambridge University Press (CUP).
    Type: Article DOI: 10.1017/s153759270631047x OpenAlex: https://openalex.org/W2034581196
    OpenAlex
  5. Australian Institute of Health , Welfare (2021). People with disability in Australia . People with disability in Australia.
    Type: Autre
    Crossref
  6. Sally Robinson , Karen R. Fisher , Malcolm Hill , Anne Graham (2017). In the picture . Dans Disability and Rurality (pp. 168-183). Routledge.
    Type: Chapitre de livre DOI: 10.4324/9781315577340-13 OpenAlex: https://openalex.org/W2621376599
    Crossref OpenAlex OpenCitations
  7. Patsie Frawley , Christine Bigby (2011). Inclusion in political and public life: The experiences of people with intellectual disability on government disability advisory bodies in Australia . Journal of Intellectual & Developmental Disability, 36(1), 27-38. Informa UK Limited.
    Type: Article DOI: 10.3109/13668250.2010.549465 OpenAlex: https://openalex.org/W2046335032
    Crossref OpenAlex OpenCitations
  8. Australian Institute of Health , Welfare (2020). Rural and remote health . Rural and remote health.
    Type: Autre
    Crossref
  9. Rupa S Valdez , Courtney C Rogers , Henry Claypool , Lucy Trieshmann , Olivia Frye , Claire Wellbeloved-Stone et al. (2021). Ensuring full participation of people with disabilities in an era of telehealth . Journal of the American Medical Informatics Association, 28(2), 389-392. Oxford University Press (OUP).
    Type: Article DOI: 10.1093/jamia/ocaa297 OpenAlex: https://openalex.org/W3104067078
    Crossref OpenAlex OpenCitations
  10. Amanda Kenny , Jane Farmer , Virginia Dickson‐Swift , Nerida Hyett (2015). Community participation for rural health: a review of challenges . Health Expectations, 18(6), 1906-1917. Wiley.
    Type: Article DOI: 10.1111/hex.12314 OpenAlex: https://openalex.org/W2156172971
    Crossref OpenAlex OpenCitations
  11. (s. d.). National Rural Health Commissioner. Report for the Minister for Regional Health Regional Communications and Local Government on the improvement of access quality and distribution of allied health services in regional rural and remote Australia 2020. 2020[cited 5 April 2022]. https://www.health.gov.au/resources/publications/final‐report‐improvement‐of‐access‐quality‐and‐distribution‐of‐allied‐health‐services‐in‐regional‐rural‐and‐remote‐australia
    Type: Autre
    Crossref
  12. Emma Blomkamp (2018). The Promise of Co‐Design for Public Policy . Australian Journal of Public Administration, 77(4), 729-743. Wiley.
    Type: Article DOI: 10.1111/1467-8500.12310 OpenAlex: https://openalex.org/W3010676252
    Crossref OpenAlex OpenCitations
  13. Laura Alston , Melanie Nichols , Steven Allender (2019). Policy makers’ perceptions of the high burden of heart disease in rural Australia: Implications for the implementation of evidence-based rural health policy . PLOS ONE, 14(4), e0215358. Public Library of Science (PLoS).
    Type: Article DOI: 10.1371/journal.pone.0215358 OpenAlex: https://openalex.org/W2938106336
    Crossref OpenAlex OpenCitations
  14. Kenneth Nordberg (2021). Distributed Rural Proofing – An Essential Tool for the Future of Rural Development? Sociologia Ruralis, 61(1), 141-162. Wiley.
    Type: Article DOI: 10.1111/soru.12316 OpenAlex: https://openalex.org/W3034727721
    Crossref OpenAlex OpenCitations
  15. Monique Hines , Kim Bulkeley , Simone Dudley , Sue Cameron , Michelle Lincoln (2019). Delivering Quality Allied Health Services to Children with Complex Disability via Telepractice: Lessons Learned from Four Case Studies . Journal of Developmental and Physical Disabilities, 31(5), 593-609. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10882-019-09662-8 OpenAlex: https://openalex.org/W2917352896
    Crossref OpenAlex OpenCitations
  16. Claire Quilliam * , Lisa Bourke (2020). Rural Victorian service provider responses to the National Disability Insurance Scheme . Australian Journal of Social Issues, 55(4), 439-455. Wiley.
    Type: Article DOI: 10.1002/ajs4.107 OpenAlex: https://openalex.org/W3009381218
    Crossref OpenAlex OpenCitations
  17. Vincent L. Versace , Timothy C. Skinner , Lisa Bourke , Pam Harvey , Tony Barnett (2021). National analysis of the Modified Monash Model, population distribution and a socio‐economic index to inform rural health workforce planning . Australian Journal of Rural Health, 29(5), 801-810. Wiley.
    Type: Article DOI: 10.1111/ajr.12805 OpenAlex: https://openalex.org/W3206503828
    Crossref OpenAlex OpenCitations
  18. John Murdoch (2008). A Textbook of Australian Rural Health . Rural and Remote Health. Rural and Remote Health.
    Type: Article DOI: 10.22605/rrh1071 OpenAlex: https://openalex.org/W2990847771
    OpenAlex
  19. John Gilroy , Angela Dew , Rebecca Barton , Lee Ryall , Michelle Lincoln , Kerry Taylor et al. (2021). Environmental and systemic challenges to delivering services for Aboriginal adults with a disability in Central Australia . Disability and Rehabilitation, 43(20), 2919-2929. Informa UK Limited.
    Type: Article DOI: 10.1080/09638288.2020.1725654 OpenAlex: https://openalex.org/W3008509379
    Crossref OpenAlex OpenCitations
  20. Bourke L (2008). A Textbook of Australian Rural Health . A Textbook of Australian Rural Health, 31.
    Type: Autre
    Crossref
  21. Claire Quilliam * , Kristen Glenister , Kaye Ervin , Jennifer Weller-Newton (2023). Revisiting rural healthcare access through Held’s ethics of care . Social Theory & Health, 21(2), 178-193. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1057/s41285-022-00181-9 OpenAlex: https://openalex.org/W4283385784
    Crossref OpenAlex
  22. Held V. (2006). The ethics of care: Personal, political, and global . The ethics of care: Personal, political, and global.
    Type: Autre
    Crossref
  23. Miriam M. Johnson , Carol Gilligan (1983). In a Different Voice: Psychological Theory and Women's Development. Contemporary Sociology, 12(4), 448. SAGE Publications.
    Type: Article DOI: 10.2307/2067520 OpenAlex: https://openalex.org/W3169791305
    OpenAlex
  24. Gilligan C (1982). In a different voice: psychological theory and women's development . In a different voice: psychological theory and women's development.
    Type: Autre
    Crossref
  25. (s. d.). United Nations. Convention on the rights of persons with disabilities and optional protocol: United Nations;2007[cited 5 April 2022]. https://www.un.org/development/desa/disabilities/convention‐on‐the‐rights‐of‐persons‐with‐disabilities.html
    Type: Autre
    Crossref
  27. (s. d.). Australian Government Department of Social Services. Australia's Disability Strategy 2021–2031. Commonwealth of Australia;2022[cited 5 April 2022]. https://www.disabilitygateway.gov.au/document/3106
    Type: Autre
    Crossref
  28. Australian Government Department of Health (2021). National Roadmap for improving the health of people with intellectual disability . National Roadmap for improving the health of people with intellectual disability.
    Type: Autre
    Crossref
  29. Davy L (2019). Review of implementation of the National Disability Strategy 2010–2020: Final report . Review of implementation of the National Disability Strategy 2010–2020: Final report.
    Type: Autre
    Crossref
  30. (s. d.). Australian Government Department of Social Services. How we consulted on the development of Australia's Disability Strategy 2021–2031: Australian Government;2022[cited 5 April 2022]. https://www.dss.gov.au/how‐we‐consulted‐on‐the‐development‐of‐australias‐disability‐strategy‐2021‐2031
    Type: Autre
    Crossref
  31. (s. d.). Australian Government Department of Social Services. How was Australia's Disability Strategy 2021–2031 developed?n.d. [cited 5 April 2022]. https://www.disabilitygateway.gov.au/ads/how‐ads
    Type: Autre
    Crossref
  32. (s. d.). The Social Deck. Right to opportunity: consultation report to help shape the next national disability strategy. The Social Deck;2019[cited 5 April 2022]. https://www.dss.gov.au/sites/default/files/documents/12_2019/ndsbeyond2020‐fullreport‐161219_0.pdf
    Type: Autre
    Crossref
  33. (s. d.). The Social Deck. A new National Disability Strategy stage 2 consultations: report on targeted workshops. The Social Deck;2021[cited 5 April 2022]. https://www.dss.gov.au/sites/default/files/documents/05_2021/ndsstage2fullreport200521.pdf
    Type: Autre
    Crossref
  34. Australian Government Department of Social Services (2020). Disability reform ministers' meeting telepresence‐ 4 December 2020: Communique . Disability reform ministers' meeting telepresence‐ 4 December 2020: Communique.
    Type: Autre
    Crossref
  35. (s. d.). Australian Government Department of Social Services. Advisory Council: Australian Government; n.d. [cited 5 April 2022]. https://www.disabilitygateway.gov.au/ads/advisory‐council#:~:text=The%20Advisory%20Council%3A disability%20ministers%20meeting%20each%20year
    Type: Autre
    Crossref
  36. (s. d.). Victorian Council of Social Services. Advancing an accessible and inclusive Australia: VCOSS response to the Department of Social Services' National Disability Strategy Position Paper: Victorian Council of Social Services;2020[cited 5 April 2022]. https://vcoss.org.au/policylibrary/2020/11/advancing‐australia/
    Type: Autre
    Crossref
  37. (s. d.). New South Wales Council for Intellectual Disability and Inclusion Australia. The health of people with intellectual disability: Budget and federal election 2019: Commitments soughts from Australian political parties. New South Wales Council for Intellectual Disability and Inclusion Australia;2019[cited 5 April 2022]. https://cid.org.au/wp‐content/uploads/2019/06/Intellectual_disability_health_bid_200219.pdf
    Type: Autre
    Crossref
  38. (s. d.). Australian Government Department of Health. National Roadmap for Improving the Health of People with Intellectual Disability: Commonwealth of Australia;2022[cited 5 April 2022]. https://www.health.gov.au/initiatives‐and‐programs/national‐roadmap‐for‐improving‐the‐health‐of‐people‐with‐intellectual‐disability#roadmap‐as‐part‐of‐the‐10‐year‐plan
    Type: Autre
    Crossref