The journey of late diagnosis of autism from an autoethnographic, neuroqueer, affective and performative perspective

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

About the autistic author marker

Codina, T. (2024). The journey of late diagnosis of autism from an autoethnographic, neuroqueer, affective and performative perspective. Matter: Journal of New Materialist Research, 8, 69-83. https://doi.org/10.1344/jnmr.v8.43459

Publication date: 10 Jan 2024 Added to AutiHub: 26 Oct 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
1
Publication authors identified as autistic
1 / 1 (100.0%)

Abstract

In this article, I present my journey of late diagnosis of autism employing autoethnography with video performance, affects and the concept and practice of “neuroqueering”. Within the framework of Performative New Materialism, the neurodiversity paradigm and Critical Autism Studies, I try to respond to the cultural narratives created by non-autistic authoritarian figures, generate a different point of view within Critical Autism Studies by correlating the autistic experience with affects, and give a step forward in changing how the autistic experience is culturally researched, written about and spoken of.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 27 Oct 2026 10:35.

Cited references
55
With a DOI
34
Without a DOI, from raw bibliography text
17
11 / 55 (20.0%) cited references include at least one author identified as autistic.
References with data to complete
20 / 55 (36.4%)
References with detected author names
39 / 55 (70.9%)
Without detected author names
16
Without a structured title
17
Without a stable identifier
17
References with raw author names still to review
14
References with external metadata lookup issues
1
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
60
From DOI or external metadata
56
From validated raw bibliography text
4
Raw names already validated
4
Raw names still to review
21
19 / 60 (31.7%) names are linked to an author already present in AutiHub. 41 / 60 (68.3%) names are not yet linked.
Names linked to a person identified as autistic
11 / 60 (18.3%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 11 / 19 (57.9%). Distinct people identified as autistic: 7 / 56 (12.5%).
  1. Gregg, Melissa 1978- , Seigworth, Gregory J. 1961- (2010). The Affect Theory Reader . Duke University Press.
    Crossref OpenAlex
  2. Tony E. Adams , Carolyn Ellis , Stacy Holman Jones (2017). Autoethnography . The International Encyclopedia of Communication Research Methods, 1-11. Wiley.
    Crossref OpenCitations
  3. Gayatri Chakravorty Spivak (2003). ¿Puede hablar el subalterno? Revista Colombiana de Antropología, 39, 297-364. Instituto Colombiano de Antropologia e Historia (ICANH).
    Crossref OpenAlex OpenCitations
  4. (n.d.). Baggs, Amanda (April 3, 2016). In my language [Video]. Youtube. https://www.youtube.com/watch?v=ysdPfRHE7zw&t=4s
    Type: Other
    Crossref
  5. (2010). The Affect Theory Reader . Duke University Press.
    OpenCitations
  6. Kristyn Gorton (2007). Theorizing emotion and affect . Feminist Theory, 8(3), 333-348. SAGE Publications.
    Crossref OpenAlex OpenCitations
  7. Barkved, Kaytlyn. (2019). Neuroqueer imaging: drawing an autistic autoethnography. [student work, The University of British Columbia]. Open collections. https://open.library.ubc.ca/soa/cIRcle/collections/ubctheses/24/items/1 . 0406250
    Type: Other
    Crossref
  8. Mariza G. Méndez (2014). Autoethnography as a research method: Advantages, limitations and criticisms . Colombian Applied Linguistics Journal, 15(2), 279. Universidad Distrital Francisco Jose de Caldas.
    Crossref OpenAlex OpenCitations
  9. S. Baron-Cohen (2002). The extreme male brain theory of autism . Trends in Cognitive Sciences, 6(6), 248-254. Elsevier BV.
    Crossref OpenCitations
  10. Christopher N. Gamble , Joshua S. Hanan , Thomas Nail (2019). WHAT IS NEW MATERIALISM? Angelaki, 24(6), 111-134. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  11. Mary McIntosh , Judith Butler (1991). Gender Trouble: Feminism and the Subversion of Identity . Feminist Review, 38(1), 113-114. SAGE Publications.
    Type: Article DOI: 10.2307/1395391 OpenAlex: https://openalex.org/W2038600245
    OpenAlex
  12. William M. Sughrua (2020). The Core of Critical Performative Autoethnography . Qualitative Inquiry, 26(6), 602-632. SAGE Publications.
    Crossref OpenAlex OpenCitations
  13. Sander L. Gilman , Gilles Deleuze , Felix Guattari , Brian Massumi (1989). A Thousand Plateaus: Capitalism and Schizophrenia . Journal of Interdisciplinary History, 19(4), 657. JSTOR.
    Type: Article DOI: 10.2307/203963 OpenAlex: https://openalex.org/W2056879345
    OpenAlex
  14. Itziar Gandarias Goikoetxea (2014). Tensiones y distensiones en torno a las relaciones de poder en investigaciones feministas con Producciones Narrativas . Quaderns de Psicologia, 16(1), 127-140. Universitat Autonoma de Barcelona.
    Crossref OpenAlex OpenCitations
  15. Butler, Judith. (2006). Gender Trouble: Feminism and the Subversion of Identity. Routledge
    Type: Other
    Crossref
  16. Tami Spry (2001). Performing Autoethnography: An Embodied Methodological Praxis . Qualitative Inquiry, 7(6), 706-732. SAGE Publications.
    Crossref OpenAlex OpenCitations
  17. Cano Abadía, Mónica. (2015). Nuevos Materialismos: Hacia feminismos no dualistas. Oxímora Revista Internacional de ética y política. 7, 34 - 47. https://revistes.ub.edu/index.php/oximora/article/view/14416/17829
    Type: Other
    Crossref
  18. Irina Manouilenko , Susanne Bejerot (2015). Sukhareva—Prior to Asperger and Kanner . Nordic Journal of Psychiatry, 69(6), 1761-1764. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  19. Deleuze, Gilles & Guattari, Felix. (1987). Thousand Plateaus: Capitalism and Schizophrenia. University of Minnesota Press.
    Type: Other
    Crossref
  20. (2007). The Affective Turn . Duke University Press.
    OpenCitations
  21. Mónica Cano Abadía (2015). Nuevos materialismos: hacia feminismos no dualistas . DOAJ (DOAJ: Directory of Open Access Journals).
    OpenAlex
  22. Dan Goodley (2010). Social Model of Disability . In Key Concepts in Learning Disabilities (pp. 243-247). SAGE Publications Ltd.
    OpenAlex
  23. Dan Goodley , Kirsty Liddiard , Katherine Runswick-Cole (2018). Feeling disability: theories of affect and critical disability studies . Disability & Society, 33(2), 197-217. Informa UK Limited.
    Type: Article DOI: 10.1080/09687599.2017.1402752
    Crossref OpenCitations
  24. Donna Haraway (1988). Situated Knowledges: The Science Question in Feminism and the Privilege of Partial Perspective . Feminist Studies, 14(3), 575. JSTOR.
    Type: Article DOI: 10.2307/3178066 OpenAlex: https://openalex.org/W3146083582
    Crossref OpenAlex OpenCitations
  25. Bradley Lewis (2019). Authoring Autism: On Rhetoric and Neurological Queerness . Journal of Medical Humanities, 40(2), 277-279. Springer Science and Business Media LLC.
    OpenAlex
  26. Mabel Moraña (2012). POSTSCRÍPTUM. EL AFECTO EN LA CAJA DE HERRAMIENTAS . In El lenguaje de las emociones (pp. 313-338). Iberoamericana Vervuert.
    Crossref OpenAlex OpenCitations
  27. Victoria Milner , Hollie McIntosh , Emma Colvert , Francesca Happé (2019). A Qualitative Exploration of the Female Experience of Autism Spectrum Disorder (ASD) . Journal of Autism and Developmental Disorders, 49(6), 2389-2402. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  28. Nancy A. Naples (2007). Strong Objectivity . The Blackwell Encyclopedia of Sociology. Wiley.
    Crossref OpenAlex OpenCitations
  29. Sandra Harding (1992). After the Neutrality Ideal: Science, Politics, and "Strong Objectivity" . Social Research: An International Quarterly, 59.
    Type: Article OpenAlex: https://openalex.org/W3128299043
    OpenAlex
  30. Lorde, Audre. (1984). “The Master’s Tools Will Never Dismantle the Master’s House.” Sister Outsider: Essays and Speeches. 110-114. https://collectiveliberation.org/wp-content/uploads/2013/01/Lorde_The_Masters_Tools.pdf
    Type: Other
    Crossref
  31. Manning, Taylor. (2015). Obstacles, transitions and perspectives: an in-depth look at the spectacle of deviant bodies. [student work, East Tennessee State University]. https://dc.etsu.edu/cgi/viewcontent.cgi?article=3888&context=etd
    Type: Other
    Crossref
  32. Isobel Moore , Gareth Morgan , Alice Welham , Ginny Russell (2022). The intersection of autism and gender in the negotiation of identity: A systematic review and metasynthesis . Feminism & Psychology, 32(4), 421-442. SAGE Publications.
    Crossref OpenCitations
  33. Susan Yi Sencindiver (2017). New Materialism . Oxford Bibliographies in Literary and Critical Theory. Oxford University PressNew York, NY.
    Crossref OpenAlex OpenCitations
  34. Mallipeddi, Nathan & VanDaalen, Rachel. (2021). Intersectionality Within Critical Autism Studies: A Narrative Review. Autism in Adulthood. 00, (00), 1-9. https://www.liebertpub.com/doi/10 . 1089/aut. 2021. 0014
    Type: Other
    Crossref
  35. Nathan V. Mallipeddi , Rachel A. VanDaalen (2022). Intersectionality Within Critical Autism Studies: A Narrative Review . Autism in Adulthood, 4(4), 281-289. SAGE Publications.
    OpenAlex
  36. (2007). The Affective Turn . Duke University Press.
    Crossref OpenAlex
  37. Millán López, Daniel. (2021). Guía autista: Consejos para sobrevivir en el loco mundo de los neurotípicos. Lulu.
    Type: Other
    Crossref
  38. Daniel Glenn (2022). Neuroqueer Heresies: Notes on the Neurodiversity Paradigm, Autistic Empowerment, and Postnormal Possibilities . World Futures, 78(5), 339-341. Informa UK Limited.
    OpenAlex
  39. Preciado, Beatriz. (2004). Género y performance. 3 episodios de un cybermanga feminista queer trans… Zehar: revista de Arteleku-ko aldizkaria, 54. 20-27 https://www.caladona.org/grups/uploads/2007/05/Genero_y_performance%5b1%5d.pdf
    Type: Other
    Crossref
  40. Nick Walker *Autistic author. Learn more… (2021). Neuroqueer heresies: notes on the neurodiversity paradigm, autistic empowerment, and postnormal possibilities . Neuroqueer heresies: Notes on the neurodiversity paradigm, autistic empowerment, and postnormal possibilities.
    Type: Other OpenAlex: https://openalex.org/W7011697317
    OpenAlex
  41. Revelles-Benavente, Beatriz & González, Ana. (2019). Género en la educación: Pedagogía y responsabilidad feministas en tiempos de crisis políticas. Género, igualdad y justicia social.
    Type: Other
    Crossref
  42. Deleuze, Gilles 1925-1995 , Guattari, Félix 1930-1992 (2012). A thousand plateaus capitalism and schizophrenia .
    Type: Article OpenAlex: https://openalex.org/W7015695654
    OpenAlex
  43. Butler, Judith 1956- (1999). Gender trouble: feminism and the subversion of identity .
    Type: Book OpenAlex: https://openalex.org/W7038121419
    OpenAlex
  44. Spivak, Gayatri. (1998). ¿Puede hablar el sujeto subalterno?. Orbis tertius, 3 (6), 175-235. https://www.memoria.fahce.unlp.edu.ar/art_revistas/pr . 2732/pr. 2732.pdf
    Type: Other
    Crossref
  45. Jim Sinclair *Autistic author. Learn more… Sinclair, Jim. (1992). Bridging the gaps: An inside-out view of autism (or, do you know what I don’t know?) High-functioning individuals with autism. New York. Plenum press.
    Type: Other
    Crossref
  46. Judy Singer *Autistic author. Learn more… Singer, Judy. (1998). Odd people in: the birth of comunity amongst people on the “autistic spectrum”. A personal exploration of a new social movement based on neurological diversity. A thesis presented to the faculty of Humanities and Social Sciences in partial fulfilment of the requirements for the degree of Bachelor of Arts Social Science (Honours), Faculty of Humanities and Social Science, University of Technology, Sydney, 1998. Submitted September 1998. https://www.academia.edu/27033194/Odd_People_In_The_Birth_of_Community_amongst_people_on_the_Autistic_Spectrum_A_personal_exploration_based_on_neurological_diversity
    Type: Other
    Crossref
  47. Shakespeare, Tom. (2006). The social model of disability. The disability studies reader, 2, 197-204. http://thedigitalcommons.org/docs/shakespeare_social-model-of-disability.pdf
    Type: Other
    Crossref
  48. Nick Walker *Autistic author. Learn more… Walker, Nick. (2019). Transformative somatic practices and autistic potentials: an autoethnographic exploration. https://www.proquest.com/openview/e80b77f7f73b23c3cffbf0d332d94cdb/1?pq-origsite=gscholar&cbl=18750&diss=y
    Type: Other
    Crossref
  49. Nick Walker *Autistic author. Learn more… Walker, Nick. (2021). Neuroqueer Heresies: Notes on the Neurodiversity Paradigm, Autistic Empowerment, and Postnormal Possibilities. Autonomous Press.
    Type: Other
    Crossref