Prevalence, understandings, and experiences of autism among Pacific Peoples: A scoping review

Woodford, E., Smith, J., Ruhe, T., Koka'ua, J., Scott, T., Bowden, N., Tupou, J., Monk, R., & McLay, L. (2026). Prevalence, understandings, and experiences of autism among Pacific Peoples: A scoping review. Research in Neurodiversity, 2, 100046. https://doi.org/10.1016/j.rin.2026.100046

Publication date: 17 Jun 2026 Added to AutiHub: 6 Jul 2026 Type: Article Article language: English

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9
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1 / 9 (11.1%)

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85
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0 / 85 (0.0%)
Cited author occurrences identified as autistic
0 / 379 (0.0%)
Among occurrences linked to AutiHub author records: 0 / 39 (0.0%). Distinct cited authors identified as autistic: 0 / 281 (0.0%).
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39 / 379 (10.3%)
Distinct linked cited authors: 22 / 281 (7.8%)
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39 / 39 (100.0%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 39 / 379 (10.3%). Distinct linked cited authors not identified as autistic: 22 / 22 (100.0%).
  1. Joseph K. Gona , Charles R. Newton , Kenneth Rimba , Rachel Mapenzi , Michael Kihara , Fons J. R. Van de Vijver et al. (2015). Parents’ and Professionals’ Perceptions on Causes and Treatment Options for Autism Spectrum Disorders (ASD) in a Multicultural Context on the Kenyan Coast . PLOS ONE, 10(8), e0132729. Public Library of Science (PLoS).
    Crossref OpenAlex
  2. *Abernethy, I. (2023). An investigation into telehealth-delivered interventions for autistic pacific children [Master’s thesis, University of Canterbury]. UC Research Repository. 10. 26021/14650.
    Type: Other
    Crossref
  3. Tamasailau Suaalii‐Sauni , Saunimaa Ma Fulu‐Aiolupotea (2014). Decolonising P acific research, building P acific research communities and developing P acific research tools: The case of the talanoa and the faafaletui in S amoa . Asia Pacific Viewpoint, 55(3), 331-344. Wiley.
    Crossref OpenAlex
  4. Alefaio (2018). Samoan indigenous psychology .
    Type: Other
    Crossref
  5. Gregory S. Liptak , Lauren B. Benzoni , Daniel W. Mruzek , Karen W. Nolan , Melissa A. Thingvoll , Christine M. Wade et al. (2008). Disparities in Diagnosis and Access to Health Services for Children with Autism: Data from the National Survey of Children's Health . Journal of Developmental & Behavioral Pediatrics, 29(3), 152-160. Ovid Technologies (Wolters Kluwer Health).
    Crossref OpenAlex
  6. González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.
    Crossref OpenAlex
  7. Tamara C. Daley (2002). The Need for Cross-Cultural Research on the Pervasive Developmental Disorders . Transcultural Psychiatry, 39(4), 531-550. SAGE Publications.
    Crossref OpenAlex
  8. Anae (2016). Teu Le Va: Samoan relational ethics . Knowledge Cultures, 4(3), 117.
    Type: Other
    Crossref
  9. Michael J Murray (2013). Children of migrant parents may be at greater risk of low-functioning autism spectrum disorder, but lower risk of high-functioning autism spectrum disorder . Evidence Based Mental Health, 16(1), 24-24. BMJ.
    Crossref OpenAlex
  10. Apulu-Pamatatau, N. I. (2022). Experiences of Pasifika fathers who care for children with Autism Spectrum Disorder (ASD) [Bachelor with Honours dissertation, Auckland University of Technology]. The AUT Research Repository Tuwhera. 〈 https://hdl.handle.net/10292/15157〉 .
    Type: Other
    Crossref
  11. Catherine A. Bent , Cheryl Dissanayake , Josephine Barbaro (2015). Mapping the diagnosis of autism spectrum disorders in children aged under 7 years in Australia, 2010–2012 . Medical Journal of Australia, 202(6), 317-320. Wiley.
    Crossref OpenAlex
  12. *Autism (2020). Autism/Takiwātanga: The pathway to diagnosis and supports in New Zealand .
    Type: Other
    Crossref
  13. Christina Birkin , Angelika Anderson , Fred Seymour , Dennis W. Moore (2008). A parent‐focused early intervention program for autism: Who gets access? Journal of Intellectual & Developmental Disability, 33(2), 108-116. Informa UK Limited.
    Crossref OpenAlex
  14. Benjamin Bailey , Joanne Arciuli (2020). Indigenous Australians with autism: A scoping review . Autism, 24(5), 1031-1046. SAGE Publications.
    Crossref OpenAlex
  15. Maria Valicenti-McDermott , Kathryn Hottinger , Rosa Seijo , Lisa Shulman (2012). Age at Diagnosis of Autism Spectrum Disorders . The Journal of Pediatrics, 161(3), 554-556. Elsevier BV.
    Crossref OpenAlex
  16. Jon Baio , Lisa Wiggins , Deborah L. Christensen , Matthew J Maenner , Julie Daniels , Zachary Warren et al. (2018). Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years — Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2014 . MMWR. Surveillance Summaries, 67(6), 1-23. Centers for Disease Control MMWR Office.
    Crossref OpenAlex
  17. Danielle Levac , Heather Colquhoun , Kelly K O'Brien (2010). Scoping studies: advancing the methodology . Implementation Science, 5(1), 69-69. Springer Science and Business Media LLC.
    Crossref OpenAlex
  18. Muideen Bakare , Ahamefule O Agomoh , Peter O Ebigbo , Julian Eaton , Kevin O Okonkwo , Jojo U Onwukwe et al. (2009). Etiological explanation, treatability and preventability of childhood autism: a survey of Nigerian healthcare workers' opinion . Annals of General Psychiatry, 8(1), 6. Springer Science and Business Media LLC.
    Crossref OpenAlex
  19. Mayada Elsabbagh , Gauri Divan , Yun‐Joo Koh , Young Shin Kim , Shuaib Kauchali , Carlos Marcín et al. (2012). Global Prevalence of Autism and Other Pervasive Developmental Disorders . Autism Research, 5(3), 160-179. Wiley.
    Type: Article DOI: 10.1002/aur.239 OpenAlex: https://openalex.org/W2098251401
    Crossref OpenAlex
  20. A. J. Baxter , Traolach Brugha , H. E. Erskine , R. W. Scheurer , T. Vos , J. G. Scott (2015). The epidemiology and global burden of autism spectrum disorders . Psychological Medicine, 45(3), 601-613. Cambridge University Press (CUP).
    Crossref OpenAlex
  21. Kiwi Tamasese , Carmel Peteru , Charles Waldegrave , Allister Bush (2005). Ole Taeao Afua, the New Morning: A Qualitative Investigation Into Samoan Perspectives on Mental Health and Culturally Appropriate Services . Australian & New Zealand Journal of Psychiatry, 39(4), 300-309. SAGE Publications.
    Crossref OpenAlex
  22. Maureen S. Durkin , Mayada Elsabbagh , Josephine Barbaro , Melissa Gladstone , Francesca Happé , Rosa A. Hoekstra et al. (2015). Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide . Autism Research, 8(5), 473-476. Wiley.
    Type: Article DOI: 10.1002/aur.1575 OpenAlex: https://openalex.org/W2101840039
    Crossref OpenAlex
  23. Abdullah S. Bernier , Adam W. McCrimmon (2022). Attitudes and Perceptions of Muslim Parents Toward Their Children with Autism: a Systematic Review . Review Journal of Autism and Developmental Disorders, 9(3), 320-333. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40489-021-00256-9
    Crossref
  24. David S. Mandell , Richard F. Ittenbach , Susan E. Levy , Jennifer A. Pinto-Martin (2007). Disparities in Diagnoses Received Prior to a Diagnosis of Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 37(9), 1795-1802. Springer Science and Business Media LLC.
    Crossref OpenAlex
  25. Bevan-Brown (2004). Māori perspectives of autistic spectrum disorder .
    Type: Other
    Crossref
  26. Johnny L. Matson , Alison M. Kozlowski (2011). The increasing prevalence of autism spectrum disorders . Research in Autism Spectrum Disorders, 5(1), 418-425. Elsevier BV.
    Crossref OpenAlex
  27. Lauren Bishop-Fitzpatrick , Amy J. H. Kind (2017). A Scoping Review of Health Disparities in Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 47(11), 3380-3391. Springer Science and Business Media LLC.
    Crossref OpenAlex
  28. Nicholas Bowden , Sheree Gibb , Richard Audas , Sally Clendon , Joanne Dacombe , Jesse Koka'ua et al. (2022). Association Between High-Need Education-Based Funding and School Suspension Rates for Autistic Students in New Zealand . JAMA Pediatrics, 176(7), 664. American Medical Association (AMA).
    Crossref OpenAlex
  29. Nicholas Bowden , Barry Milne , Richard Audas , Betony Clasby , Joanne Dacombe , Warren Forster et al. (2022). Criminal justice system interactions among young adults with and without autism: A national birth cohort study in New Zealand . Autism, 26(7), 1783-1794. SAGE Publications.
    Crossref OpenAlex
  30. Nicholas Bowden , Hiran Thabrew , Jesse Koka'ua , Richard Audas , Barry Milne , Kirsten Smiler et al. (2020). Autism spectrum disorder/Takiwātanga: An Integrated Data Infrastructure-based approach to autism spectrum disorder research in New Zealand . Autism, 24(8), 2213-2227. SAGE Publications.
    Crossref OpenAlex
  31. Christina D. Kang-Yi , Roy Richard Grinker , Rinad Beidas , Aneeza Agha , Rachel Russell , Sandeep B. Shah et al. (2018). Influence of Community-Level Cultural Beliefs about Autism on Families’ and Professionals’ Care for Children . Transcultural Psychiatry, 55(5), 623-647. SAGE Publications.
    Crossref OpenAlex
  32. Bramley (2005). Indigenous disparities in disease-specific mortality, a cross-country comparison: New Zealand, Australia, Canada, and the United States . New Zealand Medical Journal, 117(1207), U1215.
    Type: Other
    Crossref
  33. Andrea C. Tricco , Erin Lillie , Wasifa Zarin , Kelly K. O'Brien , Heather Colquhoun , Danielle Levac et al. (2018). PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation . Annals of Internal Medicine, 169(7), 467-473. American College of Physicians.
    Type: Article DOI: 10.7326/m18-0850 OpenAlex: https://openalex.org/W2891378911
    Crossref OpenAlex
  34. Bruno (2023). Indigenous autism in Canada: A scoping review . Journal of Autism and Developmental Disorders, 1.
    Type: Other
    Crossref
  35. Matthew J.F. Eggleston , Hiran Thabrew , Christopher M.A. Frampton , Katherine H.F. Eggleston , Shannon C. Hennig (2019). Obtaining an autism spectrum disorder diagnosis and supports: New Zealand parents’ experiences . Research in Autism Spectrum Disorders, 62, 18-25. Elsevier BV.
    Crossref OpenAlex
  36. *Craig (2016). University of Otago . The Health of Pacific Children and Young People with Chronic conditions and disabilities in New Zealand.
    Type: Other
    Crossref
  37. Diana Maree Kopua , Mark A Kopua , Patrick J Bracken (2020). Mahi a Atua: A Māori approach to mental health . Transcultural Psychiatry, 57(2), 375-383. SAGE Publications.
    Crossref OpenAlex
  38. Chun-Ya Kuo (2020). Encounter mental health in Tuvalu: The prior study . Australian & New Zealand Journal of Psychiatry, 54(2), 208-209. SAGE Publications.
    Crossref OpenAlex
  39. *Drysdale (2020). Rates of autism spectrum disorder diagnoses for children and adolescents in the Hutt Valley Region of New Zealand between 2012 and 2016 . Research in Autism Spectrum Disorders, 73.
    Type: Other
    Crossref
  40. Anne de Leeuw , Francesca Happé , Rosa A. Hoekstra (2020). A Conceptual Framework for Understanding the Cultural and Contextual Factors on Autism Across the Globe . Autism Research, 13(7), 1029-1050. Wiley.
    Type: Article DOI: 10.1002/aur.2276 OpenAlex: https://openalex.org/W3006691882
    Crossref OpenAlex
  41. Kathryn A. Smith , Jean-G. Gehricke , Suzannah Iadarola , Audrey Wolfe , Karen A. Kuhlthau (2020). Disparities in Service Use Among Children With Autism: A Systematic Review . Pediatrics, 145(Supplement_1), S35-S46. American Academy of Pediatrics (AAP).
    Crossref OpenAlex
  42. Matthew J. Maenner , Kelly A. Shaw , Jon Baio , EdS1 , Anita Washington , Mary Patrick et al. (2020). Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years — Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2016 . MMWR. Surveillance Summaries, 69(4), 1-12. Centers for Disease Control MMWR Office.
    Crossref OpenAlex
  43. Christina Fa’alogo-Lilo , Claire Cartwright (2021). Barriers and Supports Experienced by Pacific Peoples in Aotearoa New Zealand’s Mental Health Services . Journal of Cross-Cultural Psychology, 52(8-9), 752-770. SAGE Publications.
    Crossref OpenAlex
  44. Foliaki (2001). Pacific mental health services and workforce: Moving on the blueprint .
    Type: Other
    Crossref
  45. Jessica Tupou , Sally Curtis , Dorothy Taare-Smith , Ali Glasgow , Hannah Waddington (2021). Māori and autism: A scoping review . Autism, 25(7), 1844-1858. SAGE Publications.
    Crossref OpenAlex
  46. Freeth (2014). Autism across cultures: Perspectives from nonwestern cultures and implications for research .
    Type: Other
    Crossref
  47. Xuping Gao , Yilu Zhao , Ning Wang , Li Yang (2022). Migration modulates the prevalence of ASD and ADHD: a systematic review and meta-analysis . BMC Psychiatry, 22(1), 395-395. Springer Science and Business Media LLC.
    Crossref OpenAlex
  48. Matthew J. Maenner , Kelly A. Shaw , Amanda V. Bakian , Deborah A. Bilder , Maureen S. Durkin , Amy Esler et al. (2021). Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years — Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2018 . MMWR. Surveillance Summaries, 70(11), 1-16. Centers for Disease Control MMWR Office.
    Crossref OpenAlex
  49. Alison J. Gerlach , Amarens Matthiesen , Fiona J. Moola , Jackie Watts (2022). Autism and Autism Services with Indigenous Families and Children in the Settler-Colonial Context of Canada: A Critical Scoping Review . Canadian Journal of Disability Studies, 11(2), 1-39. University of Waterloo.
    Crossref OpenAlex
  50. Health Research Council of New Zealand (2003). Guidelines on Pacific health research .
    Type: Other
    Crossref
  51. *James, K. P. (2021). Cultural Adaptations of Evidence-based Practices in Supporting Children Diagnosed with Autism Spectrum Disorder [Doctoral dissertation, University of Alaska]. ScholarWorks University of Alaska. 〈 http://hdl.handle.net/11122/12303〉 .
    Type: Other
    Crossref
  52. *Kokaua (2023). Is parent education a factor in identifying autism/takiwātanga in an ethnic cohort of Pacific children in Aotearoa, New Zealand? A national cross-sectional study using linked administrative data . Autism The International Journal of Research and Practice.
    Type: Other
    Crossref
  53. Troy Ruhe , Betty Kolose-Pulefolau , Siale Foliaki , Nicholas Bowden , Rosalina Richards , Jesse Koka'ua (2022). Examining case complexity among Pasifika with autism/Takiwātanga in Aotearoa New Zealand: a national cross-sectional study . Pacific Health Dialog, 21(10), 673-682. Pasifika Medical Association.
    Crossref OpenAlex
  54. Matthew J. Maenner , Zachary Warren , Ashley Robinson Williams , Esther Amoakohene , Amanda V. Bakian , Deborah A. Bilder et al. (2023). Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years — Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2020 . MMWR. Surveillance Summaries, 72(2), 1-14. Centers for Disease Control MMWR Office.
    Crossref OpenAlex
  55. Eric Rubenstein , Salina Tewolde , Amy Michals , Matthew Fox , Na Wang (2023). Prevalence of Autism Among Medicaid-Enrolled Adults . JAMA Psychiatry, 80(12), 1284. American Medical Association (AMA).
    Crossref OpenAlex
  56. Kupa Kupa (2009). Te Vaka Atafaga: A Tokelau assessment model for supporting holistic mental health practice with Tokelau people in Aotearoa, New Zealand . Pacific Health Dialog, 15(1), 156.
    Type: Other
    Crossref
  57. Lies Van Den Plas , Gert-Jan Vanaken , Jean Steyaert , Kristien Hens , Ilse Noens (2024). Towards a neurodiversity-affirmative conceptualisation of psycho-education in the context of autism . Research in Autism Spectrum Disorders, 114, 102391. Elsevier BV.
    Crossref OpenAlex
  58. Lau (2024). Systematic review and meta-analysis: Prevalence of neurodevelopmental disorders among indigenous children .
    Type: Other
    Crossref
  59. *Liu (2023). Racial and ethnic disparities in geographic access to autism resources across the US . JAMA Network Open, 6(1).
    Type: Other
    Crossref
  60. *Malaelu (2023). vĀsifika: Our autism journeys .
    Type: Other
    Crossref
  61. *Masi (2022). Experiences of Pasifika mothers’ caring for a child with autism spectrum disorder [Bachelor with Honours dissertation, Auckland University of Technology] . The AUT Research Repository Tuwhera.
    Type: Other
    Crossref
  62. Maua-Hodges (2000). Ako pai ki aitutaki: Transporting or weaving cultures: Research report of field experiences to the Cook Islands .
    Type: Other
    Crossref
  63. *Mauigoa-Tekene (2013). Understanding special education from the perspectives of Pasifika families: Report to the Ministry of Education .
    Type: Other
    Crossref
  64. *Ministry for Pacific Peoples (2020). Pacific Aotearoa status report: A snapshot. 〈 https://www.mpp.govt.nz/assets/Reports/Pacific-Peoples-in-Aotearoa-Report.pdf〉 .
    Type: Other
    Crossref
  65. Ministry of Health (1995). Pacific Islands Peoples’ understanding of mental health. Strategic directions for the mental health services for Pacific Islands people .
    Type: Other
    Crossref
  66. Ministry of Health (2020). ’Ola Manuia: Pacific Health and Wellbeing Action Plan 2020-2025 .
    Type: Other
    Crossref
  67. *Ministry of Health. (2022). Demographic report of disabled people accessing Manatū Hauora (the Ministry of Health) disability support services. 〈 https://www.health.govt.nz/system/files/documents/publications/demographicreport2020_21_nov_v3.pdf〉 .
    Type: Other
    Crossref
  68. Ministry of Health (2023). Autism Spectrum Disorder (diagnosed, includes Asperger Syndrome) in children aged 2-14 years .
    Type: Other
    Crossref
  69. *Nafatali (2023). E lē Ma’i, o le Malosi!” (He’s not Sick, He’s Strong!): Pacific Parents’ Journey of Raising Autistic Children in Aotearoa [Doctoral dissertation, Massey University] .
    Type: Other
    Crossref
  70. *Page (2018). Teacher aides' views and experiences on the inclusion of students with Autism: Perspectives across two countries . International Education Journal Comparative Perspectives, 17(2), 60.
    Type: Other
    Crossref
  71. Salesa (2017). Island time: New Zealand’s Pacific futures .
    Type: Other
    Crossref
  72. *Simpson (2018). The health of children and young people with chronic conditions and disabilities in New Zealand 2016 .
    Type: Other
    Crossref
  73. Stats NZ(2024). 2023 Census National and Regional Data [Data set]. 〈 https://www.stats.govt.nz/infographics/2023-census-national-and-regional-data/#:~:text=Pacific%20peoples%3A%20442%2C632%20(8 . 9%25,%2C%20%2B21. 8%25%20since%202018)〉.
    Type: Other
    Crossref
  74. (n.d.). Te Kōpapa Reo Māori Kūki ‘Airani (2024, Jul 26). Te Kopapa Reo Māori members have come up with a Cook Islands name for AUTISM that closely resembles the NZ… [Image attached] [Facebook post]. Facebook. 〈 https://www.facebook.com/TKRM03/posts/pfbid02WXXUUiPABwfd8ZoNx3KWbJk7aDN8LJ4HKjsyWYU7gyeyXGUyxE4rjYpjm4g12SGrl?rdid=cdvFQbJYwM1qKqgD〉 .
    Type: Other
    Crossref
  75. Te Pou o te Whakaaro Nui (2010). Talking therapies for Pasifika Peoples: Best and promising practice guide for mental health and addiction services. 〈 https://d2ew8vb2gktr0m.cloudfront.net/files/resources/Talking-Therapies-for-Pasifika-Peoples-1.pdf〉 .
    Type: Other
    Crossref
  76. Te Pou o te Whakaaro Nui (2019). Te tau tītoki: A framework for supporting people on the autism spectrum. 〈 https://d2ew8vb2gktr0m.cloudfront.net/files/resources/Te-Tau-Titoki-autism-framework.pdf〉 .
    Type: Other
    Crossref
  77. Tiatia (2008). Pacific Cultural Competencies: A literature review .
    Type: Other
    Crossref
  78. Tu’itahi (2007). Fonua: A model for Pacific health promotion . Hauora A Newsletter of the Health promotion Forum, 8.
    Type: Other
    Crossref
  79. Tupai-Firestone (2016). Understanding Pasifika youth and the obesogenic environment, Auckland and Wellington, New Zealand . The New Zealand Medical Journal, 129(1434), 23.
    Type: Other
    Crossref
  80. U. S. Census Bureau. (2021). Race and ethnicity in the United States: 2010 Census and 2020 Census [Data set]. 〈 https://www.census.gov/library/visualizations/interactive/race-and-ethnicity-in-the-united-state-2010-and-2020-census.html〉 .
    Type: Other
    Crossref
  81. Vaioleti (2006). Talanoa research methodology: A developing position on Pacific research . Waikato Journal of Education, 12.
    Type: Other
    Crossref
  82. *Whaikaha - Ministry of Disabled People and Ministry of Education. (2022). Aotearoa New Zealand Autism Guideline: He Waka Huia Takiwātanga Rau: Third edition. https://www.whaikaha.govt.nz/assets/Autism-Guideline/Aotearoa-New-Zealand-Autism-Guideline-Third-Edition.pdf〉 .
    Type: Other
    Crossref
  83. Wilson (2011). Autism spectrum disorder in Australian Indigenous families: Issues of diagnosis, support and funding . Aboriginal and Islander Health Worker Journal, 35(5), 17.
    Type: Other
    Crossref
  84. Young (2022). The revitalised Fonofale as a research paradigm: A perspective on Pacific sexuality and reproduction research . Pacific Dynamics, 6(2), 186.
    Type: Other
    Crossref
  85. Zhang (2024). A systematic review: Factors related to culturally and linguistically diverse minority parents’ service decisions for their children with autism spectrum disorder . Review Journal of Autism & Developmental Disorders.
    Type: Other
    Crossref