Description and Evaluation of a Co-design Process Involved in the Creation of a Workforce Training Package Aiding Sport and Exercise Professionals Work with Autistic Young People
This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.
About the autistic author markerHill, J., Williams, B., Wiltshire, G. E., & Gomersall, S. R. (2025). Description and Evaluation of a Co-design Process Involved in the Creation of a Workforce Training Package Aiding Sport and Exercise Professionals Work with Autistic Young People. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-025-06912-x
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Authors
Abstract
Increasingly, researchers are encouraged to include consumers and stakeholders in the development of health and service provider education. This is particularly important for education relating to autistic people to ensure that resources are developed from a neurodiversity-affirming lens. Limited literature exists outlining or evaluating the processes used within co-design autism research. This study aimed to describe and qualitatively evaluate the co-design process used in the development of a training package for community sport and exercise professionals working with autistic young people. Semi-structured interviews were conducted with the 10 consumers and stakeholders involved in this co-design project. Interviews were analysed using inductive thematic analysis. From the transcripts, four themes emerged. In theme 1 members described characteristics relating to the co-design process they perceived enhanced their engagement. Members emphasised the importance of the project being consumer and stakeholder led, and flexible to support each person's needs. In theme 2 members described the connection they felt to the other group members, facilitated by the creation of an emotionally safe environment. In theme 3 members discussed how the processes put in place and the supportive environment created resulted in a holistic understanding of the skills and knowledge community sport and exercise professionals need to effectively work with young autistic people. In theme 4 members provided recommendations for future co-design research. Consumer and stakeholders involved in this project described an overall positive experience of the co-design process, with findings resulting in three key recommendations to support future autism co-design research.
Bibliography cited by this reference
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Cited bibliography overview
These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 07:50.
- With a DOI
- 31
- Without a DOI, from raw bibliography text
- 7
- References with detected author names
- 31 / 38 (81.6%)
- Without detected author names
- 7
- Without a structured title
- 8
- Without a stable identifier
- 7
- References with raw author names still to review
- 7
- References with external metadata lookup issues
- 0
- From DOI or external metadata
- 129
- From validated raw bibliography text
- 0
- Raw names already validated
- 0
- Raw names still to review
- 9
-
Karen Arblaster , Lynette Mackenzie , Karen Willis (2015). Mental health consumer participation in education: a structured literature review . Australian Occupational Therapy Journal, 62(5), 341-362. Wiley.Crossref OpenAlex OpenCitations
-
Randy Zhu , Dianna Hardy , Trina Myers (2019). Co-designing with Adolescents with Autism Spectrum Disorder . Proceedings of the 31st Australian Conference on Human-Computer-Interaction, 106-116. ACM.Crossref OpenAlex OpenCitations
-
Laura Benton , Hilary Johnson (2014). Structured approaches to participatory design for children: can targeting the needs of children with autism provide benefits for a broader child population? Instructional Science, 42(1), 47-65. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Bryan Boyle , Inmaculada Arnedillo-Sanchez (2022). The Inclusion of Children on the Autism Spectrum in the Design of Learning Technologies: A Small-Scale Exploration of Adults’ Perspectives . Frontiers in Education, 7, 1. Frontiers Media SA.Crossref OpenAlex OpenCitations
-
Narmene Hamsho , Abbey Eisenhower , Megan Galligan , Melissa A. Collier-Meek , Yasamin Bolourian , Sarah Levinson et al. (2024). Drawing on Key Partner Perspectives of an Autism-Focused Professional Development Program: A Conceptual Framework for Coaching . Journal of Educational and Psychological Consultation, 34(1), 14-43. Informa UK Limited.Crossref OpenAlex OpenCitations
-
RISTO TELAMA , XIAOLIN YANG , ESKO LESKINEN , ANNA KANKAANPÄÄ , MIRJA HIRVENSALO , TUIJA TAMMELIN et al. (2014). Tracking of Physical Activity from Early Childhood through Youth into Adulthood . Medicine & Science in Sports & Exercise, 46(5), 955-962. Ovid Technologies (Wolters Kluwer Health).Crossref OpenAlex OpenCitations
-
R dos Santos Ferreira (2024). dos Santos Ferreira, R., & Chaves de Castro, T. (2024). Participatory and inclusive design models from the perspectives of universal design for children with autism: A systematic review. Education Science, 14, 613. https://doi.org/10 . 3390/edusci14060613 Education Science, 14, 613.Type: Other DOI: 10.3390/edusci14060613Crossref
-
Randy Zhu , Dianna Hardy , Trina Myers (2022). Community Led Co-Design of a Social Networking Platform with Adolescents with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 52(1), 38-51. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Satu Elo , Maria Kääriäinen , Outi Kanste , Tarja Pölkki , Kati Utriainen , Helvi Kyngäs (2014). Qualitative Content Analysis . Sage Open, 4(1), 1. SAGE Publications.Crossref OpenAlex OpenCitations
-
Ellen Fraser-Barbour , Sally Robinson , Sandra Gendera , I. Burton-Clark , Karen R. Fisher , June Alexander et al. (2025). Shifting power to people with disability in co-designed research . Disability & Society, 40(2), 259-280. Informa UK Limited.Crossref OpenAlex OpenCitations
-
A. Tong , P. Sainsbury , J. Craig (2007). Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups . International Journal for Quality in Health Care, 19(6), 349-357. Oxford University Press (OUP).Crossref OpenAlex OpenCitations
-
Sarah Gregor , Nicole Bruni , Petar Grkinic , Lindsey Schwartz , Aimee McDonald , Patricia Thille et al. (2018). Parents’ perspectives of physical activity participation among Canadian adolescents with Autism Spectrum Disorder . Research in Autism Spectrum Disorders, 48, 53-62. Elsevier BV.Crossref OpenAlex OpenCitations
-
Scott W. T. McNamara , Sean Healy , Melissa Bittner , Josephine Blagrave (2023). Physical educators’ experiences and perceptions towards teaching autistic children: a mixed methods approach . Sport, Education and Society, 28(5), 522-535. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Laura Benton , Hilary Johnson , Emma Ashwin , M. Brosnan , Beate Grawemeyer (2012). Developing IDEAS . Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, 2599-2608. ACM.Crossref OpenAlex OpenCitations
-
Justin A. Haegele , Anthony J. Maher (2023). A creative non-fiction account of autistic youth integrated physical education experiences . Disability & Society, 38(9), 1647-1666. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Robert C. Townsend , Christopher J. Cushion , Brett Smith (2018). A social relational analysis of an impairment-specific mode of disability coach education . Qualitative Research in Sport, Exercise and Health, 10(3), 346-361. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Ye In (Jane) Hwang , Preeyaporn Srasuebkul , Kitty-Rose Foley , Samuel R. C. Arnold , Julian Trollor (2019). Mortality and cause of death of Australians on the autism spectrum . Autism Research, 12(5), 806-815. Wiley.Crossref OpenAlex OpenCitations
-
Martin Toms , Ruth Jeanes (2022). Routledge Handbook of Coaching Children in Sport . Routledge.Crossref OpenAlex OpenCitations
-
Rachael Maun , Marc Fabri , Pip Trevorrow (2024). Participatory Methods to Engage Autistic People in the Design of Digital Technology: A Systematic Literature Review . Journal of Autism and Developmental Disorders, 54(8), 2960-2971. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Jenny McMahon , Gilly-Elle Wiltshire *Autistic author. Learn more… , Kerry R. McGannon , Christopher Rayner (2020). Children with autism in a sport and physical activity context: a collaborative autoethnography by two parents outlining their experiences . Sport, Education and Society, 25(9), 1002-1014. Informa UK Limited.
-
Peter Slattery , Alexander K. Saeri , Peter Bragge (2020). Research co-design in health: a rapid overview of reviews . Health Research Policy and Systems, 18(1), 17. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Tracey Parnell , Kate Fiske , Kellie Stastny , Sarah Sewell , Melissa Nott (2023). Lived experience narratives in health professional education: educators’ perspectives of a co-designed, online mental health education resource . BMC Medical Education, 23(1), 946. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Mohamad Hassan Fadi Hijab , Bilikis Banire , Joselia Neves , Marwa Qaraqe , Achraf Othman , Dena Al Thani (2024). Co-design of Technology Involving Autistic Children: A Systematic Literature Review . International Journal of Human–Computer Interaction, 40(22), 7498-7516. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Elizabeth Weir , Carrie T. Allison , Varun Warrier , Simon Baron-Cohen (2021). Increased prevalence of non-communicable physical health conditions among autistic adults . Autism, 25(3), 681-694. SAGE Publications.Crossref OpenAlex OpenCitations
-
Joan Moyà-Köhler , Oriol Barat-Auleda , Núria Vallès-Peris , Miquel Domènech (2024). Infrastructuring Neurodiversity Publics: The Co-Design of an App for People with Autism . Scandinavian Journal of Disability Research, 26(1), 635-649. Stockholm University Press.Crossref OpenAlex OpenCitations
-
Dimitra Magkafa , Nigel Newbutt , Mark Palmer (2021). Implementing Co-Design Practices for the Development of a Museum Interface for Autistic Children . In Intelligent Systems Reference Library (pp. 421-443). Springer International Publishing.Crossref OpenAlex OpenCitations
-
Anna van der Lubbe , Hanna Swaab , Robert Vermeiren , Erica van den Akker , Wietske Ester (2026). Novel Insights into Obesity in Preschool Children with Autism Spectrum Disorder . Child Psychiatry & Human Development, 57(1), 2-9. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Ajrun Zamry (2024). Co-Design of Collaboration Monitoring Apps for Teacher-Children to support Autism in Religious Skills . National Academic Digital Repository of Ethiopia. University of Gondar.Crossref OpenAlex OpenCitations
-
Australian Government. (2022). National Autism Strategy. [Accessed on January 1, 2025]. Available at: https://www.dss.gov.au/national-autism-strategyType: OtherCrossref
-
Australian Parliament House. (2022). The Senate Select Committee on Autism: Services, support and life outcomes for autistic Australians. Commonwealth of Australia. https://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Autism/autism/ReportType: OtherCrossref
-
Chris Edwards *Autistic author. Learn more… , Tom Tutton , vicki gibbs (2024). Organized physical activity participation among autistic Australians: Barriers, enablers and implications for inclusion . Neurodiversity, 2. SAGE Publications.
-
Boyd, H., McKernon, S., & Old, A. (2010). Health Service Co-design. Auckland: Waitemata District Health Board. https://www.wdhb.org.nz/assets/Uploads/Documents/45f463d911/rttc_health-service-co-design-by-h-boyd.pdfType: OtherCrossref
-
Boyland, J. (2019). A social constructivist approach to the gathering of empirical data. Australian Counselling Research Journal, 30–34.Type: OtherCrossref
-
Gemma Williams *Autistic author. Learn more… , Rebecca Ellis *Autistic author. Learn more… , Willow Holloway *Autistic author. Learn more… , Selena Caemawr *Autistic author. Learn more… , Monique Craine *Autistic author. Learn more… , Kathryn Williams *Autistic author. Learn more… et al. (2025). ‘Building our own house’ as an insider-only Community-Partnered Participatory Research Council: Co-creating a safe space for Autistic knowledge production . Autism, 29(9), 2205-2215. SAGE Publications.AutiHub · Autistic Autism Scholarship Project AutiHub · Documentation center Crossref OpenAlex OpenCitations
-
Jessica Hill , Kate Gaukroger , Sjaan R. Gomersall , Sean Tweedy , Hannah Gullo , Emma Beckman (2025). Perceptions and beliefs of community-based fitness professionals working with people with disability: a qualitative study . Disability and Rehabilitation, 47(6), 1493-1500. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Jachrya, P. (2020). Physical activity participation among adolescent boys with autism spectrum disorder [Doctoral dissertation, University of Toronto]. https://tspace.library.utoronto.ca/handle/1807/101004Type: OtherCrossref
-
McKeown, G. (2024). “Set up to Fail”: Parent Perceptions of OPA and sport participation experiences, barriers and opportunities for autistic children and themselves. [Doctoral dissertation, University of Tasmania]Type: OtherCrossref
-
Vygotsky, L. (1986). Thought and language. In A. Kozulin (Ed. and Trans.). Cambridge, MA: The Massachusetts Institute of Technology. (Original work published in 1934) http://s-f-walker.org.uk/pubsebooks/pdfs/Vygotsky_Thought_and_Language.pdfType: OtherCrossref