FAR : système distribué vibrotactile de bout en bout conçu pour faciliter la régulation des affects chez des enfants diagnostiqués avec un trouble du spectre de l'autisme grâce à la respiration lente

Titre original en anglais : FAR: End-to-End Vibrotactile Distributed System Designed to Facilitate Affect Regulation in Children Diagnosed with Autism Spectrum Disorder Through Slow Breathing

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Miri, P., Arora, M., Malhotra, A., Flory, R., Hu, S., Lowber, A., Goyal, I., Nguyen, J., Hegarty, J. P., Kohn, M. D., Schneider, D., Culbertson, H., Yamins, D. L. K., Fung, L., Hardan, A., Gross, J. J., & Marzullo, K. (2022). FAR: End-to-End Vibrotactile Distributed System Designed to Facilitate Affect Regulation in Children Diagnosed with Autism Spectrum Disorder Through Slow Breathing. CHI Conference on Human Factors in Computing Systems, 1-20. https://doi.org/10.1145/3491102.3517619

Date de publication: 28/04/2022 Ajout dans AutiHub: 22/10/2026 Type: Autre Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
17
Auteur·ices de la publication identifié·es comme autistes
1 / 17 (5,9 %)
  1. Pardis Miri
  2. Mehul Arora
  3. Aman Malhotra
  4. Robert Flory
  5. Stephanie Hu
  6. Ashley Lowber
  1. Ishan Goyal
  2. Jacqueline Nguyen
  3. John P Hegarty *
  4. Marlo D Kohn
  5. David Schneider
  6. Heather Culbertson
  1. Daniel L. K. Yamins
  2. Lawrence Fung
  3. Antonio Hardan
  4. James J. Gross
  5. Keith Marzullo

Résumé

Afin de répondre aux difficultés de dérégulation des affects chez les jeunes diagnostiqués avec un trouble du spectre de l'autisme (TSA), nous avons conçu et développé un système de guidage respiratoire vibrotactile de bout en bout et évalué son utilisabilité. Dans cet article, nous décrivons l'architecture du système et les fonctionnalités que nous avons déployées pour ce système sur la base de conseils et d'évaluations d'experts. En expérimentant ce système avec un enfant diagnostiqué avec un TSA, nous avons appris que notre système était utilisé de façons que nous avions et n'avions pas anticipées. Par exemple, la procédure de personnalisation de la respiration guidée ne correspondait pas à la durée d'attention du participant pilote, mais deux dispositifs de guidage au lieu d'un ont encouragé l'implication de l'aidant. Cet article détaille nos enseignements et se conclut par une liste de lignes directrices de conception du système au niveau de l'architecture du système. À notre connaissance, il s'agit du premier système vibrotactile entièrement fonctionnel conçu pour des enfants avec un TSA ayant résisté à des tests d'utilisabilité in vitro pendant deux semaines.

To address difficulties with affect dysregulation in youth diagnosed with autism spectrum disorder (ASD), we designed and developed an end-to-end vibrotactile breathing pacer system and evaluated its usability. In this paper we describe the system architecture and the features we deployed for this system based on expert advice and reviews. Through piloting this system with one child diagnosed with ASD, we learned that our system was used in ways we did and did not anticipate. For example, the paced-breathing personalization procedure did not meet the attention span of the pilot participant but two instead of one pacer devices encouraged caregiver’s involvement. This paper details our learnings and concludes with a list of system design guidelines at the system architecture level. To the best of our knowledge, this is the first fully functional vibrotactile system designed for ASD children that withstood usability testing in vitro for two weeks.

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Références citées
63
Avec un DOI
40
Sans DOI, à partir du texte brut de la bibliographie
23
1 / 63 (1,6 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
15 / 63 (23,8 %)
Références avec noms d’auteurices détectés
48 / 63 (76,2 %)
Sans nom d’auteurice détecté
15
Sans titre structuré
15
Sans identifiant stable
23
Références avec noms bruts d’auteurices restant à vérifier
13
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Noms d’auteurices détectés dans la bibliographie citée
195
À partir du DOI ou de métadonnées externes
195
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
13
38 / 195 (19,5 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 157 / 195 (80,5 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
1 / 195 (0,5 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 1 / 38 (2,6 %). Personnes distinctes identifiées comme autistes : 1 / 159 (0,6 %).
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