Identifying Autism in Women Diagnosed with Borderline Personality Disorder: Clinician and Lived Experience Perspectives

This publication is included in the Autistic Autism Scholarship Project. two authors of this publication are identified as autistic in the project.

About the autistic author marker

Parker, J., Thompson, E., Mandy, W., McCabe, R., Stark, E., & Barnicot, K. (2026). Identifying Autism in Women Diagnosed with Borderline Personality Disorder: Clinician and Lived Experience Perspectives. Autism in Adulthood. https://doi.org/10.1177/25739581261486817

Journal or book title
Autism in Adulthood
Publisher
SAGE Publications
Article number
25739581261486817
Publication date: 17 Sep 2026 Added to AutiHub: 24 Sep 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
6
Publication authors identified as autistic
2 / 6 (33.3%)

Abstract

Background: Growing numbers of people with a borderline personality disorder (BPD) diagnosis are querying whether they have undiagnosed autism. Previous qualitative research has not focused on identifying barriers and facilitators to this diagnostic journey, has not explored the perspectives of clinicians, and has not included the experiences of people who are unsure whether they are autistic or not. We aimed to understand lived experience and clinician perspectives on facilitators and barriers to recognizing undiagnosed autism in women and people assigned female at birth (AFAB) with a diagnosis of personality disorder. Methods: We carried out in-depth qualitative interviews with 15 mental health clinicians and 15 women/AFAB people who had a current or prior diagnosis of BPD and identified as definitely or possibly autistic, from across the United Kingdom. We analyzed the interview data using reflexive thematic analysis. Results: Both clinician and lived experience participants identified many barriers to recognizing autism in women and AFAB people with a BPD diagnosis: BPD diagnoses being made with minimal assessment during mental health crises, systemic incentivization to diagnose BPD in order to access psychological therapies, siloed service pathways, clinician reluctance to question preexisting BPD diagnoses, pathologizing of patients for questioning their BPD diagnosis, and lack of clinician knowledge about different presentations of autism or about ways that autism presents similarly and differently to BPD. Participants identified numerous ways in which autistic characteristics could be misattributed as symptomatic of BPD, further contributing to missed or misdiagnosis. Conclusion: Our findings suggest that improving clinician awareness of different presentations of autism, and of differential diagnosis from BPD, is likely to reduce misdiagnosis, alongside avoiding rapid diagnostic decisions during mental health crises. Our study highlights the value of being open to questioning preexisting diagnoses, joint working across autism and personality disorder services, and improving transdiagnostic access to psychological interventions.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 17:07.

Cited references
63
With a DOI
51
Without a DOI, from raw bibliography text
12
8 / 63 (12.7%) cited references include at least one author identified as autistic.
References with data to complete
8 / 63 (12.7%)
References with detected author names
55 / 63 (87.3%)
Without detected author names
8
Without a structured title
8
Without a stable identifier
12
References with raw author names still to review
8
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
253
From DOI or external metadata
253
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
8
117 / 253 (46.2%) names are linked to an author already present in AutiHub. 136 / 253 (53.8%) names are not yet linked.
Names linked to a person identified as autistic
9 / 253 (3.6%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 9 / 117 (7.7%). Distinct people identified as autistic: 9 / 228 (3.9%).
  1. Vasiliki Kentrou , Milou Oostervink , Anke Scheeren , Sander Begeer (2021). Stability of co-occurring psychiatric diagnoses in autistic men and women . Research in Autism Spectrum Disorders, 82(82), 101736. Elsevier BV.
    Crossref OpenAlex
  2. Virginia Braun , Victoria Clarke (2006). Using thematic analysis in psychology . Qualitative Research in Psychology, 3(2), 77-101. Informa UK Limited.
    Crossref OpenAlex
  3. Meng-Chuan Lai , Simon Baron-Cohen (2015). Identifying the lost generation of adults with autism spectrum conditions . The Lancet Psychiatry, 2(11), 1013. Elsevier BV.
    Crossref OpenAlex
  4. Clare Shaw , Gillian Proctor (2005). I. Women at the Margins: A Critique of the Diagnosis of Borderline Personality Disorder . Feminism & Psychology, 15(4), 483-490. SAGE Publications.
    Crossref OpenAlex
  5. Goldie A. McQuaid , Allison B. Ratto , Allison Jack , Alexis Khuu , Jessica V Smith , Sean C Duane et al. (2024). Gender, assigned sex at birth, and gender diversity: Windows into diagnostic timing disparities in autism . Autism, 28(11), 2806-2820. SAGE Publications.
    Crossref OpenAlex
  6. Dana Becker , Sharon Lamb (1994). Sex bias in the diagnosis of borderline personality disorder and posttraumatic stress disorder. Professional Psychology: Research and Practice, 25(1), 55-61. American Psychological Association (APA).
    Crossref OpenAlex
  7. Maj‐Britt Posserud , Berit Skretting Solberg , Anders Engeland , Jan Haavik , Kari Klungsøyr (2021). Male to female ratios in autism spectrum disorders by age, intellectual disability and attention‐deficit/hyperactivity disorder . Acta Psychiatrica Scandinavica, 144(6), 635-646. Wiley.
    Crossref OpenAlex
  8. Vanessa Hus , Catherine Lord (2014). The Autism Diagnostic Observation Schedule, Module 4: Revised Algorithm and Standardized Severity Scores . Journal of Autism and Developmental Disorders, 44(8), 1996-2012. Springer Science and Business Media LLC.
    Crossref OpenAlex
  9. Laura Hull , K.V. Petrides , Will Mandy (2020). The Female Autism Phenotype and Camouflaging: a Narrative Review . Review Journal of Autism and Developmental Disorders, 7(4), 306-317. Springer Science and Business Media LLC.
    Crossref OpenAlex
  10. Phil McEvoy , David Richards (2003). Critical realism: a way forward for evaluation research in nursing? Journal of Advanced Nursing, 43(4), 411-420. Wiley.
    Crossref OpenAlex
  11. Alexandra Leedham , Andrew R. Thompson , Richard Smith , Megan Freeth (2020). ‘I was exhausted trying to figure it out’: The experiences of females receiving an autism diagnosis in middle to late adulthood . Autism, 24(1), 135. SAGE Publications.
    Crossref OpenAlex
  12. Meng-Chuan Lai , Michael Lombardo , Greg Pasco , Amber Ruigrok , Sally J. Wheelwright , Susan A. Sadek et al. (2011). A Behavioral Comparison of Male and Female Adults with High Functioning Autism Spectrum Conditions . PLoS ONE, 6(6), e20835. Public Library of Science (PLoS).
    Crossref OpenAlex
  13. Kristy Koehne , Bridget Hamilton , Natisha Sands , Cathy Humphreys (2013). Working around a contested diagnosis: Borderline personality disorder in adolescence . Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, 17(1), 37-56. SAGE Publications.
    Crossref OpenAlex
  14. Felicity Sedgewick , Vivian Hill , Rhiannon Yates , Leanne Pickering , Elizabeth Pellicano (2016). Gender Differences in the Social Motivation and Friendship Experiences of Autistic and Non-autistic Adolescents . Journal of Autism and Developmental Disorders, 46(4), 1297-1306. Springer Science and Business Media LLC.
    Crossref OpenAlex
  15. Laura Hull , K.V. Petrides , Carrie T. Allison , P. Smith , Simon Baron-Cohen , Meng-Chuan Lai et al. (2017). “Putting on My Best Normal”: Social Camouflaging in Adults with Autism Spectrum Conditions . Journal of Autism and Developmental Disorders, 47(8), 2519-2534. Springer Science and Business Media LLC.
    Crossref OpenAlex
  16. Kiyoharu Takara , Tsuyoshi Kondo (2015). How and Why is Autism Spectrum Disorder Misdiagnosed in Adult Patients? - From Diagnostic Problem to Management for Adjustment - . Mental Health in Family Medicine, 11(02), 73. JCF Corporate Consulting Services.
    Crossref OpenAlex
  17. C Ellie Wilson , Clodagh M Murphy , Grainne McAlonan , Dene M Robertson , Debbie Spain , Hannah Hayward et al. (2016). Does sex influence the diagnostic evaluation of autism spectrum disorder in adults? Autism, 20(7), 808-819. SAGE Publications.
    Crossref OpenAlex
  18. Kirsti Malterud , Volkert Dirk Siersma , Ann Dorrit Guassora (2016). Sample Size in Qualitative Interview Studies . Qualitative Health Research, 26(13), 1753-1760. SAGE Publications.
    Crossref OpenAlex
  19. Vasiliki Kentrou , Lucy A Livingston , Rachel Grove , Rosa A. Hoekstra , Sander Begeer (2024). Perceived misdiagnosis of psychiatric conditions in autistic adults . eClinicalMedicine, 71, 102586. Elsevier BV.
    Crossref OpenAlex
  20. Gould J (2011). Missed diagnosis or misdiagnosis? Girls and women on the autism spectrum . GAP, 12(1), 34.
    Type: Other
    Crossref
  21. Laura Foran Lewis (2016). Exploring the Experience of Self-Diagnosis of Autism Spectrum Disorder in Adults . Archives of Psychiatric Nursing, 30(5), 575-580. Elsevier BV.
    Crossref OpenAlex
  22. Wouter Braamhorst , Jill Lobbestael , Wilco H.M. Emons , Arnoud Arntz , Cilia L.M. Witteman , Marrie H.J. Bekker (2015). Sex Bias in Classifying Borderline and Narcissistic Personality Disorder . Journal of Nervous & Mental Disease, 203(10), 804-808. Ovid Technologies (Wolters Kluwer Health).
    Crossref OpenAlex
  23. Sheena K. Au‐Yeung , Louise Bradley , Ashley Robertson , Rebecca Shaw , Simon Baron-Cohen , Sarah Cassidy (2019). Experience of mental health diagnosis and perceived misdiagnosis in autistic, possibly autistic and non-autistic adults . Autism, 23(6), 1508-1518. SAGE Publications.
    Crossref OpenAlex
  24. González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.
    Crossref OpenAlex
  25. Rachel Loomes , Laura Hull , Will Mandy (2017). What Is the Male-to-Female Ratio in Autism Spectrum Disorder? A Systematic Review and Meta-Analysis . Journal of the American Academy of Child & Adolescent Psychiatry, 56(6), 466-474. Elsevier BV.
    Crossref OpenAlex
  26. Rydén G (2008). Borderline personality disorder and autism spectrum disorder in females: A cross-sectional study . Clin Neuropsychiatry, 5(1), 22.
    Type: Other
    Crossref
  27. Traolach Brugha , Freya Tyrer , Andrew Leaver , Samantha Lewis , Sarah Seaton , Zoe Morgan et al. (2020). Testing adults by questionnaire for social and communication disorders, including autism spectrum disorders, in an adult mental health service population . International Journal of Methods in Psychiatric Research, 29(1), e1814-e1814. Wiley.
    Type: Article DOI: 10.1002/mpr.1814 OpenAlex: https://openalex.org/W2997317050
    Crossref OpenAlex
  28. Nader Perroud , Deborah Badoud , Sébastien Weibel , Rosetta Nicastro , Roland Hasler , Anne-Lise Küng et al. (2017). Mentalization in adults with attention deficit hyperactivity disorder: Comparison with controls and patients with borderline personality disorder . Psychiatry Research, 256, 334-341. Elsevier BV.
    Crossref OpenAlex
  29. Goldie A. McQuaid , John F. Strang , Allison Jack (2024). Borderline Personality as a Factor in Late, Missed, and Mis-Diagnosis in Autistic Girls and Women: A Conceptual Analysis . Autism in Adulthood, 6(4), 401-427. SAGE Publications.
    Crossref OpenAlex
  30. (n.d.). 20. Aves W. #AutismNotPD: Borderline personality disorder vs. autism spectrum disorder. Psychiatry is Driving Me Mad. https://www.psychiatryisdrivingmemad.co.uk/post/autismnotpd-borderline-personality-disorder-vs-autism-spectrum-disorder [Last accessed: July24 2026].
    Type: Other
    Crossref
  31. R. Lester , L. Prescott , Mark McCormack , M. Sampson , North West Boroughs Healthcare, NHS Foundation Trust (2020). Service users' experiences of receiving a diagnosis of borderline personality disorder: A systematic review . Personality and Mental Health, 14(3), 263-283. Wiley.
    Type: Article DOI: 10.1002/pmh.1478 OpenAlex: https://openalex.org/W3007701616
    Crossref OpenAlex
  32. Robin Iliffe‐Lewis , Alison M. Bacon (2026). ‘The true me’: Unravelling the dual narrative of borderline personality disorder and autistic spectrum disorder . British Journal of Clinical Psychology, 65(2), 689-707. Wiley.
    Crossref OpenAlex
  33. Katharina Krämer , Annekatrin Vetter , Ulrich Schultz-Venrath , Kai Vogeley , Sophia Reul (2021). Mentalization-Based Treatment in Groups for Adults With Autism Spectrum Disorder . Frontiers in Psychology, 12, 708557-708557. Frontiers Media SA.
    Crossref OpenAlex
  34. Julie Cumin , Sandra Pelaez , Laurent Mottron (2022). Positive and differential diagnosis of autism in verbal women of typical intelligence: A Delphi study . Autism, 26(5), 1153-1164. SAGE Publications.
    Crossref OpenAlex
  35. Rachel Sarr , Debbie Spain , Alice M. G. Quinton , Francesca Happé , Chris R. Brewin , Jonathan Radcliffe et al. (2025). Differential diagnosis of autism, attachment disorders, complex post‐traumatic stress disorder and emotionally unstable personality disorder: A Delphi study . British Journal of Psychology, 116(1), 1-33. Wiley.
    Crossref OpenAlex
  36. Doha Bemmouna , Romain Coutelle , Sébastien Weibel , Luisa Weiner (2022). Feasibility, Acceptability and Preliminary Efficacy of Dialectical Behavior Therapy for Autistic Adults without Intellectual Disability: A Mixed Methods Study . Journal of Autism and Developmental Disorders, 52(10), 4337-4354. Springer Science and Business Media LLC.
    Crossref OpenAlex
  37. Virginia Braun , Victoria Clarke , Nikki Hayfield , Louise Davey , Elizabeth Jenkinson (2022). Doing Reflexive Thematic Analysis . In Supporting Research in Counselling and Psychotherapy (pp. 19-38). Springer International Publishing.
    Crossref OpenAlex
  38. Matthew de Broize , Kiah Evans , Andrew Whitehouse , John Wray , Valsamma Eapen , Anna Urbanowicz (2022). Exploring the Experience of Seeking an Autism Diagnosis as an Adult . Autism in Adulthood, 4(2), 130-140. SAGE Publications.
    Crossref OpenAlex
  39. (n.d.). 32. Improving Recognition and Understanding of Autism and Personality Disorder. Our research. study 1. https://www.autismandpersonalitydisorder.org/detailed-overview-of-our-research-studies [Last accessed: July2 2026].
    Type: Other
    Crossref
  40. Janina Brede , Eilidh Cage , Joseph Trott , Lisa Palmer , Anika Smith , Lucy Serpell et al. (2022). “We Have to Try to Find a Way, a Clinical Bridge” - autistic adults' experience of accessing and receiving support for mental health difficulties: A systematic review and thematic meta-synthesis . Clinical Psychology Review, 93, 102131. Elsevier BV.
    Crossref OpenAlex
  41. Nicolò Zarotti , Clive Hudson , Hannah‐Rose Human , Greco Muratori , Paul Fisher (2022). ‘It's working together with what you've got’: Healthcare professionals' experiences of working with people with combined intellectual disability and personality disorder diagnoses . Journal of Applied Research in Intellectual Disabilities, 35(6), 1317-1326. Wiley.
    Crossref OpenAlex
  42. (n.d.). 35. Lumivero. Nvivo (version 14). 2023. https://lumivero.com/products/nvivo/
    Type: Other
    Crossref
  43. Jay Watts (2023). Engendering misunderstanding: autism and borderline personality disorder . International Journal of Psychiatry in Clinical Practice, 27(3), 316-317. Informa UK Limited.
    Crossref OpenAlex
  44. Jay Watts (2024). The epistemic injustice of borderline personality disorder . BJPsych International, 21(4), 78-82. Royal College of Psychiatrists.
    Crossref OpenAlex
  45. Janine Robinson , Ailsa Russell , Kate Johnston , Louise Acker , Jason Crabtree , Ayla Humphrey et al. (2024). Expanding and developing the workforce to serve autistic people and people with intellectual disability . Clinical Psychology Forum, 1(375), 60-74. British Psychological Society.
    Crossref OpenAlex
  46. (n.d.). 43. National Institute for Health and Care Excellence. Borderline personality disorder: Recognition and management [Clinical Guideline CG78]. National Institute for Health and Care Excellence; 2009. https://www.nice.org.uk/guidance/cg78
    Type: Other
    Crossref
  47. (n.d.). 44. NHS Digital. Autism waiting time statistics. 2025. https://digital.nhs.uk/data-and-information/publications/statistical/autism-statistics
    Type: Other
    Crossref
  48. Grace Trundle , Verity Chester , Zoe Alexander , Phoebe Morris , Indigo Crump (2025). Guidelines to Assist in Autism Diagnostic Assessments with Females: A Delphi Study . Autism in Adulthood. SAGE Publications.
    Crossref OpenAlex
  49. Tiffany Nelson , Hannah Lichwa (2025). The lived experiences of masking black Autistic girls in UK education: “before people see the autism, they see my race.” . Educational Psychology in Practice, 41(4), 417. Informa UK Limited.
    Crossref OpenAlex
  50. Desiree R Jones , Monique Botha *Autistic author. Learn more… , Noah Sasson (2026). “I’m Kind of Stuck in the Middle. I Don’t Know Where to Go”: Race, Autism, and Intersectional Stigma Among Black and White Autistic Adults . Autism in Adulthood. SAGE Publications.
    Crossref OpenAlex
  51. Rachael C. Martin , Aspasia Stacey Rabba , Martin Sellbom (2026). Overlapping symptoms of attention deficit hyperactivity disorder (ADHD ), autism, and personality disorder in a community sample . British Journal of Clinical Psychology, 65(2), 508-529. Wiley.
    Crossref OpenAlex
  52. Wright BJD (2016). An autism spectrum disorders forum: A model for the effective use of multidisciplinary assessment and intervention planning with limited clinical resources . Autism-Open Access, 6(4), 1000186.
    Type: Other
    Crossref
  53. (n.d.). 52. NHS England. A national framework to deliver improved outcomes in all-age autism assessment pathways: Guidance for integrated care boards. NHSE; 2023. https://www.england.nhs.uk/publication/autism-diagnosis-and-operational-guidance/ [Last accessed: June 2026].
    Type: Other
    Crossref
  54. (n.d.). 53. National Institute for Health and Care Excellence. Autism spectrum disorder in adults: Diagnosis and management [Clinical guideline Reference number:CG142]. National Institute for Health and Care Excellence; 2021. https://www.nice.org.uk/guidance/cg142 [Last accessed: May 2026].
    Type: Other
    Crossref
  55. (n.d.). 54. Sussex Partnership NHS Foundation Trust. Complex Emotional Needs (CEN) service. 2026. https://www.sussexpartnership.nhs.uk/your-mental-health/getting-help/complex-emotional-needs-services [Last accessed: May 2026].
    Type: Other
    Crossref
  56. O’Sullivan S (2025). The Age of Diagnosis: How the Overdiagnosis Epidemic is Making Us Sick . The Age of Diagnosis: How the Overdiagnosis Epidemic is Making Us Sick.
    Type: Other
    Crossref