La Gestalt du fonctionnement dans le trouble du spectre de l’autisme : résultats de la conférence internationale visant à élaborer les ensembles de base définitifs consensuels de la Classification internationale du fonctionnement, du handicap et de la santé

Titre original en anglais : The Gestalt of functioning in autism spectrum disorder: Results of the international conference to develop final consensus International Classification of Functioning, Disability and Health core sets

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Bölte, S., Mahdi, S., Vries, P. J. d., Granlund, M., Robison, J. E., Shulman, C., Swedo, S. E., Tonge, B. J., Wong, V., Zwaigenbaum, L., Segerer, W., & Selb, M. (2018). The Gestalt of functioning in autism spectrum disorder: Results of the international conference to develop final consensus International Classification of Functioning, Disability and Health core sets. Autism, 23(2), 449-467. https://doi.org/10.1177/1362361318755522

Date de publication: 29/01/2018 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
12
Auteur·ices de la publication identifié·es comme autistes
1 / 12 (8,3 %)
  1. Sven Bölte
  2. Soheil Mahdi
  3. Petrus J. de Vries
  4. Mats Granlund
  1. John Elder Robison *
  2. Cory Shulman
  3. Susan E. Swedo
  4. Bruce J. Tonge
  1. Virginia Wong
  2. Lonnie Zwaigenbaum
  3. Wolfgang Segerer
  4. Melissa Selb

Résumé

Le trouble du spectre de l’autisme est associé à divers défis sociaux, éducatifs et professionnels. À ce jour, il n’existe aucun outil standardisé et accepté à l’échelle internationale pour évaluer le fonctionnement lié au trouble du spectre de l’autisme. La Classification internationale du fonctionnement, du handicap et de la santé de l’Organisation mondiale de la Santé peut servir de fondement à l’élaboration de tels outils. Cette étude visait à identifier un ensemble de base complet, un ensemble de base bref commun et trois ensembles de base brefs adaptés à l’âge pour le trouble du spectre de l’autisme. Quatre études préparatoires internationales ont produit au total 164 catégories candidates de deuxième niveau de la Classification internationale du fonctionnement, du handicap et de la santé. Sur la base de ces données probantes, 20 experts internationaux du trouble du spectre de l’autisme ont appliqué un processus consensuel itératif établi de prise de décision afin de sélectionner, parmi les catégories candidates, les plus pertinentes pour constituer les ensembles de base du trouble du spectre de l’autisme. Le processus consensuel a généré 111 catégories de deuxième niveau de la Classification internationale du fonctionnement, du handicap et de la santé dans l’ensemble de base complet pour le trouble du spectre de l’autisme : une structure corporelle, 20 fonctions corporelles, 59 catégories d’activités et de participation, et 31 facteurs environnementaux. L’ensemble de base bref commun comprenait 60 catégories, tandis que les ensembles de base adaptés à l’âge comprenaient 73 catégories dans la version préscolaire (enfants de 0 à 5 ans), 81 dans la version pour l’âge scolaire (enfants et adolescents de 6 à 16 ans), et 79 dans la version pour les adolescents plus âgés et les adultes (personnes âgées de 17 ans ou plus). Les ensembles de base du trouble du spectre de l’autisme constituent une étape importante vers l’évaluation standardisée du fonctionnement lié au trouble du spectre de l’autisme dans les contextes éducatifs, administratifs, cliniques et de recherche.

Autism spectrum disorder is associated with diverse social, educational, and occupational challenges. To date, no standardized, internationally accepted tools exist to assess autism spectrum disorder-related functioning. World Health Organization's International Classification of Functioning, Disability and Health can serve as foundation for developing such tools. This study aimed to identify a comprehensive, a common brief, and three age-appropriate brief autism spectrum disorder Core Sets. Four international preparatory studies yielded in total 164 second-level International Classification of Functioning, Disability and Health candidate categories. Based on this evidence, 20 international autism spectrum disorder experts applied an established iterative decision-making consensus process to select from the candidate categories the most relevant ones to constitute the autism spectrum disorder Core Sets. The consensus process generated 111 second-level International Classification of Functioning, Disability and Health categories in the Comprehensive Core Set for autism spectrum disorder-one body structure, 20 body functions, 59 activities and participation categories, and 31 environmental factors. The Common Brief Core Set comprised 60 categories, while the age-appropriate core sets included 73 categories in the preschool version (0- to 5-year-old children), 81 in the school-age version (6- to 16-year-old children and adolescents), and 79 in the older adolescent and adult version (⩾17-year-old individuals). The autism spectrum disorder Core Sets mark a milestone toward the standardized assessment of autism spectrum disorder-related functioning in educational, administrative, clinical, and research settings.

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Références citées
67
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
2 / 67 (3,0 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
2 / 344 (0,6 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 2 / 92 (2,2 %). Auteurices cité·es distinct·es identifié·es comme autistes : 1 / 285 (0,4 %).
Occurrences citées rattachées à la base AutiHub
92 / 344 (26,7 %)
Auteurices cité·es distinct·es rattaché·es : 49 / 285 (17,2 %)
Occurrences rattachées, non identifiées comme autistes
90 / 92 (97,8 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 90 / 344 (26,2 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 48 / 49 (98,0 %).
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