Autistic identity, culture, community, and space for well-being
Farahar, C. (2022). Autistic identity, culture, community, and space for well-being. In The Routledge International Handbook of Critical Autism Studies (pp. 229-241). Routledge. https://doi.org/10.4324/9781003056577-23
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Authors
Abstract
In this chapter I discuss and critically consider the importance of identity, culture, community, and space for improving the well-being of the (our) stigmatised and marginalised Autistic population. I will do this by first discussing a tale of two “autisms”: the first being the pathological and paradigmatic narrative that constructs “autism” as a medical neurodevelopmental “disorder” embedded within a “culture of autism”; the second narrative being that of Autistic culture, with Autistic experience understood from a neurodiversity perspective, where Autistic people are different, not disordered. I touch on the well-being issues the Autistic community experience, going on to explain how fostering an Autistic identity can act as a “social cure”, one that affords Autistic people symbolic and material support from community members. Lastly, I consider the refuge and healing properties of Autistic spaces, and how these spaces may prove to be a stronger tool for discovering one’s Autistic-ness as a teen or adult compared to current infantilised medical diagnostic processes. I hope to show the importance of Autistic identity, culture, community, and space for Autistic well-being.
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These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:31.
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Kelly O'Brien (2012). The Social Cure: Identity Health and Wellbeing . The Australian Educational and Developmental Psychologist, 29(1), 79-80. Informa UK Limited.OpenAlex
-
PATRICK W. CORRIGAN , JONATHON E. LARSON , NICOLAS RÜSCH (2009). Self‐stigma and the “why try” effect: impact on life goals and evidence‐based practices . World Psychiatry, 8(2), 75-81. Wiley.OpenAlex
-
Jordynn Jack (2011). "The Extreme Male Brain?" Incrementum and the Rhetorical Gendering of Autism . Disability Studies Quarterly, 31(3). The Ohio State University Libraries.OpenAlex
-
Jim Sinclair *Autistic author. Learn more… (2010). Being Autistic Together . Disability Studies Quarterly, 30(1). The Ohio State University Libraries.AutiHub · Autistic Scholars OpenAlex
-
Damian Milton *Autistic author. Learn more… (2012). On the ontological status of autism: the ‘double empathy problem’ . Disability & Society, 27(6), 883-887. Informa UK Limited.AutiHub · Autistic Scholars OpenAlex
-
Edward Griffin , David Pollak (2009). Student experiences of neurodiversity in higher education: insights from the BRAINHE project . Dyslexia, 15(1), 23-41. Wiley.OpenAlex
-
M. Catherine Cappadocia , Jonathan A. Weiss , Debra Pepler (2012). Bullying Experiences Among Children and Youth with Autism Spectrum Disorders . Journal of Autism and Developmental Disorders, 42(2), 266-277. Springer Science and Business Media LLC.OpenAlex
-
Gael I. Orsmond , Paul Shattuck , Benjamin P. Cooper , Paul R. Sterzing , Kristy A. Anderson (2013). Social Participation Among Young Adults with an Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 43(11), 2710-2719. Springer Science and Business Media LLC.OpenAlex
-
Joyce Davidson (2008). Autistic culture online: virtual communication and cultural expression on the spectrum . Social & Cultural Geography, 9(7), 791-806. Informa UK Limited.OpenAlex
-
Tatja Hirvikoski , Ellenor Mittendorfer-Rutz , Marcus Boman , Henrik Larsson , Paul Lichtenstein , Sven Bölte (2016). Premature mortality in autism spectrum disorder . British Journal of Psychiatry, 208(3), 232-238. Royal College of Psychiatrists.OpenAlex
-
Marisa H Fisher , Julie Lounds Taylor (2016). Let’s talk about it: Peer victimization experiences as reported by adolescents with autism spectrum disorder . Autism, 20(4), 402-411. SAGE Publications.OpenAlex
-
Damian Milton *Autistic author. Learn more… , Tara Sims (2016). How is a sense of well-being and belonging constructed in the accounts of autistic adults? Disability & Society, 31(4), 520-534. Informa UK Limited.AutiHub · Autistic Scholars OpenAlex
-
Julie Lounds Taylor , Ryan E. Adams , Somer Bishop (2017). Social participation and its relation to internalizing symptoms among youth with autism spectrum disorder as they transition from high school . Autism Research, 10(4), 663-672. Wiley.OpenAlex
-
Kate Cooper , Laura G. E. Smith , Ailsa Russell (2017). Social identity, self‐esteem, and mental health in autism . European Journal of Social Psychology, 47(7), 844-854. Wiley.OpenAlex
-
Nicholas Chown *Autistic author. Learn more… , Jackie Robinson , Luke Beardon , Jillian Downing , Elizabeth Hughes , Julia Leatherland et al. (2017). Improving research about us, with us: a draft framework for inclusive autism research . Disability & Society, 32(5), 720-734. Informa UK Limited.
-
Bruce G. Link , Jo C. Phelan , Greer Sullivan (2017). Mental and Physical Health Consequences of the Stigma Associated with Mental Illnesses . In The Oxford Handbook of Stigma, Discrimination, and Health (pp. 521-540). Oxford University Press.Type: Book chapter DOI: 10.1093/oxfordhb/9780190243470.013.26 OpenAlex: https://openalex.org/W2777272477OpenAlex
-
Henny Kupferstein (2018). Evidence of increased PTSD symptoms in autistics exposed to applied behavior analysis . Advances in Autism, 4(1), 19-29. Emerald.OpenAlex
-
Ben Fletcher-Watson , Shaun May (2018). Enhancing relaxed performance: evaluating the Autism Arts Festival . Research in Drama Education: The Journal of Applied Theatre and Performance, 23(3), 406-420. Informa UK Limited.OpenAlex
-
Laura Crane , Fern Adams , Georgia Harper , Jack Welch , Elizabeth Pellicano (2019). ‘Something needs to change’: Mental health experiences of young autistic adults in England . Autism, 23(2), 477-493. SAGE Publications.OpenAlex
-
Caroline Treweek , Chantelle Wood , Jilly Martin , Megan Freeth (2019). Autistic people’s perspectives on stereotypes: An interpretative phenomenological analysis . Autism, 23(3), 759-769. SAGE Publications.OpenAlex
-
Monique Botha *Autistic author. Learn more… , David M. Frost (2020). Extending the Minority Stress Model to Understand Mental Health Problems Experienced by the Autistic Population . Society and Mental Health, 10(1), 20-34. SAGE Publications.AutiHub · Autistic Scholars OpenAlex
-
Krasnoyarsk State Pedagogical University named after V.P. Astafyev , Gokh Anatolii F. , Mineev Valerii V. , Krasnoyarsk State Pedagogical University named after V.P. Astafyev , Viktoruk Elena N. , Krasnoyarsk State Pedagogical University named after V.P. Astafyev (2018). Defending Identity and Diversity: the Potential of Cultural Anthropology for Reshaping Autism . Journal of Siberian Federal University. Humanities & Social Sciences, 11(12), 1947-1961. Siberian Federal University.OpenAlex
-
Eilidh Cage , Zoe Troxell-Whitman (2019). Understanding the Reasons, Contexts and Costs of Camouflaging for Autistic Adults . Journal of Autism and Developmental Disorders, 49(5), 1899-1911. Springer Science and Business Media LLC.OpenAlex
-
Kathryn E. Ringland (2019). “Autsome”: Fostering an Autistic Identity in an Online Minecraft Community for Youth with Autism . In Lecture Notes in Computer Science (pp. 132-143). Springer International Publishing.OpenAlex
-
So Yoon Kim , Kristen Bottema‐Beutel (2019). Negotiation of Individual and Collective Identities in the Online Discourse of Autistic Adults . Autism in Adulthood, 1(1), 69-78. SAGE Publications.OpenAlex
-
Sarah Griffiths , Carrie Allison , Rebecca Kenny , Rosemary Holt , Paula Smith , Simon Baron-Cohen (2019). The Vulnerability Experiences Quotient (VEQ): A Study of Vulnerability, Mental Health and Life Satisfaction in Autistic Adults . Autism Research, 12(10), 1516-1528. Wiley.OpenAlex
-
Robert Chapman *Autistic author. Learn more… (2020). The reality of autism: On the metaphysics of disorder and diversity . Philosophical Psychology, 33(6), 799-819. Informa UK Limited.AutiHub · Autistic Scholars OpenAlex
-
Ben Belek (2019). An Anthropological Perspective on Autism . Philosophy, Psychiatry, & Psychology, 26(3), 231-241. Project MUSE.OpenAlex
-
Catherine J. Crompton , Sonny Hallett *Autistic author. Learn more… , Danielle Ropar , Emma G. Flynn , Sue Fletcher‐Watson (2020). ‘I never realised everybody felt as happy as I do when I am around autistic people’: A thematic analysis of autistic adults’ relationships with autistic and neurotypical friends and family . Autism, 24(6), 1438-1448. SAGE Publications.AutiHub · Autistic Scholars OpenAlex
-
Danielle Bunt , Robin van Kessel , Rosa A. Hoekstra , Katarzyna Czabanowska , Carol Brayne , Simon Baron-Cohen et al. (2020). Quotas, and Anti‐discrimination Policies Relating to Autism in the EU: Scoping Review and Policy Mapping in Germany, France, Netherlands, United Kingdom, Slovakia, Poland, and Romania . Autism Research, 13(8), 1397-1417. Wiley.OpenAlex
-
Rosalind Cooper , Kate Cooper , Ailsa Russell , Laura G. E. Smith (2021). “I’m Proud to be a Little Bit Different”: The Effects of Autistic Individuals’ Perceptions of Autism and Autism Social Identity on Their Collective Self-esteem . Journal of Autism and Developmental Disorders, 51(2), 704-714. Springer Science and Business Media LLC.OpenAlex
-
Monique Botha *Autistic author. Learn more… (2020). Autistic community connectedness as a buffer against the effects of minority stress. Surrey Research Insight Open Access (The University of Surrey). University of Surrey.AutiHub · Autistic Scholars OpenAlex
-
Steven K. Kapp *Autistic author. Learn more… (2020). Autistic Community and the Neurodiversity Movement . Springer Singapore.AutiHub · Autistic Scholars OpenAlex
-
Amy Pearson *Autistic author. Learn more… , Kieran Rose *Autistic author. Learn more… (2020). A Conceptual Analysis of Autistic Masking: Understanding the Narrative of Stigma and the Illusion of Choice . Center for Open Science.OpenAlex
-
González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.OpenAlex
-
Ella Perry , Laura Hull , Will Mandy , Eilidh Cage (2020). Understanding camouflaging as a response to autism-related stigma: A Social Identity Theory approach . Journal of Autism and Developmental Disorders. Center for Open Science.OpenAlex
-
(2015). Madness, distress and the politics of disablement . Policy Press.Type: Book DOI: 10.1332/policypress/9781447314578.001.0001 OpenAlex: https://openalex.org/W2180521021OpenAlex