Developing a Phenomenology of Autism

This publication is included in the Autistic Autism Scholarship Project. two authors of this publication are identified as autistic in the project.

About the autistic author marker

Shaughnessy, N., Green, J., Williams, E., Smith, J., Tzovaras, B. G., Aitkenhead, G., Milton, D., Jones, E., & Buckle, K. L. (2024). Developing a Phenomenology of Autism. In The Palgrave Handbook of Research Methods and Ethics in Neurodiversity Studies (pp. 233-256). Springer Nature Switzerland. https://doi.org/10.1007/978-3-031-66127-3_14

Publication date: 1 Jan 2024 Added to AutiHub: 5 Jul 2026 Type: Book chapter Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
9
Publication authors identified as autistic
2 / 9 (22.2%)

Abstract

No structured abstract stored for this reference.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 13:58.

Cited references
62
With a DOI
55
Without a DOI, from raw bibliography text
7
16 / 62 (25.8%) cited references include at least one author identified as autistic.
References with data to complete
7 / 62 (11.3%)
References with detected author names
57 / 62 (91.9%)
Without detected author names
5
Without a structured title
6
Without a stable identifier
6
References with raw author names still to review
5
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
186
From DOI or external metadata
185
From validated raw bibliography text
1
Raw names already validated
1
Raw names still to review
14
86 / 186 (46.2%) names are linked to an author already present in AutiHub. 100 / 186 (53.8%) names are not yet linked.
Names linked to a person identified as autistic
34 / 186 (18.3%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 34 / 86 (39.5%). Distinct people identified as autistic: 27 / 165 (16.4%).
  1. Charles Taylor (2012). Self-interpreting animals . In Human Agency and Language (pp. 45-76). Cambridge University Press.
    Crossref OpenAlex OpenCitations
  2. Georgia Aitkenhead , Susanna Fantoni , James Scott , Sophia Batchelor , Helen Duncan , David Llewellyn-Jones et al. (2023). How to co-create content moderation policies: The case of the AutSPACEs project . Center for Open Science.
    Crossref OpenAlex OpenCitations
  3. Janette Dinishak (2016). The Deficit View and Its Critics . Disability Studies Quarterly, 36(4). The Ohio State University Libraries.
    Crossref OpenAlex OpenCitations
  4. Virginia Wilson (2012). Research Methods: Focus Groups . Evidence Based Library and Information Practice, 7(1), 129-131. University of Alberta Libraries.
    Type: Article DOI: 10.18438/b8k32t OpenAlex: https://openalex.org/W1491633279
    Crossref OpenAlex OpenCitations
  5. González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.
    Crossref OpenAlex OpenCitations
  6. Jonathan Smith , Isabella E. Nizza (2022). Essentials of interpretative phenomenological analysis. American Psychological Association.
    Crossref OpenCitations
  7. A Irwin (1996). Citizen science: a study of people, expertise and sustainable development . Choice Reviews Online, 34(01), 34-0267-34-0267. American Library Association.
    Crossref OpenAlex
  8. Autistica. (2016). Your questions: Shaping future autism research. https://www.autistica.org.uk/downloads/files/Autism-Top-10-Your-Priorities-for-Autism-Research.pdf
    Type: Other
    Crossref
  9. Susanne Hecker , Muki Haklay , Anne Bowser , Zen Makuch , Johannes Vogel , Aletta Bonn (2018). Citzen Science . UCL Press.
    OpenCitations
  10. James Briggs (2010). Interpretative Phenomenological Analysis: Theory, Method and Research . QMiP Bulletin, 1(10), 44-46. British Psychological Society.
    OpenAlex
  11. Julie Beadle-Brown , David Wilkinson , Lisa Richardson , Nicola Shaughnessy , Melissa Trimingham , Jennifer Leigh et al. (2018). Imagining Autism: Feasibility of a drama-based intervention on the social, communicative and imaginative behaviour of children with autism . Autism, 22(8), 915-927. SAGE Publications.
    Crossref OpenAlex OpenCitations
  12. Jo Bervoets *Autistic author. Learn more… (2022). Neurogradualism: Neurodiversity Without Categorical Difference, A Case Study of Autism . University Library Heidelberg. InterCultural Philosophy.
    Crossref OpenAlex OpenCitations
  13. Adam Ockelford (2015). The Sounds of Intent project: modelling musical development in children with learning difficulties . Tizard Learning Disability Review, 20(4), 179-194. Emerald.
    Crossref OpenAlex OpenCitations
  14. Amber-Sophie Dugdale , Andrew R. Thompson , Alexandra Leedham , Nigel Beail , Megan Freeth (2021). Intense connection and love: The experiences of autistic mothers . Autism, 25(7), 1973-1984. SAGE Publications.
    Crossref OpenAlex OpenCitations
  15. Sofie Boldsen (2022). Autism and the Sensory Disruption of Social Experience . Frontiers in Psychology, 13, 874268. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  16. Wendy Keay-Bright (2023). Amplifying Ability: Engaging Young People with Autism Spectrum Disorders Through Gesture, Movement and Sound Technologies . In Virtual Reality Technologies for Health and Clinical Applications (pp. 95-127). Springer New York.
    Crossref OpenAlex OpenCitations
  17. Pnina Shinebourne , Jonathan Smith (2011). Images of addiction and recovery: An interpretative phenomenological analysis of the experience of addiction and recovery as expressed in visual images . Drugs: Education, Prevention and Policy, 18(5), 313-322. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  18. Chiara Bulgarelli , Emily Jones (2023). The typical and atypical development of empathy: How big is the gap from lab to field? JCPP Advances, 3(1), e12136. Wiley.
    Crossref OpenAlex OpenCitations
  19. Sue Wilkinson (1999). Focus Groups . Psychology of Women Quarterly, 23(2), 221-244. SAGE Publications.
    Crossref OpenAlex OpenCitations
  20. Scott Frickel , Sahra Gibbon , Jeff Howard , Joanna Kempner , Gwen Ottinger , David J. Hess (2010). Undone Science: Charting Social Movement and Civil Society Challenges to Research Agenda Setting . Science, Technology, & Human Values, 35(4), 444-473. SAGE Publications.
    Crossref OpenAlex OpenCitations
  21. Jamie A. Kirkham , Jonathan Smith , Dominik Havsteen-Franklin (2015). Painting pain: An interpretative phenomenological analysis of representations of living with chronic pain. Health Psychology, 34(4), 398-406. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  22. Caitlin Harrington , Michele Foster , Sylvia Rodger , Jill Ashburner (2014). Engaging young people with A utism S pectrum D isorder in research interviews . British Journal of Learning Disabilities, 42(2), 153-161. Wiley.
    Crossref OpenAlex OpenCitations
  23. Sue Fletcher-Watson , Geoffrey Bird (2020). Autism and empathy: What are the real links? Autism, 24(1), 3-6. SAGE Publications.
    Crossref OpenAlex OpenCitations
  24. Jonathan Smith (2011). Evaluating the contribution of interpretative phenomenological analysis . Health Psychology Review, 5(1), 9-27. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  25. Jennifer L. Shirk , Heidi L. Ballard , Candie C. Wilderman , Tina Phillips , Andrea Wiggins , Rebecca Jordan et al. (2012). Public Participation in Scientific Research: a Framework for Deliberate Design . Ecology and Society, 17(2). Resilience Alliance, Inc..
    Crossref OpenAlex OpenCitations
  26. Bastian Greshake Tzovaras , Michael Rera , Edwin H. Wintermute , Katharina Kloppenborg , Juliette Ferry-Danini , Guy Aidelberg et al. (2021). Empowering grassroots innovation to accelerate biomedical research . PLOS Biology, 19(8), e3001349. Public Library of Science (PLoS).
    Crossref OpenAlex OpenCitations
  27. Melissa Trimingham , Nicola Shaughnessy (2016). Material voices: intermediality and autism . Research in Drama Education: The Journal of Applied Theatre and Performance, 21(3), 293-308. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  28. Jonathan Green (2022). Autism as emergent and transactional . Frontiers in Psychiatry, 13, 988755-988755. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  29. Katharina Kloppenborg , Mad Price Ball , Bastian Greshake Tzovaras (2021). A peer production model for citizen science: comparative analysis of three online platforms . Center for Open Science.
    Crossref OpenAlex OpenCitations
  30. Jonathan Green , Nicola Shaughnessy (2023). Autistic phenomenology: past, present, and potential future . Frontiers in Psychology, 14, 1287209-1287209. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  31. Gwen Ottinger (2017). Reconstructing or Reproducing? In The Routledge Handbook of the Political Economy of Science (pp. 351-364). Routledge.
    Crossref OpenAlex OpenCitations
  32. Andrea MacLeod , Julie Allan , Ann Lewis , Christopher Robertson (2018). ‘Here I come again’: the cost of success for higher education students diagnosed with autism . International Journal of Inclusive Education, 22(6), 683-697. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  33. (2018). Citzen Science . UCL Press.
    Crossref OpenAlex
  34. Katie Howard , Napoleon Katsos , Jenny Gibson (2019). Using interpretative phenomenological analysis in autism research . Autism, 23(7), 1871-1876. SAGE Publications.
    Crossref OpenAlex OpenCitations
  35. Kanner, (1943). Kanner,. (1943). Autistic disturbances of affective contact. Nervous Child, 2, 217–250. Nervous Child, 2, 217.
    Type: Other
    Crossref
  36. Bradley Lewis (2019). Authoring Autism: On Rhetoric and Neurological Queerness . Journal of Medical Humanities, 40(2), 277-279. Springer Science and Business Media LLC.
    OpenAlex
  37. Jamie A Ward , Daniel Richardson , Guido Orgs , Kelly Hunter , Antonia F. de C. Hamilton (2018). Sensing interpersonal synchrony between actors and autistic children in theatre using wrist-worn accelerometers . Proceedings of the 2018 ACM International Symposium on Wearable Computers, 148-155. ACM.
    Crossref OpenAlex OpenCitations
  38. Liesbeth Taels , Jasper Feyaerts , Marie Lizon , Melissa De Smet , Stijn Vanheule (2023). ‘I felt like my senses were under attack’: An interpretative phenomenological analysis of experiences of hypersensitivity in autistic individuals . Autism, 27(8), 2269-2280. SAGE Publications.
    Crossref OpenAlex OpenCitations
  39. Chrysovalanto Kyriacou , Rachel Forrester‐Jones , Paraskevi Triantafyllopoulou (2023). Clothes, Sensory Experiences and Autism: Is Wearing the Right Fabric Important? Journal of Autism and Developmental Disorders, 53(4), 1495-1508. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  40. Agnete Nygaard , Liv Halvorsrud , Siv Linnerud , Ellen Karine Grov , Astrid Bergland (2019). The James Lind Alliance process approach: scoping review . BMJ Open, 9(8), e027473. BMJ.
    Crossref OpenAlex OpenCitations
  41. Leni Van Goidsenhoven , Elisabeth De Schauwer (2020). Listening Beyond Words: Swinging Together . Scandinavian Journal of Disability Research, 22(1), 330-339. Stockholm University Press.
    Crossref OpenAlex OpenCitations
  42. Aleix M. Martinez (2019). The promises and perils of automated facial action coding in studying children’s emotions. Developmental Psychology, 55(9), 1965-1981. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  43. McDonnell, A., & Milton, D. (2014). Going with the flow: Reconsidering ‘repetitive behaviour’through the concept of ‘flow states’. In G. Jones, & E. Hurley (Eds.) GAP: Good Autism Practice: Autism, Happiness and Wellbeing (38–47). BILD publications.
    Type: Other
    Crossref
  44. Isabella E. Nizza , Joanna Farr , Jonathan Smith (2021). Achieving excellence in interpretative phenomenological analysis (IPA): Four markers of high quality . Qualitative Research in Psychology, 18(3), 369-386. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  45. Amy Pearson *Autistic author. Learn more… , Kieran Rose *Autistic author. Learn more… (2023). Autistic Masking: Understanding Identity Management and the Role of Stigma .
    Type: Book OpenAlex: https://openalex.org/W7045491088
    Crossref OpenAlex
  46. Jim Sinclair *Autistic author. Learn more… Sinclair, J. (1993). Don’t mourn for us. Our Voice, 1(3). http://www.autreat.com/dont_mourn.html .
    Type: Other
    Crossref
  47. Frans Venter , Janelize Morelli , Ewie Erasmus (2023). Understanding the lived music listening experiences of adults on the autism spectrum . Psychology of Music, 51(3), 971-985. SAGE Publications.
    Crossref OpenAlex OpenCitations
  48. Smith, J. A., Flowers, P. & Larkin, M. (2022). Interpretative phenomenological analysis: Theory, Method and Research. Sage
    Type: Other
    Crossref