Une enquête transversale australienne sur les expériences des parents lors de visites aux services d'urgence parmi les enfants présentant un trouble du spectre de l'autisme

Titre original en anglais : An Australian Cross-Sectional Survey of Parents’ Experiences of Emergency Department Visits Among Children with Autism Spectrum Disorder

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Garrick, A., Lee, M. L., Scarffe, C., Attwood, T., Furley, K., Bellgrove, M. A., & Johnson, B. P. (2021). An Australian Cross-Sectional Survey of Parents’ Experiences of Emergency Department Visits Among Children with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 52(5), 2046-2060. https://doi.org/10.1007/s10803-021-05091-9

Date de publication: 01/06/2021 Ajout dans AutiHub: 07/09/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
7
Auteur·ices de la publication identifié·es comme autistes
1 / 7 (14,3 %)
  1. Alice Garrick
  2. Marie L. Lee
  3. Carrington Scarffe
  4. Tony Attwood *
  1. Kirsten Furley
  2. Mark A. Bellgrove
  3. Beth P. Johnson

Résumé

Les parents d'enfants présentant un TSA ayant fréquenté un service d'urgence australien (SU ; n = 421) ont rempli un questionnaire relatif à leurs expériences au SU, incluant (1) le motif de consultation de l'enfant et les comorbidités existantes, (2) la qualité des soins durant la visite, (3) le comportement de l'enfant durant la visite, par exemple les réponses sensorielles à l'environnement du SU et les comportements perturbateurs. Les enfants présentant un TSA comorbide avec une déficience intellectuelle étaient plus susceptibles de consulter pour des problèmes gastro-intestinaux et des crises convulsives, tandis que ceux présentant un TSA comorbide avec un trouble oppositionnel avec provocation étaient plus susceptibles de consulter pour automutilation. La connaissance par le personnel du SU des problématiques liées au TSA, y compris la communication et l'expression de la douleur, constituait une difficulté fréquente pour les parents. L'environnement du SU (par exemple, les lumières, les sons, les salles d'attente) exacerbait l'anxiété de l'enfant et entraînait des comportements perturbateurs.

Parents of children with ASD who had attended an Australian emergency department (ED; n = 421) completed a questionnaire relating to their experiences in the ED, including (1) child's reason for presentation and existing comorbidities, (2) quality of care during the visit (3) child's behaviour during visit, e.g. sensory responses to the ED environment, and disruptive behaviours. Children with comorbid ASD and intellectual disability were more likely to present with gastrointestinal issues and seizures, while those with comorbid ASD and oppositional defiant disorder were more likely to present with self-injury. ED staff awareness of ASD-related issues, including communication and expression of pain, were common difficulties for parents. The ED environment (e.g. lights, sounds, waiting areas), exacerbated child anxiety and led to disruptive behaviour.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 12/09/2026 18:17.

Références citées
45
Avec un DOI
41
Sans DOI, à partir du texte brut de la bibliographie
3
0 / 45 (0,0 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
3 / 45 (6,7 %)
Références avec noms d’auteurices détectés
43 / 45 (95,6 %)
Sans nom d’auteurice détecté
2
Sans titre structuré
3
Sans identifiant stable
3
Références avec noms bruts d’auteurices restant à vérifier
2
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
168
À partir du DOI ou de métadonnées externes
168
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
5
16 / 168 (9,5 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 152 / 168 (90,5 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
0 / 168 (0,0 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 0 / 16 (0,0 %). Personnes distinctes identifiées comme autistes : 0 / 144 (0,0 %).
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