Invariance de mesure de l'echelle PROMIS des relations familiales chez les adolescents autistes et ceux de la population generale

Titre original en anglais : Measurement Invariance of the PROMIS Family Relationships Scale Among Autistic and General Population Adolescents

Benecke, R., Williams, Z. J., Graham Holmes, L., Miller, J. S., & Kaplan‐Kahn, E. A. (2026). Measurement Invariance of the PROMIS Family Relationships Scale Among Autistic and General Population Adolescents. Autism Research, 19(2), e70161-e70161. https://doi.org/10.1002/aur.70161

Date de publication: 08/01/2026 Ajout dans AutiHub: 07/07/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
1 / 5 (20,0 %)

Résumé

Les relations sociales sont une composante essentielle de la qualite de vie, un resultat hautement prioritaire pour les personnes autistes, et les relations familiales sont essentielles a l'adolescence. L'echelle PROMIS des relations familiales a ete bien validee pour une utilisation dans la population generale, mais la validation psychometrique dans la population autiste fait defaut. Cette etude a examine l'invariance de mesure de l'echelle PROMIS des relations familiales chez des adolescents autistes et des adolescents de la population generale. L'echelle a demontre une invariance scalaire entre les groupes, apportant des preuves qu'elle mesure le meme construit de maniere equivalente et que les scores peuvent etre compares de maniere significative entre les groupes. Grace a une mesure auto-rapportee bien validee, les chercheurs peuvent interroger directement les adolescents autistes sur leurs experiences de leurs relations familiales, plutot que de se fier uniquement aux rapports indirects des parents.

Social relationships are a key component of quality of life, a high-priority outcome for autistic people, and family relationships are critical in adolescence. The PROMIS Family Relationships scale has been well validated for use with the general population, but psychometric validation in the autistic population is lacking. This study investigated measurement invariance of the PROMIS Family Relationships among autistic and general population adolescents. The scale demonstrated scalar invariance between the groups, providing evidence that it measures the same construct equivalently and scores can be meaningfully compared between groups. With a well-validated self-report measure, researchers can ask autistic teens directly about their experiences of their family relationships, rather than relying solely on parent proxy report.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
43
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
5 / 43 (11,6 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
12 / 348 (3,4 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 12 / 68 (17,6 %). Auteurices cité·es distinct·es identifié·es comme autistes : 12 / 335 (3,6 %).
Occurrences citées rattachées à la base AutiHub
68 / 348 (19,5 %)
Auteurices cité·es distinct·es rattaché·es : 65 / 335 (19,4 %)
Occurrences rattachées, non identifiées comme autistes
56 / 68 (82,4 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 56 / 348 (16,1 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 53 / 65 (81,5 %).
  1. Yves Rosseel (2012). lavaan: An R Package for Structural Equation Modeling . Journal of Statistical Software, 48(2), 1. Foundation for Open Access Statistic.
    Crossref OpenAlex
  2. Katherine Gotham , Alison R Marvin , Julie Lounds Taylor , Zachary Warren , Connie M Anderson , Paul A Law et al. (2015). Characterizing the daily life, needs, and priorities of adults with autism spectrum disorder from Interactive Autism Network data . Autism, 19(7), 794-804. SAGE Publications.
    Crossref OpenAlex
  3. Katherine B. Bevans , Anne W. Riley , Jeanne M. Landgraf , Adam C. Carle , Rachel E. Teneralli , Barbara H. Fiese et al. (2017). Children’s family experiences: development of the PROMIS® pediatric family relationships measures . Quality of Life Research, 26(11), 3011-3023. Springer Science and Business Media LLC.
    Crossref
  4. Gael I. Orsmond , Hsin-Yu Kuo , Marsha Mailick Seltzer (2009). Siblings of individuals with an autism spectrum disorder . Autism, 13(1), 59-80. SAGE Publications.
    Crossref OpenAlex
  5. David Cella , William Riley , Arthur Stone , Nan Rothrock , Bryce Reeve , Susan Yount et al. (2010). The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008 . Journal of Clinical Epidemiology, 63(11), 1179-1194. Elsevier BV.
    Crossref OpenAlex
  6. Fang Fang Chen (2007). Sensitivity of Goodness of Fit Indexes to Lack of Measurement Invariance . Structural Equation Modeling: A Multidisciplinary Journal, 14(3), 464-504. Informa UK Limited.
    Crossref OpenAlex
  7. Bryce B. Reeve , Ron D. Hays , Jakob B. Bjorner , Karon F. Cook , Paul K. Crane , Jeanne A. Teresi et al. (2007). Psychometric Evaluation and Calibration of Health-Related Quality of Life Item Banks . Medical Care, 45(5), S22-S31. Ovid Technologies (Wolters Kluwer Health).
    Crossref OpenAlex
  8. Fang Fang Chen (2008). What happens if we compare chopsticks with forks? The impact of making inappropriate comparisons in cross-cultural research. Journal of Personality and Social Psychology, 95(5), 1005-1018. American Psychological Association (APA).
    Type: Article DOI: 10.1037/a0013193 OpenAlex: https://openalex.org/W2157438378
    Crossref OpenAlex
  9. Li‐tze Hu , Peter M. Bentler (1999). Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives . Structural Equation Modeling: A Multidisciplinary Journal, 6(1), 1-55. Informa UK Limited.
    Crossref OpenAlex
  10. Gordon W. Cheung , Roger B. Rensvold (2002). Evaluating Goodness-of-Fit Indexes for Testing Measurement Invariance . Structural Equation Modeling: A Multidisciplinary Journal, 9(2), 233-255. Informa UK Limited.
    Crossref OpenAlex
  11. E. Damiano D’Urso , Kim De Roover , Jeroen K. Vermunt , Jesper Tijmstra (2021). Scale length does matter: Recommendations for measurement invariance testing with categorical factor analysis and item response theory approaches . Behavior Research Methods, 54(5), 2114-2145. Springer Science and Business Media LLC.
    Crossref
  12. David W. Test , Leann E. Smith , Erik W. Carter (2014). Equipping Youth With Autism Spectrum Disorders for Adulthood . Remedial and Special Education, 35(2), 80-90. SAGE Publications.
    Crossref OpenAlex
  13. Reina S. Factor , Thomas H. Ollendick , Lee D. Cooper , Julie C. Dunsmore , Hannah M. Rea , Angela Scarpa (2019). All in the Family: A Systematic Review of the Effect of Caregiver-Administered Autism Spectrum Disorder Interventions on Family Functioning and Relationships . Clinical Child and Family Psychology Review, 22(4), 433-457. Springer Science and Business Media LLC.
    Crossref
  14. Rens van de Schoot , Peter Lugtig , Joop Hox (2012). A checklist for testing measurement invariance . European Journal of Developmental Psychology, 9(4), 486-492. Informa UK Limited.
    Crossref OpenAlex
  15. Laura Graham Holmes , Casey J. Zampella , Caitlin Clements , Joseph P. McCleery , Brenna B. Maddox , Julia Parish‐Morris et al. (2020). A Lifespan Approach to Patient‐Reported Outcomes and Quality of Life for People on the Autism Spectrum . Autism Research, 13(6), 970-987. Wiley.
    Type: Article DOI: 10.1002/aur.2275 OpenAlex: https://openalex.org/W3012300037
    Crossref OpenAlex
  16. Elizabeth A. West , Jason C. Travers , Talya D. Kemper , Lisa M. Liberty , Debra L. Cote , Meaghan M. McCollow et al. (2016). Racial and Ethnic Diversity of Participants in Research Supporting Evidence-Based Practices for Learners With Autism Spectrum Disorder . The Journal of Special Education, 50(3), 151-163. SAGE Publications.
    Crossref OpenAlex
  17. Dennis Grevenstein , Matthias Bluemke , Jochen Schweitzer , Corina Aguilar-Raab (2019). Better family relationships––higher well-being: The connection between relationship quality and health related resources . Mental Health & Prevention, 14, 200160. Elsevier BV.
    Crossref OpenAlex
  18. Terrence D. Jorgensen (2017). Applying Permutation Tests and Multivariate Modification Indices to Configurally Invariant Models That Need Respecification . Frontiers in Psychology, 8, 1455-1455. Frontiers Media SA.
    Crossref OpenAlex
  19. Terrence D. Jorgensen , Benjamin A. Kite , Po-Yi Chen , Stephen D. Short (2018). Permutation randomization methods for testing measurement equivalence and detecting differential item functioning in multiple-group confirmatory factor analysis. Psychological Methods, 23(4), 708-728. American Psychological Association (APA).
    Crossref OpenAlex
  20. Debra E. Irwin , Brian D. Stucky , David Thissen , Esi Morgan DeWitt , Jin Shei Lai , Karin Yeatts et al. (2010). Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey . Quality of Life Research, 19(4), 585-594. Springer Science and Business Media LLC.
    Crossref
  21. Benjamin A. Kite , Terrence D. Jorgensen , Po-Yi Chen (2018). Random Permutation Testing Applied to Measurement Invariance Testing with Ordered-Categorical Indicators . Structural Equation Modeling: A Multidisciplinary Journal, 25(4), 573-587. Informa UK Limited.
    Crossref OpenAlex
  22. Justin Schwartz , Noelle Huntington , Marisa Toomey , Michele Laverdiere , Katherine Bevans , Nathan Blum et al. (2018). Measuring the involvement in family life of children with autism spectrum disorder: A DBPNet study . Research in Developmental Disabilities, 83, 18-27. Elsevier BV.
    Crossref OpenAlex
  23. Beate Krieger , Barbara Piškur , Christina Schulze , Uta Jakobs , Anna Beurskens , Albine Moser (2018). Supporting and hindering environments for participation of adolescents diagnosed with autism spectrum disorder: A scoping review . PLOS ONE, 13(8), e0202071. Public Library of Science (PLoS).
    Crossref OpenAlex
  24. Jeffrey S. Karst , Amy Vaughan Van Hecke (2012). Parent and Family Impact of Autism Spectrum Disorders: A Review and Proposed Model for Intervention Evaluation . Clinical Child and Family Psychology Review, 15(3), 247-277. Springer Science and Business Media LLC.
    Crossref
  25. Gary Yu Hin Lam , Emily Holden , Megan Fitzpatrick , Linda Raffaele Mendez , Karen Berkman (2020). “Different but connected”: Participatory action research using Photovoice to explore well-being in autistic young adults . Autism, 24(5), 1246-1259. SAGE Publications.
    Crossref OpenAlex
  26. Soo Youn Kim , Luc Lecavalier (2025). Stability and Validity of Self-Reported Depression and Anxiety in Autistic Youth . Journal of Autism and Developmental Disorders, 55(10), 3590-3604. Springer Science and Business Media LLC.
    Crossref
  27. Victoria Savalei (2021). Improving Fit Indices in Structural Equation Modeling with Categorical Data . Multivariate Behavioral Research, 56(3), 390-407. Informa UK Limited.
    Crossref OpenAlex
  28. Kline R. B. (2015). Principles and Practice of Structural Equation Modeling . Principles and Practice of Structural Equation Modeling.
    Type: Autre
    Crossref
  29. Daniel Lakens , Federico G. Adolfi , Casper J. Albers , Farid Anvari , Matthew A. J. Apps , Shlomo E. Argamon et al. (2018). Justify your alpha . Nature Human Behaviour, 2(3), 168-171. Springer Science and Business Media LLC.
    Crossref
  30. Matthew J. Maenner , Kelly A. Shaw , Amanda V. Bakian , Deborah A. Bilder , Maureen S. Durkin , Amy Esler et al. (2021). Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years — Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2018 . MMWR. Surveillance Summaries, 70(11), 1-16. Centers for Disease Control MMWR Office.
    Crossref OpenAlex
  31. Adam W. Meade , Emily C. Johnson , Phillip W. Braddy (2008). Power and sensitivity of alternative fit indices in tests of measurement invariance. Journal of Applied Psychology, 93(3), 568-592. American Psychological Association (APA).
    Crossref
  32. Em JE Mittertreiner , Elise Ng-Cordell , Alana J. McVey , Connor M. Kerns (2024). Research methods at the intersection of gender diversity and autism: A scoping review . Autism, 28(12), 2953-2969. SAGE Publications.
    Crossref OpenAlex
  33. Chia-Lin Tsai , Stefanie Wind , Samantha Estrada (2025). Exploring the Effects of Collapsing Rating Scale Categories in Polytomous Item Response Theory Analyses: An Illustration and Simulation Study . Measurement: Interdisciplinary Research and Perspectives, 23(1), 66-89. Informa UK Limited.
    Crossref OpenAlex
  34. Elisabeth Øverland , Åshild Lappegard Hauge , Stian Orm , Merete Glenne Øie , Erik Winther Skogli , Elizabeth Pellicano et al. (2024). “I have to charge my social battery”: Perspectives from autistic young adults on Quality of Life . Autism, 28(6), 1369-1381. SAGE Publications.
    Crossref OpenAlex
  35. David Wood , Tara Crapnell , Lynette Lau , Ashley Bennett , Debra Lotstein , Maria Ferris et al. (2018). Emerging Adulthood as a Critical Stage in the Life Course . Dans Handbook of Life Course Health Development (pp. 123-143). Springer International Publishing.
    Type: Chapitre de livre DOI: 10.1007/978-3-319-47143-3_7 OpenAlex: https://openalex.org/W2769165877
    Crossref
  36. Yan Xia , Yanyun Yang (2019). RMSEA, CFI, and TLI in structural equation modeling with ordered categorical data: The story they tell depends on the estimation methods . Behavior Research Methods, 51(1), 409-428. Springer Science and Business Media LLC.
    Crossref