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Publication avec DOI Récupéré Publication crossref

Chimei M. Lee, LeeAnne Green Snyder, Laura A. Carpenter, Jill Harris, Stephen Kanne, Cora M. Taylor, Dustin E. Sarver, Kevin G. Stephenson, et al. (2023). Agreement of parent‐reported cognitive level with standardized measures among children with autism spectrum disorder. Autism Research, 16(6), 1210-1224. Wiley.

Date de publication
25/04/2023
Identifiant
10.1002/aur.2934
Auteurs
Chimei M. Lee, LeeAnne Green Snyder, Laura A. Carpenter, Jill Harris, Stephen Kanne, Cora M. Taylor, Dustin E. Sarver, Kevin G. Stephenson, Lisa H. Shulman, Ericka L. Wodka, Amy Esler, the SPARK Consortium
Source
Autism Research
Détails
16(6), 1210-1224
Type de référence
article
Éditeur
Wiley
Source de métadonnées
crossref

Résumé

Abstract Assessing cognitive development is critical in clinical research of autism spectrum disorder (ASD). However, collecting cognitive data from clinically administered assessments can add a significant burden to clinical research in ASD due to the substantial cost and time required, and it is often prohibitive in large‐scale studies. There is a need for more efficient, but reliable, methods to estimate cognitive functioning for researchers, clinicians, and families. To examine the degree to which caregiver estimates of cognitive level agree with actual measured intelligence/developmental scores and understand factors that may impact that agreement, 1,555 autistic individuals (81.74% male; age 18 months–18 years) were selected from a large cohort (Simons Foundation Powering Autism Research for Knowledge, SPARK). Results suggest that querying parents about recent testing results and developmental diagnoses can provide valid and useful information on cognitive ability. The agreement of parental estimates varied with age, measured cognitive ability, autistic traits, and adaptive skills. In the context of large‐scale research efforts, parent‐reported cognitive impairment may be a good proxy for categorical IQ range for survey‐based studies when specific IQ scores are not available, circumventing the logistical and financial obstacles of obtaining neuropsychological or neurodevelopmental testing.

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