My Time with Autism Speaks

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Metadata sources used for this reference

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Robison, J. E. (2019). My Time with Autism Speaks. In Autistic Community and the Neurodiversity Movement (pp. 221-232). Springer Singapore. https://doi.org/10.1007/978-981-13-8437-0_16

Publication date: 7 Nov 2019 Added to AutiHub: 6 Jul 2026 Type: Book chapter Article language: English
Publisher source (DOI) Full text OpenAlex source

This publication is integrated into AutiHub through:

Authors

Publication authors
1
Publication authors identified as autistic
1 / 1 (100.0%)
  1. John Elder Robison *

Abstract

Abstract In this chapter John Elder Robison describes his mid-life autism diagnosis, and how that inspired his public autism advocacy. He began by writing Look Me in the Eye, a popular memoir of life on the autism spectrum. That led to his being invited to advise scientists, which in turn led him to engage with the research charity Autism Speaks in an attempt to change what he regarded as toxic and non-productive views of autism. Robison abandoned those efforts in 2013 but continues writing and teaching about autism and the emergent neurodiversity. He also remains involved in advising government agencies on autism policy. In this chapter he reflects on his decision to resign from advising Autism Speaks and the aftermath.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 07:56.

Cited references
10
With a DOI
3
Without a DOI, from raw bibliography text
7
4 / 10 (40.0%) cited references include at least one author identified as autistic.
References with data to complete
1 / 10 (10.0%)
References with detected author names
9 / 10 (90.0%)
Without detected author names
1
Without a structured title
1
Without a stable identifier
6
References with raw author names still to review
1
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
17
From DOI or external metadata
17
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
1
6 / 17 (35.3%) names are linked to an author already present in AutiHub. 11 / 17 (64.7%) names are not yet linked.
Names linked to a person identified as autistic
4 / 17 (23.5%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 4 / 6 (66.7%). Distinct people identified as autistic: 4 / 17 (23.5%).
  1. John Elder Robison * (2007). Look Me in the Eye: My Life with Asperger's .
    Type: Book OpenAlex: https://openalex.org/W1506815434
    Crossref OpenAlex
  2. Tony Attwood * (1997). Asperger syndrome: A guide for parents and professionals . Asperger syndrome: A guide for parents and professionals.
    Type: Other
    Crossref
  3. Catherine Lord , Susan Risi , Linda Lambrecht , Edwin H. Cook , Bennett L. Leventhal , Pamela C. DiLavore et al. (2000). The autism diagnostic observation schedule-generic: A standard measure of social and communication deficits associated with the spectrum of autism . Journal of Autism and Developmental Disorders, 30(3), 205. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1023/a:1005592401947 OpenAlex: https://openalex.org/W2144446993
    Crossref OpenAlex OpenCitations
  4. Donna Williams * (1993). Nobody, nowhere: The extraordinary autobiography of an autistic . Choice Reviews Online, 30(08), 30-4695-30-4695. American Library Association.
    Type: Article DOI: 10.5860/choice.30-4695 OpenAlex: https://openalex.org/W1518180707
    Crossref OpenAlex
  5. Gwen Lopez-Cohen , John McCarthy (2008). Look Me in the Eye: My Life with Asperger's . Journal of the American Academy of Child & Adolescent Psychiatry, 47(5), 606-607. Elsevier BV.
    Type: Article DOI: 10.1097/01.chi.0000313975.31996.8a OpenAlex: https://openalex.org/W2111064877
    OpenAlex
  6. D Tammet (2007). Born on a blue day . Born on a blue day.
    Type: Other
    Crossref
  7. Temple Grandin * (1986). Emergence: Labelled autistic . Emergence: Labelled autistic.
    Type: Other
    Crossref
  8. SM Shore (2003). Beyond the wall: Personal experiences with autism and Asperger syndrome . Beyond the wall: Personal experiences with autism and Asperger syndrome.
    Type: Other
    Crossref
  9. J McCarthy (2007). Louder than words: A mother’s journey in healing autism . Louder than words: A mother’s journey in healing autism.
    Type: Other
    Crossref
  10. Autism Speaks. (2009). I am autism. https://www.youtube.com/watch?v=9UgLnWJFGHQ&t=14s .
    Type: Other
    Crossref