Autistic identity, culture, community, and space for well-being

Farahar, C. (2022). Autistic identity, culture, community, and space for well-being. In The Routledge International Handbook of Critical Autism Studies (pp. 229-241). Routledge. https://doi.org/10.4324/9781003056577-23

Publication date: 21 Oct 2022 Added to AutiHub: 9 Aug 2026 Type: Book chapter Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
1
Publication authors identified as autistic
1 / 1 (100.0%)

Abstract

In this chapter I discuss and critically consider the importance of identity, culture, community, and space for improving the well-being of the (our) stigmatised and marginalised Autistic population. I will do this by first discussing a tale of two “autisms”: the first being the pathological and paradigmatic narrative that constructs “autism” as a medical neurodevelopmental “disorder” embedded within a “culture of autism”; the second narrative being that of Autistic culture, with Autistic experience understood from a neurodiversity perspective, where Autistic people are different, not disordered. I touch on the well-being issues the Autistic community experience, going on to explain how fostering an Autistic identity can act as a “social cure”, one that affords Autistic people symbolic and material support from community members. Lastly, I consider the refuge and healing properties of Autistic spaces, and how these spaces may prove to be a stronger tool for discovering one’s Autistic-ness as a teen or adult compared to current infantilised medical diagnostic processes. I hope to show the importance of Autistic identity, culture, community, and space for Autistic well-being.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Bibliography inclusion overview

These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:31.

Cited references
37
Total cited references integrated for this publication.
Cited references with an identified autistic author
10 / 37 (27.0%)
Cited author occurrences identified as autistic
11 / 104 (10.6%)
Among occurrences linked to AutiHub author records: 11 / 55 (20.0%). Distinct cited authors identified as autistic: 9 / 94 (9.6%).
Cited author occurrences linked to AutiHub author records
55 / 104 (52.9%)
Distinct linked cited authors: 48 / 94 (51.1%)
Linked cited-author occurrences not identified as autistic
44 / 55 (80.0%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 44 / 104 (42.3%). Distinct linked cited authors not identified as autistic: 39 / 48 (81.2%).
  1. Kelly O'Brien (2012). The Social Cure: Identity Health and Wellbeing . The Australian Educational and Developmental Psychologist, 29(1), 79-80. Informa UK Limited.
    OpenAlex
  2. PATRICK W. CORRIGAN , JONATHON E. LARSON , NICOLAS RÜSCH (2009). Self‐stigma and the “why try” effect: impact on life goals and evidence‐based practices . World Psychiatry, 8(2), 75-81. Wiley.
    OpenAlex
  3. Jordynn Jack (2011). "The Extreme Male Brain?" Incrementum and the Rhetorical Gendering of Autism . Disability Studies Quarterly, 31(3). The Ohio State University Libraries.
    OpenAlex
  4. Jim Sinclair *Autistic author. Learn more… (2010). Being Autistic Together . Disability Studies Quarterly, 30(1). The Ohio State University Libraries.
  5. Edward Griffin , David Pollak (2009). Student experiences of neurodiversity in higher education: insights from the BRAINHE project . Dyslexia, 15(1), 23-41. Wiley.
    Type: Article DOI: 10.1002/dys.383 OpenAlex: https://openalex.org/W1996729686
    OpenAlex
  6. M. Catherine Cappadocia , Jonathan A. Weiss , Debra Pepler (2012). Bullying Experiences Among Children and Youth with Autism Spectrum Disorders . Journal of Autism and Developmental Disorders, 42(2), 266-277. Springer Science and Business Media LLC.
    OpenAlex
  7. Gael I. Orsmond , Paul Shattuck , Benjamin P. Cooper , Paul R. Sterzing , Kristy A. Anderson (2013). Social Participation Among Young Adults with an Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 43(11), 2710-2719. Springer Science and Business Media LLC.
    OpenAlex
  8. Joyce Davidson (2008). Autistic culture online: virtual communication and cultural expression on the spectrum . Social & Cultural Geography, 9(7), 791-806. Informa UK Limited.
    OpenAlex
  9. Tatja Hirvikoski , Ellenor Mittendorfer-Rutz , Marcus Boman , Henrik Larsson , Paul Lichtenstein , Sven Bölte (2016). Premature mortality in autism spectrum disorder . British Journal of Psychiatry, 208(3), 232-238. Royal College of Psychiatrists.
    OpenAlex
  10. Marisa H Fisher , Julie Lounds Taylor (2016). Let’s talk about it: Peer victimization experiences as reported by adolescents with autism spectrum disorder . Autism, 20(4), 402-411. SAGE Publications.
    OpenAlex
  11. Julie Lounds Taylor , Ryan E. Adams , Somer Bishop (2017). Social participation and its relation to internalizing symptoms among youth with autism spectrum disorder as they transition from high school . Autism Research, 10(4), 663-672. Wiley.
    Type: Article DOI: 10.1002/aur.1709 OpenAlex: https://openalex.org/W2552400229
    OpenAlex
  12. Kate Cooper , Laura G. E. Smith , Ailsa Russell (2017). Social identity, self‐esteem, and mental health in autism . European Journal of Social Psychology, 47(7), 844-854. Wiley.
    OpenAlex
  13. Bruce G. Link , Jo C. Phelan , Greer Sullivan (2017). Mental and Physical Health Consequences of the Stigma Associated with Mental Illnesses . In The Oxford Handbook of Stigma, Discrimination, and Health (pp. 521-540). Oxford University Press.
    OpenAlex
  14. Henny Kupferstein (2018). Evidence of increased PTSD symptoms in autistics exposed to applied behavior analysis . Advances in Autism, 4(1), 19-29. Emerald.
    OpenAlex
  15. Ben Fletcher-Watson , Shaun May (2018). Enhancing relaxed performance: evaluating the Autism Arts Festival . Research in Drama Education: The Journal of Applied Theatre and Performance, 23(3), 406-420. Informa UK Limited.
    OpenAlex
  16. Laura Crane , Fern Adams , Georgia Harper , Jack Welch , Elizabeth Pellicano (2019). ‘Something needs to change’: Mental health experiences of young autistic adults in England . Autism, 23(2), 477-493. SAGE Publications.
    OpenAlex
  17. Caroline Treweek , Chantelle Wood , Jilly Martin , Megan Freeth (2019). Autistic people’s perspectives on stereotypes: An interpretative phenomenological analysis . Autism, 23(3), 759-769. SAGE Publications.
    OpenAlex
  18. Krasnoyarsk State Pedagogical University named after V.P. Astafyev , Gokh Anatolii F. , Mineev Valerii V. , Krasnoyarsk State Pedagogical University named after V.P. Astafyev , Viktoruk Elena N. , Krasnoyarsk State Pedagogical University named after V.P. Astafyev (2018). Defending Identity and Diversity: the Potential of Cultural Anthropology for Reshaping Autism . Journal of Siberian Federal University. Humanities & Social Sciences, 11(12), 1947-1961. Siberian Federal University.
    OpenAlex
  19. Eilidh Cage , Zoe Troxell-Whitman (2019). Understanding the Reasons, Contexts and Costs of Camouflaging for Autistic Adults . Journal of Autism and Developmental Disorders, 49(5), 1899-1911. Springer Science and Business Media LLC.
    OpenAlex
  20. Kathryn E. Ringland (2019). “Autsome”: Fostering an Autistic Identity in an Online Minecraft Community for Youth with Autism . In Lecture Notes in Computer Science (pp. 132-143). Springer International Publishing.
    OpenAlex
  21. So Yoon Kim , Kristen Bottema‐Beutel (2019). Negotiation of Individual and Collective Identities in the Online Discourse of Autistic Adults . Autism in Adulthood, 1(1), 69-78. SAGE Publications.
    OpenAlex
  22. Sarah Griffiths , Carrie Allison , Rebecca Kenny , Rosemary Holt , Paula Smith , Simon Baron-Cohen (2019). The Vulnerability Experiences Quotient (VEQ): A Study of Vulnerability, Mental Health and Life Satisfaction in Autistic Adults . Autism Research, 12(10), 1516-1528. Wiley.
    Type: Article DOI: 10.1002/aur.2162 OpenAlex: https://openalex.org/W2949176131
    OpenAlex
  23. Ben Belek (2019). An Anthropological Perspective on Autism . Philosophy, Psychiatry, & Psychology, 26(3), 231-241. Project MUSE.
    OpenAlex
  24. Danielle Bunt , Robin van Kessel , Rosa A. Hoekstra , Katarzyna Czabanowska , Carol Brayne , Simon Baron-Cohen et al. (2020). Quotas, and Anti‐discrimination Policies Relating to Autism in the EU: Scoping Review and Policy Mapping in Germany, France, Netherlands, United Kingdom, Slovakia, Poland, and Romania . Autism Research, 13(8), 1397-1417. Wiley.
    Type: Article DOI: 10.1002/aur.2315 OpenAlex: https://openalex.org/W3026499394
    OpenAlex
  25. Rosalind Cooper , Kate Cooper , Ailsa Russell , Laura G. E. Smith (2021). “I’m Proud to be a Little Bit Different”: The Effects of Autistic Individuals’ Perceptions of Autism and Autism Social Identity on Their Collective Self-esteem . Journal of Autism and Developmental Disorders, 51(2), 704-714. Springer Science and Business Media LLC.
    OpenAlex
  26. Monique Botha *Autistic author. Learn more… (2020). Autistic community connectedness as a buffer against the effects of minority stress. Surrey Research Insight Open Access (The University of Surrey). University of Surrey.
  27. Amy Pearson *Autistic author. Learn more… , Kieran Rose *Autistic author. Learn more… (2020). A Conceptual Analysis of Autistic Masking: Understanding the Narrative of Stigma and the Illusion of Choice . Center for Open Science.
    OpenAlex
  28. González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.
    OpenAlex
  29. Ella Perry , Laura Hull , Will Mandy , Eilidh Cage (2020). Understanding camouflaging as a response to autism-related stigma: A Social Identity Theory approach . Journal of Autism and Developmental Disorders. Center for Open Science.
    OpenAlex
  30. (2015). Madness, distress and the politics of disablement . Policy Press.
    OpenAlex