Évaluation de la formation des cliniciens au dépistage de l’autisme, à la gestion des soins et à l’éducation des patients

Titre original en anglais : Evaluation of Clinician Training in Autism Screening, Care Management, and Patient Education

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O’Hagan, B., White, J. L., Hardesty, I., Amgott, R., Bangham, C., Liu, X., Codner, A., Ursitti, A., Chandler, A., Foster, S., Augustyn, M., & Greece, J. (2024). Evaluation of Clinician Training in Autism Screening, Care Management, and Patient Education. Open Journal of Pediatrics, 14(03), 488-513. https://doi.org/10.4236/ojped.2024.143048

Date de publication: 01/01/2024 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
12
Auteur·ices de la publication identifié·es comme autistes
1 / 12 (8,3 %)
  1. Belinda O’Hagan
  2. Julie L. White
  3. Ilana Hardesty
  4. Rachel Amgott
  1. Candice Bangham
  2. Xinyang Liu
  3. Alyson Codner
  4. A. Ursitti
  1. Alana Chandler
  2. Sarah Foster *
  3. Marilyn Augustyn
  4. Jacey Greece

Résumé

Objectif : La demande d’évaluations développementales pédiatriques a largement dépassé les effectifs disponibles pour les réaliser, ce qui entraîne de longs délais d’attente importants pour les services. Une formation de cliniciens d’une durée d’un an utilisant le modèle Extension for Community Healthcare Outcomes (ECHO®), avec des réunions mensuelles, a été menée et évaluée quant à son impact sur le sentiment d’efficacité personnelle autodéclaré des cliniciens de soins primaires, leur capacité à administrer un dépistage de l’autisme et à conseiller les familles, leur épanouissement professionnel et leur épuisement professionnel. Méthodes : Les participants représentaient six centres de santé communautaires et un cabinet rattaché à un hôpital. La collecte de données a été éclairée par les retours des participants et la théorie du processus de normalisation au moyen d’enquêtes en ligne et de groupes de discussion/entretiens. Douze formations mensuelles virtuelles ont été dispensées entre novembre 2020 et octobre 2021. Résultats : Trente cliniciens ont participé à la collecte de données. Les analyses appariées (n = 9) ont indiqué une augmentation statistiquement significative de la capacité autoévaluée à conseiller les familles au sujet de l’autisme (moyenne du pré-test = 3,00, moyenne du post-test = 3,89, p = 0,0313), à gérer les soins des patients autistes (moyenne du pré-test = 2,56, moyenne du post-test = 4,11, p = 0,0078), de l’empathie envers les patients (moyenne du pré-test = 2,11, moyenne du post-test = 1,22, p = 0,0156) et les collègues (moyenne du pré-test = 2,33, moyenne du post-test = 1,22, respectivement, p = 0,0391). L’analyse non appariée a révélé des augmentations du nombre de participants ayant confiance dans leur capacité à informer les patients sur l’autisme (70,59 %, post-test n = 12 contre 3,33 %, pré-test n = 1, p = 0,0019). Les groupes de discussion ont relevé une confiance accrue dans l’utilisation du terme « autisme ». Conclusion : Les participants ont rapporté des augmentations de leur capacité et de leur confiance à prendre soin de patients autistes, ainsi que de leur empathie envers les patients et les collègues. Les recherches futures devraient explorer les résultats à long terme concernant la rétention des connaissances des participants, la confiance dans la pratique, et les améliorations des évaluations et des soins liés à l’autisme.

Objective: The demand for pediatric developmental evaluations has far exceeded the workforce available to perform them, which creates long significant wait times for services. A year-long clinician training using the Extension for Community Healthcare Outcomes (ECHO®) model with monthly meetings was conducted and evaluated for its impact on primary care clinicians’ self-reported self-efficacy, ability to administer autism screening and counsel families, professional fulfillment, and burnout. Methods: Participants represented six community health centers and a hospital-based practice. Data collection was informed by participant feedback and the Normalization Process Theory via online surveys and focus groups/interviews. Twelve virtual monthly trainings were delivered between November 2020 and October 2021. Results: 30 clinicians participated in data collection. Matched analyses (n = 9) indicated statistically significant increase in self-rated ability to counsel families about autism (Pre-test Mean = 3.00, Post-test Mean = 3.89, p = 0.0313), manage autistic patients’ care (Pre-test Mean = 2.56, Post-test Mean = 4.11, p = 0.0078), empathy toward patients (Pre-test Mean = 2.11, Post-test Mean = 1.22, p = 0.0156) and colleagues (Pre-test Mean = 2.33, Post-test Mean = 1.22, respectively, p = 0.0391). Unmatched analysis revealed increases in participants confident about educating patients about autism (70.59%, post-test n = 12 vs. 3.33%, pre-test n = 1, p = 0.0019). Focus groups found increased confidence in using the term “autism”. Conclusion: Participants reported increases in ability and confidence to care for autistic patients, as well as empathy toward patients and colleagues. Future research should explore long-term outcomes in participants’ knowledge retention, confidence in practice, and improvements to autism evaluations and care.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
42
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
1 / 42 (2,4 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
1 / 265 (0,4 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 1 / 54 (1,9 %). Auteurices cité·es distinct·es identifié·es comme autistes : 1 / 235 (0,4 %).
Occurrences citées rattachées à la base AutiHub
54 / 265 (20,4 %)
Auteurices cité·es distinct·es rattaché·es : 32 / 235 (13,6 %)
Occurrences rattachées, non identifiées comme autistes
53 / 54 (98,1 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 53 / 265 (20,0 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 31 / 32 (96,9 %).
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