Psychometric Properties of The Parental Stress Scale for Parents of Children with Intellectual and Developmental Disabilities

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Sneed, L., Pfingston, B., Cook, I., Taylor, R., Samelson, D., & Fitchett, B. (2024). Psychometric Properties of The Parental Stress Scale for Parents of Children with Intellectual and Developmental Disabilities. Journal of Autism and Developmental Disorders, 56(5), 1836-1848. https://doi.org/10.1007/s10803-024-06700-z

Publication date: 28 Dec 2024 Added to AutiHub: 25 Sep 2026 Type: Article Article language: English

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6
Publication authors identified as autistic
1 / 6 (16.7%)

Abstract

Parental stress can be debilitating for parents and their families. This is particularly true for parents who have a child with autism spectrum disorder (ASD) or other intellectual and developmental disability (I/DD). Effective screening and measurement of parental stress leads to accurate and effective intervention. The purpose of this study was to understand the psychometric properties of the Parental Stress Scale (PSS) for families who have a child with I/DD (ages ranging from 1 to 18 years old, with a mean of 5.28). Caregivers of 3220 families who have a child with I/DD (91% diagnosed with ASD) completed the scale. The psychometric properties including internal reliability and factor structure were completed as well as discriminant validity. Results of confirmatory factor analysis with the 18-item scale revealed a poor model fit with three items not meeting minimum factor loading threshold. Given this, the three items were removed, and confirmatory factor analysis was reconducted with 15 items of the PSS. Results revealed good internal consistency and discriminant validity, as well as a good model fit with all 15 items loading above the minimum threshold. The identified two-factor structure is consistent with the dichotomous (rewarding/burdensome) construct of parental stress that Berry and Jones (J Soc Pers Relationsh 12(3):463-472, 1995) originally designed the scale to index. Thus, the 15-item PSS has initial psychometric evidence in a large sample of families with a child with I/DD.

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Cited references
46
With a DOI
29
Without a DOI, from raw bibliography text
15
0 / 46 (0.0%) cited references include at least one author identified as autistic.
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17 / 46 (37.0%)
References with detected author names
33 / 46 (71.7%)
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13
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17
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15
References with raw author names still to review
13
References with external metadata lookup issues
0
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Author names detected in the cited bibliography
107
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107
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0
Raw names already validated
0
Raw names still to review
24
15 / 107 (14.0%) names are linked to an author already present in AutiHub. 92 / 107 (86.0%) names are not yet linked.
Names linked to a person identified as autistic
0 / 107 (0.0%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 0 / 15 (0.0%). Distinct people identified as autistic: 0 / 102 (0.0%).
  1. Siu‐Kau Cheung (2000). Psychometric Properties of the Chinese Version of the Parental Stress Scale . Medical Entomology and Zoology, 43(4), 253-261.
    Type: Article OpenAlex: https://openalex.org/W60009656
    OpenAlex
  2. Abidin, R. R. (2012). Parenting stress index (4th ed.). PAR.
    Type: Other
    Crossref
  3. Ane Nærde , Silje Sommer Hukkelberg (2020). An examination of validity and reliability of the Parental Stress Scale in a population based sample of Norwegian parents . PLOS ONE, 15(12), e0242735. Public Library of Science (PLoS).
    Crossref OpenAlex OpenCitations
  4. Sujata Sethi , Raghu Gandhi , Vidhu Anand (2012). Study of Level of Stress in the Parents of Children with Attention-Deficit/Hyperactivity Disorder . Journal of Indian Association for Child and Adolescent Mental Health, 8(2), 25-37. SAGE Publications.
    Crossref OpenAlex OpenCitations
  5. Mary Baker-Ericzén , Lauren Brookman-Frazee , Aubyn C. Stahmer (2005). Stress Levels and Adaptability in Parents of Toddlers with and without Autism Spectrum Disorders . Research and Practice for Persons with Severe Disabilities, 30(4), 194-204. SAGE Publications.
    Crossref OpenAlex OpenCitations
  6. Jean E. Dumas , Lucille C. Wolf , Sandra N. Fisman , Annie Culligan (1991). Parenting stress, child behavior problems, and dysphoria in parents of children with autism, down syndrome, behavior disorders, and normal development . Exceptionality, 2(2), 97-110. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  7. Dimitris Rizopoulos (2006). ltm: An R Package for Latent Variable Modeling and Item Response Theory Analyses . Journal of Statistical Software, 17(5), 1. Foundation for Open Access Statistic.
    Crossref OpenAlex OpenCitations
  8. JO Berry (1995). Berry, J. O., & Jones, W. H. (1995). The parental stress scale: Initial psychometric evidence. Journal of Social and P-ersonal Relationships, 12(3), 463–472. https://doi.org/10 . 1177/026540759512300 Journal of Social and P-ersonal Relationships, 12(3), 463.
    Type: Other DOI: 10.1177/026540759512300
    Crossref
  9. Annette M. Estes , Jeffrey Munson , Géraldine Dawson , Elizabeth Koehler , Xiao-Hua Zhou , Robert Abbott (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay . Autism, 13(4), 375-387. SAGE Publications.
    Crossref OpenAlex OpenCitations
  10. Yves Rosseel (2012). lavaan: An R package for structural equation modeling . Journal of Statistical Software, 48(2), 1. Foundation for Open Access Statistic.
    Crossref OpenAlex OpenCitations
  11. Brown, M. W., & Cudeck, R. (1993). Alternative ways of assessing Model Fit. In K. A. Bollen, & J. S. Long (Eds.), Testing structural equation models (pp. 136–162). Sage.
    Type: Other
    Crossref
  12. Lindsey Sneed , Ryan Paul Taylor , Ian Cook , Michelle Befi , Brianna Fitchett , Doreen Samelson et al. (2025). Initial Psychometric Properties of the Catalight Family Wellbeing Scale . Journal of Autism and Developmental Disorders, 55(3), 1067-1077. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  13. Michael W. Browne , Robert Cudeck (1992). Alternative Ways of Assessing Model Fit . Sociological Methods & Research, 21(2), 230-258. SAGE Publications.
    OpenAlex
  14. Siu-Kau Cheung (2012). Chinese Parental Stress Scale . PsycTESTS Dataset. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  15. Kiran Kriti , Ankita Pradhan , Saba Tufel (2019). Severity of cerebral palsy and its impact on level of stress in the caregivers: A correlational study . The Indian Journal of Occupational Therapy, 51(1), 21. Medknow.
    Crossref OpenAlex OpenCitations
  16. Cynthia Leung , Sandra K. M. Tsang (2010). The Chinese Parental Stress Scale: Psychometric Evidence Using Rasch Modeling on Clinical and Nonclinical Samples . Journal of Personality Assessment, 92(1), 26-34. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  17. Children’s Outcomes Research Consortium (n.d.). Parental stress scale. CORC Child Outcomes Research Consortium. https://www.corc.uk.net/outcome-experience-measures/parental-stress-scale-pss/
    Type: Other
    Crossref
  18. Leith Harding , Kate Murray , Jane Shakespeare‐Finch , Ron Frey (2020). Understanding the Parental Stress Scale With a Foster Carer Cohort . Family Relations, 69(4), 865-879. Wiley.
    Crossref OpenAlex OpenCitations
  19. Li-tze Hu , Peter M. Bentler (1998). Fit indices in covariance structure modeling: Sensitivity to underparameterized model misspecification. Psychological Methods, 3(4), 424-453. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  20. Conoley, J. C., & Kramer, J. J. (1993). The Tenth Mental measurements Yearbook. University of Nebraska.
    Type: Other
    Crossref
  21. Maiken Pontoppidan , Tine Nielsen , Ingeborg Hedegaard Kristensen (2018). Psychometric properties of the Danish Parental Stress Scale: Rasch analysis in a sample of mothers with infants . PLOS ONE, 13(11), e0205662. Public Library of Science (PLoS).
    Crossref OpenAlex OpenCitations
  22. Stephanie A. Hayes , Shelley L. Watson (2013). The Impact of Parenting Stress: A Meta-analysis of Studies Comparing the Experience of Parenting Stress in Parents of Children With and Without Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 43(3), 629-642. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  23. Jessica J. Zelman , Mark A. Ferro (2018). The Parental Stress Scale: Psychometric Properties in Families of Children With Chronic Health Conditions . Family Relations, 67(2), 240-252. Wiley.
    Crossref OpenAlex OpenCitations
  24. Beatriz Oronoz , Itziar Alonso-Arbiol , Nekane Balluerka (2007). A Spanish adaptation of the Parental Stress Scale. PubMed, 19(4), 687-92.
    Type: Article OpenAlex: https://openalex.org/W2118430949
    OpenAlex
  25. Reina S. Factor , Thomas H. Ollendick , Lee D. Cooper , Julie C. Dunsmore , Hannah M. Rea , Angela Scarpa (2019). All in the Family: A Systematic Review of the Effect of Caregiver-Administered Autism Spectrum Disorder Interventions on Family Functioning and Relationships . Clinical Child and Family Psychology Review, 22(4), 433-457. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  26. George H. S. Singer (2006). Meta-Analysis of Comparative Studies of Depression in Mothers of Children With and Without Developmental Disabilities . American Journal on Mental Retardation, 111(3), 155. Informa UK Limited.
    OpenAlex
  27. Firke, S. (2023). janitor: Simple tools for examining and cleaning dirty data. R package version 2. 2. 0. https://CRAN . R-project.org/package=janitor
    Type: Other
    Crossref
  28. Hair, J. F. (Ed.). (2010). Multivariate data analysis (7. ed.). Pearson Prentice Hall.
    Type: Other
    Crossref
  29. Tine Nielsen , Maiken Pontoppidan , Signe Boe Rayce (2020). The Parental Stress Scale revisited: Rasch-based construct validity for Danish parents of children 2–18 years old with and without behavioral problems . Health and Quality of Life Outcomes, 18(1), 1. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  30. Seo Young Park , Jung Ho Kim , Mi Young Jeong , Yun Sung Lee , Jeong Eun Shin , Yeon Jung Lee (2021). Reliability and Validity of the Korean Version of the Parental Stress Scale for Children With Attention-Deficit/Hyperactivity Disorder . Psychiatry Investigation, 18(12), 1188-1197. Korean Neuropsychiatric Association.
    Crossref OpenAlex OpenCitations
  31. R Core Team (2026). R: A Language and Environment for Statistical Computing . R Foundation for Statistical Computing.
    OpenAlex
  32. Hadley Wickham , Mara Averick , Jennifer Bryan , Winston Chang , Lucy McGowan , Romain François et al. (2019). Welcome to the Tidyverse . Journal of Open Source Software, 4(43), 1686. The Open Journal.
    Crossref OpenAlex OpenCitations
  33. JS Jeevannavar (2020). Jeevannavar, J. S., Suryawanshi, S. S., & Patil, P. S. (2020). Reliability and validity of the Kannada version of the parental stress scale. Indian Journal of Physiotherapy & Occupational Therapy, 14(4), 48–52. Indian Journal of Physiotherapy & Occupational Therapy, 14(4), 48.
    Type: Other
    Crossref
  34. Saadieh Masri , Lama Charafeddine , Hani Tamim , Mohamad Naamani , Taleb Jammal , Leyla Akoury-Dirani (2020). Validation of the Arabic Version of the Parental Stressor Scale: Neonatal Intensive Care Unit (PSS: NICU) . Journal of Clinical Psychology in Medical Settings, 27(3), 593-602. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  35. Jorgensen, T. D., Pornprasertmanit, S., Schoemann, A. M., & Rosseel, Y. (2022). semTools: Useful tools for structural equation modeling. R package version 0. 5-6. https://CRAN . R-project.org/package=semTools
    Type: Other
    Crossref
  36. Lindsey Sneed , Doreen Samelson (2022). Effectiveness of Parent-Led Applied Behavior Analysis at Improving Outcomes for Parents of Autistic Children . Journal of Social, Behavioral, and Health Sciences, 16(1). Walden University.
    Crossref OpenAlex OpenCitations
  37. Kline, R. B. (2016). Principles and practice of structural equation modeling, 4th ed (pp. xvii, 534). Guilford Press.
    Type: Other
    Crossref
  38. Müller, K. (2020). here: A simpler way to find your files. R package version 1. 0. 1. https://CRAN . R-project.org/package=here
    Type: Other
    Crossref
  39. Jyoti S. Jeevannavar1, Swapnali S. Suryawanshi2, Padmavati S. Patil2 (2020). Reliability and Validity of the Kannada Version of the Parental Stress Scale . Indian Journal of Physiotherapy and Occupational Therapy - An International Journal. Institute of Medico-legal Publications Private Limited.
    OpenAlex
  40. Oronoz Artola, B., Arbiol, A., I., & Balluerka Lasa, M. N. (2007). A Spanish adaptation of the parental stress scale. Psicothema.
    Type: Other
    Crossref
  41. R Core Team (2023). R Core Team. (2023). Foreign: Read Data stored by ‘Minitab’, ‘S’, ‘SAS’, ‘SPSS’, ‘Stata’, ‘Systat’, ‘Weka’, ‘dBase’. … R Package Version, 0, 8–86. https://CRAN . R-project.org/package=foreign … R Package Version, 0, 8.
    Type: Other
    Crossref
  42. R Core Team (1999). foreign: Read Data Stored by 'Minitab', 'S', 'SAS', 'SPSS', 'Stata', 'Systat', 'Weka', 'dBase',... CRAN: Contributed Packages. The R Foundation.
    OpenAlex
  43. R Core Team (2023). R: A language and environment for statistical computing. R Foundation for Statistical Computing, Vienna, Austria. https://www . R-project.org/
    Type: Other
    Crossref
  44. GHS Singer (2006). Singer, G. H. S. (2006). Meta-analysis of comparative studies of Depression in Mothers of Children with and without Developmental Disabilities. American Journal on Mental Retardation, 111(3), 155–169. https://doi.org/10 . 1352/0895-8017(2006)111[155:MOCSOD]2. 0. CO;2. American Journal on Mental Retardation, 111(3), 155.
    Type: Other DOI: 10.1352/0895-8017(2006
    Crossref
  45. Sparrow, S. S., Cicchetti, D. V., & Saulnier, C. A. (2016). Vineland Adaptive Behavior scales, Third Edition (Vineland-3). Pearson.
    Type: Other
    Crossref
  46. Warner, R. (2013). Applied statistics: From bivariate through multivariate techniques (Second Edition). SAGE Publications, Inc.
    Type: Other
    Crossref