“Nothing About Us Without Us” Transforming Participatory Research and Ethics in Human Systems Engineering
Williams, A. & Gilbert, J. E. (2019). “Nothing About Us Without Us” Transforming Participatory Research and Ethics in Human Systems Engineering. In Advancing Diversity, Inclusion, and Social Justice Through Human Systems Engineering (pp. 113-134). CRC Press. https://doi.org/10.1201/9780429425905-9
This publication is integrated into AutiHub through:
Authors
Abstract
The purposes of this chapter are to (a) assess the overall state of participatory design practices in autism research and reflect how these findings relate to human systems engineering (HSE), (b) explore whether participatory practices are meeting the needs of participant communities, and (c) conceptualize waypoints for ethical and transformative research practices in HSE and beyond. This chapter is meant to be an intervention—an accounting for our duty to uphold the principles of Respect for Persons, Beneficence, and Justice. HSE cannot enact social justice through the deployment of technology itself. Justice must be present throughout the very action of design.
Bibliography cited by this reference
Cited references are imported from external metadata sources when they are available. The list may be partial.
Bibliography inclusion overview
These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:31.
-
Tareq Ahram , Waldemar Karwowski , Redha Taiar (2019). Correction to: Human Systems Engineering and Design . Advances in Intelligent Systems and Computing, C1-C1. Springer International Publishing.Crossref OpenAlex OpenCitations