“Nothing About Us Without Us” Transforming Participatory Research and Ethics in Human Systems Engineering

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Williams, R. & Gilbert, J. E. (2019). “Nothing About Us Without Us” Transforming Participatory Research and Ethics in Human Systems Engineering. In Advancing Diversity, Inclusion, and Social Justice Through Human Systems Engineering (pp. 113-134). CRC Press. https://doi.org/10.1201/9780429425905-9

Publication date: 16 Oct 2019 Added to AutiHub: 9 Aug 2026 Type: Book chapter Article language: English
Publisher source (DOI) OpenAlex source

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Authors

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2
Publication authors identified as autistic
1 / 2 (50.0%)
  1. Rua M. Williams *
  2. Juan E. Gilbert

Abstract

The purposes of this chapter are to (a) assess the overall state of participatory design practices in autism research and reflect how these findings relate to human systems engineering (HSE), (b) explore whether participatory practices are meeting the needs of participant communities, and (c) conceptualize waypoints for ethical and transformative research practices in HSE and beyond. This chapter is meant to be an intervention—an accounting for our duty to uphold the principles of Respect for Persons, Beneficence, and Justice. HSE cannot enact social justice through the deployment of technology itself. Justice must be present throughout the very action of design.

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These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 01:01.

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1
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1
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0
0 / 1 (0.0%) cited references include at least one author identified as autistic.
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0 / 3 (0.0%)
Calculated across all author names detected in the cited bibliography. No detected author names are currently linked to an author already present in AutiHub. Distinct people identified as autistic: 0 / 3 (0.0%).
  1. Tareq Ahram , Waldemar Karwowski , Redha Taiar (2019). Correction to: Human Systems Engineering and Design . Advances in Intelligent Systems and Computing, C1-C1. Springer International Publishing.
    Type: Erratum DOI: 10.1007/978-3-030-02053-8_175 OpenAlex: https://openalex.org/W2911060877
    Crossref OpenAlex OpenCitations