Access Denied. 30 Years On, We Are Still Failing the Meaningful Inclusion of Neurodiverse Populations in Research
This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.
About the autistic author markerGoldschmied, A. Z., Horton, E., & Jones, B. J. (2025). Access Denied. 30 Years On, We Are Still Failing the Meaningful Inclusion of Neurodiverse Populations in Research [Preprint]. MDPI AG. https://doi.org/10.20944/preprints202502.2264.v1
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Abstract
Over the past two decades, there has been a much-needed shift within research to ensure that neurodivergent populations, including people with intellectual disability, mental health or autism, have a voice and are given opportunities to speak up about the issues affecting them as experts by experience. Whilst inclusive research has become the norm, in practice, it remains unsatisfactory to get access to disabled people. Within this paper, three doctoral researchers discuss their shared experiences with gatekeepers in restricting access to neurodiverse participants. The paper draws attention to the potential dangers and consequences of making decisions based on evidence that limits the nature of participation. The article provides tips and recommendations for researchers and stakeholders, including policymakers, under three themes: culture, creativity and courage, on how they can help break down these barriers to ensure that those difficult-to-reach groups are able to have a voice in research.
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